Saw Dr Claire Taylor today at her private clinic. Shes taking a break from twitter atm but i just want to say it was a fantastic appointment. She was open to my ideas, explained where she disagreed & why, & prescribed some meds i think will really help #postvacsyndrome#LongCovid
We also have a plan to identify whether longer term anticoagulation is warranted, based on the DASH score and antiphospholipid syndrome testing. This does mean coming off apixaban for 1 month which obvs worries me
I felt very supported as a patient. Money well spent!
Because im quite stable atm, im not going to start or stop any meds until after xmas.
Very grateful shes opened her clinic and if youve hit a brick wall with treatment for #LongCovid and related problems, id highly recommend!
Common questions:
🤳 does she only do face to face? No - i believe you can call the clinic for online appointments
📝do you need a referral? Nope!
💰how much? £270 for 45 min app. Private prescription cost me £8 + whatever the drugs cost at pharmacy. Claire gave me...
...the script there and then so i have it but she will write to my GP and hopefully they will agree to prescribe the meds. Im covered if they refuse though which is a big relief!
• • •
Missing some Tweet in this thread? You can try to
force a refresh
1. I find it odd @DrAseemMalhotra is suddenly declaring post vac POTS patients are contacting him; if he listened to patients/support groups who engaged faithfully with him, he wouldve been shouting about this for a while now, like we have
2. I find it odd an award winning cardiologist doesnt know how to treat POTS, or who the experts are (hint: a big name is in London). POTS support/POTS friendly drs are well known in support groups. If he didnt burn his bridges, he couldve asked the support groups he betrayed
3. Of the TWO vaccine injured patients i know of who did contact him: one he ignored. The other he set up a meeting with then ghosted. I really dont like accusing folk of lying but i really struggle to believe he has had a load of post vac POTS patients contact him
very happy as we've been sending out #SIRENstudy participants at our site their spike antibody results. today i received mine, and OHHH BOOOOYYYYY are they interesting!
i will start by saying that all my nucleocapsid antibodies are unambiguously negative. each blood sample is accompanied by a PCR + another PCR in between blood samples. + a 3rd PCR a month for ONS.
the numbers. we use the Abbott IgG immunoassay which has a maximum threshold of 80,000 AU/mL. below is the information we have given to participants
I will start by saying the *published* evidence is limited. Therefore going off published evidence alone is (by definition) incomplete (same for any research: the active researchers have a knowledge advantage)
1. This was first reported in the mainstream in Jan 2022 by Science mag: science.org/content/articl…
Importantly, there are a handful of such cases in the trials that were excluded from final analysis, one is described in the Science article
this thread sums up #academia so well. i hated so much of it, but kept telling myself the 10 % i love (the research) made up for the 90 % of shit the majority of the time.
Got too excited seeing people, this 1 hour at a picket has been the most socialising and energetic thing ive done in 20 months. Already feeling the effects, but so nice to see folk and show solidarity to the first #union i ever joined (even though im no longer a member)
The work unions do benefit all of us. Employers want your labour, workers want to have a life outside of work.
If you like your holiday pay, sick pay, parental leave, maximum work hours, minimum wage, pensions, safety at work etc, then you support unions.