I’ve been contacted 2x just this wk—1 IRL acquaintance & 1 person I know only via Twitter—after they got imaging results in portal before their dr. They DM’d w/ screenshots, panicked, asking for help. I’m 💯 for pt access to #EHR, but #CuresAct implementation needs a MAJOR reboot
Whenever I have expressed concern about #CuresAct, #advocacy often tells me it’s still better. But it def was not better for these folks, nor for me dropping everything to help ppl who aren’t my pts, whose records I lack, & whose drs I don’t even know, i.e., it’s bad care. 😔
And I’m always happy to help patients, genuinely. I actually started using Twitter to be able to report out from #SABCS17 (I think) for #advocacy. But I don’t like providing bad medical care, & this is a set-up for doing so. We need a systems fix so pts aren’t left hanging…
…& often *genuinely* suffering over something inconsequential. And so their own drs aren’t blindsided w/ panicked pt msgs before they’ve even seen results. And so other random drs aren’t trying to help out w/ incomplete info & none of our usual systems to coordinate care. /End

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More from @tmprowell

20 Dec
🧵I have to say it: Christmas break is going to be bad. I'm watching confirmed #COVID19 cases⬆️ exponentially at our highly-#vaccinated school w/ a #MaskMandate & HEPA filters in every class. Make a plan now for how you'll handle Xmas & #quarantine when someone gets #Omicron.
2/ Think about how you can create a separate space for the person(s) infected. Remember #OmicronIsAirborne. Pick a rm w/ windows to open & its own door if your home allows. Today put a fan there that can be used to improve air exchange. Put a 🌡️, an O2 sat monitor, good masks.
3/ Go get a MERV13 filter for your HVAC at Home Depot or Lowe's or online. While here, get the stuff to build a simple, inexpensive, highly-effective Corsi-Rosenthal box. You can see what this is here. Build it now so it's ready.
Read 15 tweets
19 Dec
🧵It is now clear that we are going to have to get people to #MaskUp to get thru winter without US health care system collapse. #Omicron is way too contagious. #VaccinesWork & #GetBoosted, but they will not be enough on their own. So this thread is for people who hate masks:
2/X: If you hate masks because the ear loops make your ears sore, google "ear savers." That's the term I've seen used for various products that spare your ears w/ masks. Examples in pics, but if you can sew on a button, make some. What else are you gonna do in #quarantine?
3/X: You can get a beanie, headband, baseball cap, head scarf, whatever & attach button or hooks of any kind that you can get from any sewing store or online, & attach your mask loops to that. Ear pain solved! It's important to have a snug fit so try diff distances.
Read 17 tweets
19 Dec
I know personally 3 people receiving monoclonal antibodies this evening. All have had 3 doses of #COVID19 #vaccine or prior infection + 2 doses of vaccine. All are careful. They all have risk factors, but all are pretty symptomatic. Jan is gonna be…rough. #MaskUp. #Omicron
Tweet 2: A lot of people seem to be panicking based on this anecdote. Panic is NOT productive. Instead you need to calmly plan & act to reduce your risk. These are some effective things you can do right now:
👉Upgrade your masks. No more cloth alone. Best is N95/KN95/KF94...
Tweet 3: As an alternative to N95/KN95/KF94, if you can't tolerate those or don't have them, I rec a surgical mask (ASTM level 3, 3-ply is great) w/ cloth mask over it. Read this: scientificamerican.com/article/why-we…. The non-profit @projectn95 has vetted, affordable PPE including masks.
Read 13 tweets
18 Dec
📢#HCWvsHunger Team #Feedalizumab! We know it takes a village in #MedTwitter, & it's time to make a move on the leaderboard. Announcing #MultiDFoodBoard merging #Feedalizumab, #BadBlood, #HopeAtTheScope, #RadsForFood, #HeartAttacksHunger, & #AmoxiChilin! 😎hcwvshunger.org/how-to-donate/
Your move, #KidVengers & #BladesNBougies. I told you not to count out #Feedalizumab. No one knows better than #OncTwitter how much it takes a village to care for complex patients. Heme/Onc/Path/Rads/ID/Cards--we need them all. Boom! GO merged team #MultiDFoodBoard😎♟️#HCWvsHunger
My only question is how far away people will be able to hear @kari_jerge, @MSharifpourMD, & @DrJenChen4kids when they see this tweet announcing the merger?🤔Go #MultiDFoodBoard. #HCWvsHunger
Read 5 tweets
16 Dec
📣#HCWvsHunger, the AMAZING Exec Chef at the Lord #Baltimore (& prev Ritz-Carlton), @chefdini, will be making homemade 🍩 at your Balt/DC worksite for 50 ppl (outdoors & brings minifryers) if you’re the next donor to give $1K+ to food bank for #Feedalizumab! Holiday party ✅! Image
Tweet 2/2: We’ll use the earliest official Google form time stamp on any $1000 or more donation following my tweet to determine the winner. Donate to any food bank first then log it here in 30sec for #HCWvsHunger #Feedalizumab. Must be Balt/DC area to win! hcwvshunger.org/how-to-donate/
Wondering what this is all about? Read more about Health Care Workers Vs. Hunger here. We’re taking care of you all during this #pandemic & we’ve raised > $550K since Dec 2020 to make sure people don’t go to bed hungry on our watch. #HCWvsHunger
❤️💪🍎

hcwvshunger.org/faqs/
Read 4 tweets
15 Dec
If you're confused about why #omicron is suddenly a crisis, it's exponential growth. Even if fewer people get seriously ill w/ this #covidvariant than priors (not clear, but hopeful data from #SouthAfrica), so many people abruptly ill with anything can grind the world to a halt.
With so many sick at once, you may lack school bus drivers, teachers, truck drivers to move supplies, grocery store shelf stockers, doctors & nurses, & so on. The world isn't set up for everyone to be sick simultaneously w/ #omicron. There's not enough redundancy in the system.
So even if NO ONE got seriously ill, but a large # of ppl were sick enough to be unable to work for a few days, it would be tough. Now add in that some % will get hospitalized, or die, of #Omicron. Even a small % of a very large # of cases is a big #. That's why we are worried.
Read 6 tweets

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