Saw Dr Claire Taylor today at her private clinic. Shes taking a break from twitter atm but i just want to say it was a fantastic appointment. She was open to my ideas, explained where she disagreed & why, & prescribed some meds i think will really help
#postvacsyndrome #LongCovid
We also have a plan to identify whether longer term anticoagulation is warranted, based on the DASH score and antiphospholipid syndrome testing. This does mean coming off apixaban for 1 month which obvs worries me

I felt very supported as a patient. Money well spent!
Because im quite stable atm, im not going to start or stop any meds until after xmas.

Very grateful shes opened her clinic and if youve hit a brick wall with treatment for #LongCovid and related problems, id highly recommend!

#MCAS #pots #MECFS
You can book her here:
drclairetaylor.com
Of course want to add a huge thanks to the kind folk who donated which covered the cost of this brilliant appointment

Common questions:
🤳 does she only do face to face? No - i believe you can call the clinic for online appointments

📝do you need a referral? Nope!

💰how much? £270 for 45 min app. Private prescription cost me £8 + whatever the drugs cost at pharmacy. Claire gave me...
...the script there and then so i have it but she will write to my GP and hopefully they will agree to prescribe the meds. Im covered if they refuse though which is a big relief!

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More from @angryhacademic

Dec 13
Things i dont like about this tweet:

1. I find it odd @DrAseemMalhotra is suddenly declaring post vac POTS patients are contacting him; if he listened to patients/support groups who engaged faithfully with him, he wouldve been shouting about this for a while now, like we have
2. I find it odd an award winning cardiologist doesnt know how to treat POTS, or who the experts are (hint: a big name is in London). POTS support/POTS friendly drs are well known in support groups. If he didnt burn his bridges, he couldve asked the support groups he betrayed Screenshot of aseem malhotr...
3. Of the TWO vaccine injured patients i know of who did contact him: one he ignored. The other he set up a meeting with then ghosted. I really dont like accusing folk of lying but i really struggle to believe he has had a load of post vac POTS patients contact him
Read 5 tweets
Dec 13
very happy as we've been sending out #SIRENstudy participants at our site their spike antibody results. today i received mine, and OHHH BOOOOYYYYY are they interesting!

but first, some context 🧵

#postvac #vaccineinjuries #LongCovid #TeamClots
i will start by saying that all my nucleocapsid antibodies are unambiguously negative. each blood sample is accompanied by a PCR + another PCR in between blood samples. + a 3rd PCR a month for ONS.
the numbers. we use the Abbott IgG immunoassay which has a maximum threshold of 80,000 AU/mL. below is the information we have given to participants text reading: Technical inf...
Read 14 tweets
Nov 26
Soooo, when are we suing #publichealth bodies for all the shoddy guidelines theyve been spouting that directly go against an abundance of evidence?

#COVIDIsAirborne #WearAMask #CovidIsNotOver
I can forgive errors at the beginning of the pandemic, but we're years into this now.
Imo public health should
😷provide free FFP3 masks + education on face fitting & face fit centres

💨ventilate public buildings/transport, mandating companies to do the same, & supporting the public eg free hepa filters

📈test & track

🤒provide proper support for those off sick
Read 5 tweets
Nov 26
What evidence have we got for vaccine induced #longcovid like presentations?

A thread 🧵 (focused on human evidence rather than theoretical or mechanistic)

#PostVac #teamclots #vaccineinjuries
I will start by saying the *published* evidence is limited. Therefore going off published evidence alone is (by definition) incomplete (same for any research: the active researchers have a knowledge advantage)
1. This was first reported in the mainstream in Jan 2022 by Science mag:
science.org/content/articl…
Importantly, there are a handful of such cases in the trials that were excluded from final analysis, one is described in the Science article
Read 28 tweets
Nov 26
this thread sums up #academia so well. i hated so much of it, but kept telling myself the 10 % i love (the research) made up for the 90 % of shit the majority of the time.

i delayed leaving because of that 10 %.

#AcademicTwitter #phdchat #ucuRISING
leaving required a sort of mourning (appreciate this sounds dramatic); i was losing my identity as an academic

my skills and knowledge are so specialised who would even want me anyway?

why would i even want to lose what i have? i have academic freedom after all!!
then my planned redundancy went ahead even though we were eligible for furlough. my next plans (to go to Sweden) fell through because of the plague.

there were no jobs. i stopped being an academic by force. i thought i'd be miserable.
Read 7 tweets
Nov 25
Used my energy for the day visiting the nearest @ucu @aberdeen_ucu picket line with Dr Blinky in support of their ongoing #Strikes 👊🏻💪🏻

Sadly #royalmailstrikes had packed up by the time i was on my way back so i couldn't say hello👋🏻

#Solidarity #StrongerTogether #JoinAUnion 3 people, one man and 2 wom...
Got too excited seeing people, this 1 hour at a picket has been the most socialising and energetic thing ive done in 20 months. Already feeling the effects, but so nice to see folk and show solidarity to the first #union i ever joined (even though im no longer a member)
The work unions do benefit all of us. Employers want your labour, workers want to have a life outside of work.

If you like your holiday pay, sick pay, parental leave, maximum work hours, minimum wage, pensions, safety at work etc, then you support unions.
Read 5 tweets

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