Tomorrow is my 14 month #CovidVaccine anniversary.

Today is hopefully the beginning of the end of that nightmare. 😬😅🤞🏻

#vaccineinjuries #LongCovid #TeamClots A box of clopidogrel 75 mg tablets and a box of abixaban 5 m
Massive thank you to the vaccine injured community, esp @ukcvfamily but also many others (special thanks to @Fallaryn), who have introduced us all to research and brought untold levels of support
Massive thank you to all the #microclots researchers and clinicians who have brought us valuable insight and quite literally life saving advice. The idea to get a VQ scan was a game changer and i cant thank the person who suggested that enough
Last but not least, massive thank you to @DeansKevin who has listened to me as a patient and scientist, who has sought expert advice to get me the best care, and above all, as believed me even when i doubted the reality of my symptoms
We might be wrong. We dont have "proper" clinical evidence yet. But getting rid of the pulmonary emboli certainly isnt a bad thing.

Im so very emotional, so happy to get what I think is the right treatment, so sad how many others arent getting this treatment 😔🫂

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More from @angryhacademic

May 21
"Your test results are normal"

Medical professionals, please ask yourself: at which point would you stop testing?

I have put a ⛔ where I am aware many doctors have stopped with patients.

🧵

#LongCovid #MECFS #vaccineinjuries #chronicillness #TeamClots #MedTwitter
A patient goes to the dr with a range of systemic symptoms that dont neatly fit current diagnostic criteria. Symptoms started rapidly & strongly a few hours after the COVID vaccine; however, the reason for the problem isnt important for this lesson



The doctor does some tests
Hb, RBC, haematocrit, MCV, MCH, platelet count, WBC, neutrophil, eosinophil, basophil, lymphocyte, & monocyte count. Mean platelet volume is elevated but this isnt reported & is instead hidden in the lab records. “Your test results are normal” the doctor says

Read 18 tweets
May 19
folks. all i ask of you is this:
listen to the stories

forget which "side" you're on. this isnt a game. this is our reality

and if you dont think this is vax related, support our push to get researched so we can find out whats wrong with us, & maybe help make vaccines safer
i know if i wasn't #vaccineinjured i would probably scoff at this. i'd have preconceived judgements about some of the people involved.

this is fine, but don't let that cloud your judgement and empathy.

the patients are the one's suffering. listen to us.
and if you don't like the folk involved, then consider what our options have been. mainstream media ignore us. the speaker in the house of commons scoffed at us. dr's have been gaslighting us. scientists have been shouting "antivax" at us.
Read 6 tweets
Dec 17, 2021
#Antivax narratives actively harm the voices of the legit vaccine injured.

Antivaxxers fuel fear, take stories out of context, and encourage others to not get vaccinated. this means the vaccine injured (who may not be able to get boosters) are now less protected by herd immunity
There is a cruel irony that antivaxxers often shout about side effects being hidden, but they are the ones driving some of the silence. When a study comes out (e.g. the viral vector blood clots) and...
it gets pounced on my conspiracy bullshit, taken wildly out of context, spun into something it isn't, and drives people away from a safe and effective public health measure, why the fuck do you think some people don't want to talk openly about these things?!
Read 10 tweets
Dec 17, 2021
something #academics i think dont want to admit when it comes to marking #student work:
you quite often just *know* what the mark is & this seems to be quite reliable between markers
no amount of rubrics can define this & often these trap markers into box-ticking
#AcademicTwitter
would you agree?

i hate having to justify my mark based on a rubric; it is usually obvious who is a upper/middle/lower 1st, 2:1, 2:2, 3rd, or fail.

obvs the issue is bias without something "objective" but...
...i don't think the objectivity line helps as we just end up fitting our mark into the rubric rather than letting the rubric define the mark
Read 6 tweets
Dec 17, 2021
nice article about pilot studies:
ncbi.nlm.nih.gov/labs/pmc/artic…

i think a lot of people see pilot studies as "mini" studies, but this can be misleading.

tl;dr: pilot studies primarily test study feasibility; they do NOT *test* hypotheses

#AcademicTwitter #research #Science
key aims of a pilot study include (depending on the study):
☑️checking the feasibility of the protocol
☑️work out finer details (e.g. dosage, type of placebo/control)
☑️assess randomisation/blinding/etc procedures
☑️refine participant-facing documentation (e.g. consent form, information sheet, etc)
☑️refine study-related documentation (etc) (e.g. finding data entry issues)
☑️understand likely drop-out/retention
Read 4 tweets
Nov 19, 2021
something i think doctors don't always appreciate:
diagnoses are important to patients, even if there's no treatment

🧵

#MedTwitter #chronicillness #DisabilityRights
im sure there's other reasons but key things overall i think are:
1. a diagnosis gives you limits - what treatment can and can't be tried, what can trigger things, what's the prognosis, etc
2. it gives patients a community - there's tonnes of groups for people with all kinds of ailments, conditions, illnesses, disabilities. being able to talk to someone with a shared experience helps make everything less shit
Read 12 tweets

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