Thread by @extantCMW

@audacity2speak I didn't know much about this, so I spent the afternoon reading about it and... oof. The first thing that really raised a ton of red flags was all the pharma and medical device money behind the clause in the law. And from what I can tell, corporations just massaged an occasional

@audacity2speak social problem into something dire that only their fancy tech can solve!

I'm wildly upset at the use of biometrics and geolocation, as if disabled people needed to be tracked by the fucking government in order to get assistance. I saw that video of the person in Ohio who wasn't

@audacity2speak allowed to use their EVV device without the camera and mic exposed. That's *chilling*. Lord knows what these medical tech companies are collecting, or how they're using it, but it sure seems unconstitutional to require home care workers and disabled people to give up a bunch of

@audacity2speak privacy just to deserve Medicare. Plus, give that shit two years before it's hacked repeatedly! I don't hear good things about the state of cybersecurity in medical records.

Another notable thing that really got me: the incredibly regressive "you have to be near your home"

@audacity2speak system of general location tracking where even some of the more forgiving suggested implementations still require both people to be near a single, static location to verify work is being done! That's ridiculous. That's just electronically tethering disabled people to their homes,

@audacity2speak which is already enough of a fucking problem the way society conducts the rest of its affairs!

Also! Last thing that really torques me off: I'm all for a little standardization in health care, but that standardization should be forced on the pharma companies and the payment

@audacity2speak systems, not the people getting care and assistance! If someone is happy filling out timesheets by hand, who am I to say that's a bad way to go? The person getting the assistance should be the one in control of who's there and when. I'm not 100% on this, but I get the vibe that

@audacity2speak this new EVV system takes a lot of that control and gives it to private, large-scale home health employers, and that gives me the "rich people are trying to find a new source of revenue as M4A gets popular" willies.

Anyway, that's my initial takeaway from reading things by

@audacity2speak @kendra_scalia and others this afternoon. If I'm mistaken in anything, please correct me! And if there's anything particular you want me to read about, I'm into it.

@audacity2speak @kendra_scalia I guess, to answer your question specifically: EVV -- seems bad. Databases and tracking and Silicon Valley bullshit paired with mandates on the behavior of disabled folks.

@audacity2speak @kendra_scalia First: wow, Twitter butchers longform replies. I had no idea, lol! Dunno what to do about that! Oh well.