🧵 Our guidebook provides information, support and signposting.
📕 Chapters for young people, parents & caregivers & schools.
🔬Evidence based information & case studies
🤗 Nobody has to feel alone.
To learn more ⬇️
longcovidkids.org/support-guide
#LongCovid #LongCovidKids
📕 Chapters for young people, parents & caregivers & schools.
🔬Evidence based information & case studies
🤗 Nobody has to feel alone.
To learn more ⬇️
longcovidkids.org/support-guide
#LongCovid #LongCovidKids
Long Covid Kids started as a grassroots organisation in September 2020.
In October 2021 we became a registered charity.
Our patron is beloved children’s author @MichaelRosenYes
#LongCovidKids #LongCovid #MichaelRosen #Charity #Support #Children
In October 2021 we became a registered charity.
Our patron is beloved children’s author @MichaelRosenYes
#LongCovidKids #LongCovid #MichaelRosen #Charity #Support #Children
With the support of experts, scientists, paediatricians, doctors, nurses, researchers, advocates, occupational therapists, physiotherapists teachers & educational psychologists our team of volunteers created a guidebook to raise awareness & educate.
#LongCovidKids #LongCovid
#LongCovidKids #LongCovid
What is #COVID19 ?
Five ways that #SARSCoV2 is different to flu.
What is Long Covid?
#LongCovid #LongCovidKids
longcovidkids.org/support-guide
Five ways that #SARSCoV2 is different to flu.
What is Long Covid?
#LongCovid #LongCovidKids
longcovidkids.org/support-guide
What are the mechanisms of Long Covid?
There has been a steady stream of research🔬 from around the 🌍 that is beginning to unpick what causes #LongCovid.
longcovidkids.org/support-guide
There has been a steady stream of research🔬 from around the 🌍 that is beginning to unpick what causes #LongCovid.
longcovidkids.org/support-guide
LCK volunteers have worked tirelessly throughout the pandemic to shine a light on #LongCovid.
How common is Long Covid?
What is the size of the problem?
Long Covid symptoms in children.
#LongCovidKids
How common is Long Covid?
What is the size of the problem?
Long Covid symptoms in children.
#LongCovidKids
At the start of the pandemic the narrative was children would not be affected by #COVID19
We could see that children were effected & wanted to alert 🚨 policy makers.
We started sharing images/case studies/quotes/family quotes
#LongCovidKids
longcovidkids.org/support-guide
We could see that children were effected & wanted to alert 🚨 policy makers.
We started sharing images/case studies/quotes/family quotes
#LongCovidKids
longcovidkids.org/support-guide
How do children describe Long Covid?
Wrong
Unexpected
Unfair
Never ending
Horrible
How can we all support their well-being ?
#LongCovidKids #LongCovid #MEcfs #PoTS #PANS #PostViral #PostViralKids
Wrong
Unexpected
Unfair
Never ending
Horrible
How can we all support their well-being ?
#LongCovidKids #LongCovid #MEcfs #PoTS #PANS #PostViral #PostViralKids
Syndromes associated with post viral illness including #SARSCoV2.
PIMS - Paediatric Inflammatory
PoTS - Postural Orthostatic Tachycardia Syndrome
PANS - Paediatric Acute Onset Neuropsychiatric Syndrome
#LongCovidKids #LongCovid #MEcfs #PoTS #PANS #PostViral #PostViralKids
PIMS - Paediatric Inflammatory
PoTS - Postural Orthostatic Tachycardia Syndrome
PANS - Paediatric Acute Onset Neuropsychiatric Syndrome
#LongCovidKids #LongCovid #MEcfs #PoTS #PANS #PostViral #PostViralKids
Syndromes associated with post viral illness including #SARSCoV2.
ME - Myalgic Encephalomyelitis
MCAS - Mast Cell Activation Syndrome
#LongCovidKids #LongCovid #MEcfs #PoTS #MCAS #PostViral #PostViralKids
ME - Myalgic Encephalomyelitis
MCAS - Mast Cell Activation Syndrome
#LongCovidKids #LongCovid #MEcfs #PoTS #MCAS #PostViral #PostViralKids
Syndromes associated with post viral illness including #SARSCoV2.
FND - Functional Neurological Disorder
#LongCovidKids #LongCovid #MEcfs #PoTS #MCAS #PostViral #PostViralKids #FND
FND - Functional Neurological Disorder
#LongCovidKids #LongCovid #MEcfs #PoTS #MCAS #PostViral #PostViralKids #FND
Support for children & young people.
Most children do recover well from initial COVID-19 infection.
Doctors may tell us that most children recover well from
#LongCovid. This guide includes the experiences of all children,
including our own, who have had a different experience.
Most children do recover well from initial COVID-19 infection.
Doctors may tell us that most children recover well from
#LongCovid. This guide includes the experiences of all children,
including our own, who have had a different experience.
Since Long Covid is new, you may see lots of
different healthcare professionals. These could
be at a Long Covid Hub or somewhere else.
Below we have listed some of the people who may be involved in your care. It is best practice
for healthcare professionals to work together.
different healthcare professionals. These could
be at a Long Covid Hub or somewhere else.
Below we have listed some of the people who may be involved in your care. It is best practice
for healthcare professionals to work together.
How to help yourself.
It can sometimes feel that some things are scary and out of your control and of course
that is true of some things.
However there are things that you can do to support yourself and here are some of them.
#LongCovid #LongCovidKids
longcovidkids.org/support-guide
It can sometimes feel that some things are scary and out of your control and of course
that is true of some things.
However there are things that you can do to support yourself and here are some of them.
#LongCovid #LongCovidKids
longcovidkids.org/support-guide
Support for parents and caregivers.
“ Forgive yourself for not knowing what you didn't know before you learnt it”
Parenting in a pandemic has been tough; we have each had to make decisions based on the best available information.
#LongCovidKids
longcovidkids.org/support-guide
“ Forgive yourself for not knowing what you didn't know before you learnt it”
Parenting in a pandemic has been tough; we have each had to make decisions based on the best available information.
#LongCovidKids
longcovidkids.org/support-guide
How do I spot #LongCovid?
If any symptom comes and goes, or persists for more than four weeks after infection, especially
when part of a constellation, Think Long Covid.
How can I help my child get better?
longcovidkids.org/support-guide
#LongCovidKids #family #kids
If any symptom comes and goes, or persists for more than four weeks after infection, especially
when part of a constellation, Think Long Covid.
How can I help my child get better?
longcovidkids.org/support-guide
#LongCovidKids #family #kids
How to talk to a child about Long Covid.
“Adults have a key role in,
helping children understand
what is going on, providing
information and reassurance,
limiting media overload and being aware how their own reactions might impact on children” @BPSOfficial
#LongCovidKids
“Adults have a key role in,
helping children understand
what is going on, providing
information and reassurance,
limiting media overload and being aware how their own reactions might impact on children” @BPSOfficial
#LongCovidKids
When words run out.
Chronic illness is hard. We know that sometimes it's difficult to find the right words and at other times it is difficult to find any at all. We've
provided some for you. You are not alone.
#LongCovidKids
longcovidkids.org/support-guide
Chronic illness is hard. We know that sometimes it's difficult to find the right words and at other times it is difficult to find any at all. We've
provided some for you. You are not alone.
#LongCovidKids
longcovidkids.org/support-guide
Research, media and facts.
Throughout the pandemic unhelpful headlines have caused upset to families. Long Covid Kids have expert Champions that we look to for accurate analysis of research. They report
accurate and unbiased information that you
can trust.
#LongCovid #Research
Throughout the pandemic unhelpful headlines have caused upset to families. Long Covid Kids have expert Champions that we look to for accurate analysis of research. They report
accurate and unbiased information that you
can trust.
#LongCovid #Research
Work & caring for a child with Long Covid.
What I can I expect from my employer?
How should I structure my work?
What happens if my employer is not supportive?
What if I am asked to resign?
Where can I find more support?
#LongCovid #LongCovidKids
@longcovidwork #Employment
What I can I expect from my employer?
How should I structure my work?
What happens if my employer is not supportive?
What if I am asked to resign?
Where can I find more support?
#LongCovid #LongCovidKids
@longcovidwork #Employment
Support for schools
@NelsonMandela -
"our greatest treasure and our future" and describing
that "the true character of society is revealed in how it
treats its children"
longcovidkids.org/support-guide
#BacktoSchool2022 @HeadsRoundtable #LongCovidKids #LongCovid @ChildrensComm
@NelsonMandela -
"our greatest treasure and our future" and describing
that "the true character of society is revealed in how it
treats its children"
longcovidkids.org/support-guide
#BacktoSchool2022 @HeadsRoundtable #LongCovidKids #LongCovid @ChildrensComm
What do children living with Long Covid want their #teacher to know ?
“Just because I am at school does not mean I am well”
“Sometimes I can’t think straight”
longcovidkids.org/support-guide
#teacherstudent #teachersoftwitter #education #BackToSchool2022 #LongCovid #LongCovidKids
“Just because I am at school does not mean I am well”
“Sometimes I can’t think straight”
longcovidkids.org/support-guide
#teacherstudent #teachersoftwitter #education #BackToSchool2022 #LongCovid #LongCovidKids
The graduated approach & reasonable adjustments.
The graduated approach, also known as
#SEND Support, is a way of helping to identify
the needs of children and young people with
Special Educational Needs and Disabilities
#LongCovid #LongCovidKids #BackToSchool
The graduated approach, also known as
#SEND Support, is a way of helping to identify
the needs of children and young people with
Special Educational Needs and Disabilities
#LongCovid #LongCovidKids #BackToSchool
Areas of need & things to consider.
Although #LongCovid may not immediately be considered a #disability, #LongCovidKids would urge schools to take note of the reasonable adjustments outlined from page 102 and
implement them as soon as possible.
More ⬇️
longcovidkids.org/support-guide
Although #LongCovid may not immediately be considered a #disability, #LongCovidKids would urge schools to take note of the reasonable adjustments outlined from page 102 and
implement them as soon as possible.
More ⬇️
longcovidkids.org/support-guide
Mitigating risk.
It is a human right for children to breathe clean air.
We must improve indoor air quality in #schools; reduce
infections, reduce post viral illness and improve health and learning outcomes.
@CleanAirClassrm @hazardscampaign
#cleanair #HumanRights #Children
It is a human right for children to breathe clean air.
We must improve indoor air quality in #schools; reduce
infections, reduce post viral illness and improve health and learning outcomes.
@CleanAirClassrm @hazardscampaign
#cleanair #HumanRights #Children
@threadreaderapp unroll please
• • •
Missing some Tweet in this thread? You can try to
force a refresh
