Arianne Profile picture
Feb 17 10 tweets 5 min read
I commented on the CDC's rewrite.
For whatever that's worth.
I'm exhausted, angry, & now grieving a loss that no parent should ever have to face.
I've had my health & ability to live stolen and lost far too many people I love and care about to this #OpioidInsanity.
Thread...👇🏼
2- My comment?
You have no intention of ending this atrocity. You have had people in the pain community chasing their tails for years while asking for our input and 'comments'.
#Chronicpain
3-We've explained over and over that we are suffering and dying out here in the real world. That MDs tell us to our faces that they are AFRAID of the DEA, and that we are not worth risking their licenses over.
#Chronicpain
4-This is not an unfounded fear, as your arbitrary and medically baseless MME 'speed limit' gives LE a made up metric by which doctors are now flagged as 'over prescribers'.
#chronicpain
5-Those in the CDC and HHS seem divorced from reality. Our legislators and government agencies are either willfully ignorant or knowingly complicit in the ongoing torture and deaths of some of the most vulnerable among us.
#chronicpain
6-When the government's own data shows that overdoses are still skyrocketing despite ongoing, draconian, prescription opioid policies and practices, one can only come to the conclusion that it is the latter.
#Chronicpain
7-Nothing short of a public declaration that our leaders got this 'opioid crisis' response ALL WRONG, and that PROPs opioid guideline and the weaponized PDMP will be rescinded immediately, will be acceptable.
#Chronicpain
8-It is the only way to effect meaningful changes for the tens of millions of sick and injured people for whom opiate class medicines mean LIFE.
#chronicpain
9-We have been given platitudes and promises that things would change for fare too long, and the 'science' shows that the current 'opioid' response is doing ONLY HARM to both the pain community and to people with addiction issues.
#Chronicpain #addiction

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More from @ravensspirit68

Feb 1
1-Tx of pain & the role of opiate class medicines has gone from pain being inadequately treated across the board to abject insanity.
This was done in an orchestrated but convoluted way, taking pain and making it a 'bio-psycho-social' issue tied inexorably with addiction.
2-For those unfamiliar with CHOIR, it's one of Stanford's projects. It was promoted with the National Pain Strategy (when it was a thing) alongside PROPs opioid 'guideline' as a model for technology driven optimization of pain care through research and data mining.
3-The screenshot above in tweet #2 is from this link. iprcc.nih.gov/sites/default/…
Read 15 tweets
Jan 27
I hear a public comment period is coming next week on CDC opioid 'guideline' revisions. This link shows who was involved in the 'opioid' revision workgroup, and what topics of concern were discussed. 😔
#GetLawEnforcementOutofHealthcare
#ChronicPain
cdc.gov/injury/pdfs/bs…
2-Listed in this thread the people who are influencing 'guidelines' for chronic pain treatment and pain treatment in general.
Dr. Wilson M. Compton serves as the Deputy Director of the National Institute on Drug Abuse.
nida.nih.gov/about-nida/org…
3-Anne Burns, BSPharm Vice President, Professional Affairs, at the American Pharmacists Association
Responsible for the Association’s strategic initiatives focused on advancing pharmacists’ patient care services in team-based care delivery models,
ahip.org/speaker/anne-l…
Read 23 tweets
Jan 26
Petition to Congress.
Public Comments (15,444)
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #Veterans #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-circa 2019.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Read 4 tweets
Jan 26
And I want to RT this to stand on it's own merit.
Just in case it gets buried in the thread.
#ChronicPain #Addiction #DrugUseForGrownUps
#Overdose #Opioids
2-A patients need for opiate pain meds should not be determined on addiction treatment issues. Nor should it necessitate recreational drug advocacy. Those are NOT our fights.
People in pain have been deemed acceptable collateral damage in an ongoing, doomed to fail drug war.
3-And here we are. Tens of millions of people in pain told that we should be helping get access to #MAT for thoes w/addiction issues, and help legalize recreational drugs, all while we watch our frends in the pain community dying due to lack of needed legal/safe MEDICINES.
Read 4 tweets
Jan 26
This was the "Pain Patients Bill of Rights" in 1997.
Let me repeat that date.
1997.
MDs already had the right to REFUSE pain meds-
LE to go after illegal use.
The whole 'everyone getting opioids like candy' is & was BS.
#GetLawEnforcementOutofHealthcare
search-california-law.com/research/ca/HS…
2-This is the business code info referenced in the above linked 'Patients Bill of Rights'-Cal. Health & Safety Code §124960.
Yet today, few can get proper pain care in CA to literally save their lives.
#StopPainParole #GetLawEnforcementOutofHealthcare
leginfo.legislature.ca.gov/faces/codes_di….
3-Most #chronicpain pts are told to just 'follow the rules' and/or agree to go to 'pain management' clinics to get care, yet Pain Clinics are targeted by LE/DEA & shuttered.
Patients abandoned.
'No opioid Interventional Medicine' has become standard of tx.
visaliatimesdelta.com/story/news/202…
Read 5 tweets
Jan 16
Covid #LongHaulers please take note.
Those in the #MEcfs community has been down the Post Viral Sydrome road for decades now.
The CDC is fully aware of our plight, but has done little in the way of research or help.
#ThisNeedsToChange
Thread...
2-It begins, usually, with an infection.
For the majority of #MyalgicEncephalomyelitis pts it was the Epstein Barr Virus. But there are other infections that lead to #MEcfs as well. In almost every case the person knows that from that point, they were never the same again.
3-For some the progression is slow, fits & starts of decline.
Many continue with some sense of 'normalcy' in life for years. For others the onset of their post viral syndrome happens immediately and functional decline deterioration of all body systems is rapid.
#LongCovid #MEcfs
Read 10 tweets

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