Patients with autoimmune diseases, such as #lupus and #RheumatoidArthritis, are having trouble filling their prescriptions since Trump touted their medicine as an experimental treatment for #Covid19. /thread news-journalonline.com/news/20200405/…
“The hasty and inappropriate interpretation of the literature by public leaders has potential to do serious harm" write 2 rheumatology experts in the Annals of Internal Medicine. annals.org/aim/fullarticl…
FL pharmacists report "nearly all of the new prescriptions for #hydroxychloroquine are being issued for the prescribing practitioners themselves or family members of the prescribing practitioners." Some drs are prescribing it to healthy people as a #Covid19 preventative.
FL #Pharmacy Asso asked Gov to “issue an emergency order, or direct the Board of Pharmacy in collaboration with the Board of Medicine to issue an emergency rule, limiting such practices," so #lupus & #RA patients could fill their scripts. DeSantis said no. drive.google.com/file/d/1UbRyBA…
“I’m not a doctor. I’m not telling anyone to take it or not take it,” DeSantis said. “But I do believe in the idea of a right to try." 1 FL pharmacist got 100 calls w/in 2 days after Trump 1st talked about it & can't get fill scripts for people w/ serious autoimmune diseases.
1 FL woman had to stretch a 7-day supply across several weeks. Her pharmacist was able to piece together a 30-day supply from pharmacies around the state: “They have literally saved my life,” the 55-year-old Deltona resident said of Accardi and his team.
Another FL pharmacist gave his customers limited amounts to ration pills from his limited stock. "We haven’t been able to obtain any in the past several weeks. We check every day to see if it’s available. There’s not a lot of options for some of these rare diseases,” Corgan said.
Joint letter to WH from #Lupus Foundation, Am College of #Rheumatology, Am Academy of #Dermatology & #Arthritis Foundation: “For patients with #lupus, hydroxychloroquine is the only medication shown to increase survival." ...
“Many of our patients are not able to fill their prescriptions, due to major shortages of hydroxychloroquine, w/ validated reports across the country of pharmacies having depleted their supplies."
drive.google.com/file/d/1IAdvbe…
drive.google.com/file/d/1IAdvbe…
While some states & pharmacies have taken action to preserve the supply of these medicines for patients who rely on them to manage severe autoimmune diseases like #lupus & #RheumatoidArthritis, Florida has not.
@threadreader unroll
