Today I found myself on a plane again. Only this time I was flying to DC to see Steve Gleason be awarded the Congressional Gold Medal. This Medal is a huge f’ing deal.
Why?
The enormity of this moment, that a guy with ALS—a guy I know—is receiving one of highest awards humanity created hit me as I waited for my ride to the airport.
I had no idea how I would make this happen, but I was confident enough in my nascent plan that I wrote out what I wanted them to read.
True to his word 20 minutes later he introduced me to the lead pilot. I repeated the full story and made the ask again, handing my phone on which the words were written.
I watched him read it, take it in and then look up at me.
I told him I understood, thanked him for trying and settled in for the flight.
Thank you, thank you, thank you. Your acts today mean sooooo much more than you could ever know.
Also, to those who want to know what I wrote, here it is:
In 2011, Steve was diagnosed with ALS-a terminal disease
One of our passengers today, Brian Wallach, is flying to DC to see this historic moment. Brian is also living with ALS and you will notice him by the I AM ALS shirt he’s wearing
We take a moment today to salute their courage, and the courage of all those fighting ALS and other terminal diseases.
Here's to building a better future together.