For those that have #hereditarypaincreatitis there is few options & those options often have large risks. One option is the removal of the #pancreas as well as other organs. At times this benefits. Others it causes more harms & families find 1/ facebook.com/662631262/post…
themselves alone & abandoned because the surgery caused greater harm than benefit. We are cast out, on our own finding options for those complications, for the ongoing pain. While I am happy for those that benefit we MUST find a less drastic option to address this disease 2/
This organ is so often ignored many people outside med field often not familiar with it. While there are some experts there is still so much to learn about this organ. #Diabetes #HereditaryPancreatitis #PancreasCancer 3/ 
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