Share this page!

Enter Twitter Thread URL to Unroll

Needs to be the full URL like: https://twitter.com/threadreaderapp/status/1644127596119195649

How to get URL link on Twitter App

  1. On the Twitter thread, click on or icon on the bottom
  2. Click again on or Share Via icon
  3. Click on Copy Link to Tweet
  4. Paste it above and click "Unroll Thread"!
  5. More info at Twitter Help
Long Covid Kids - longcovidkids@mas.to Profile picture
@LongCovidKids
May 29 • 6 tweets • 7 min read Twitter logo Read on Twitter
🧵 “We now need to explore whether the lack of implementation is due to a lack of commissioning of services, or whether it represents centres choosing not to follow the guidance & use alternative strategies without evidence base.” @DocStrain

#MECFS #NHS
thetimes.co.uk/article/thousa… Image
“It is important that decisive action is taken to address these issues and ensure that #MECFS patients receive the appropriate care they deserve,
@SonyaChowdhury
@actionforme

#PostViralIllness #Disability #Health Image
With > 2 million people living with Long Covid, and > 50% said to meet the criteria for #MECFS and therefore @NICEComms guidelines communities must stand together to ensure safe rehabilitation & care.

The full article can be seen here.
Thanks @ABrokenBattery

#LongCovidKids
Learn more about safe Long COVID rehabilitation in this video from @LongCOVIDPhysio

#LongCovidAwareness #LongCovid
#LongCovidKids

longcovid.physio/long-covid-vid…
The preliminary findings of our research with @DerbyUni on the @NHSuk paediatric Long Covid hubs can be found here.

We continue to work with NHS to improve experiences and outcomes for children.

#LongCovidKids #Feedback

longcovidkids.org/post/feedback-…
@threadreaderapp unroll please

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Long Covid Kids - longcovidkids@mas.to

Long Covid Kids - longcovidkids@mas.to Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @LongCovidKids

Long Covid Kids - longcovidkids@mas.to Profile picture
May 26
🧵 “researchers say they’ve come up with a list of 12 symptoms that can reliably classify someone as having Long Covid a working definition that should accelerate research into the disabling condition.”
#LongCovid @CNN
amp.cnn.com/cnn/2023/05/25…
Postexertional malaise, or the worsening of health after mental or physical activity
• Fatigue
• Brain fog
• Dizziness Gastrointestinal symptoms
• Heart palpitations
• Changes in sexual desire or capacity
• Loss of or change in smell or taste
• Thirst
• Chronic cough
• Chest pain
• Abnormal movements

“although most people in the study who met the definition of #MECFS also met the definition of #LongCovid the converse wasn’t necessarily true.  Among people who met the definition of LC only about 10% to 20% would have also met the definition
Read 8 tweets
Long Covid Kids - longcovidkids@mas.to Profile picture
Aug 6, 2022
🧵 Our guidebook provides information, support and signposting.

📕 Chapters for young people, parents & caregivers & schools.

🔬Evidence based information & case studies

🤗 Nobody has to feel alone.

To learn more ⬇️

longcovidkids.org/support-guide

#LongCovid #LongCovidKids ImageImageImageImage
Long Covid Kids started as a grassroots organisation in September 2020.

In October 2021 we became a registered charity.

Our patron is beloved children’s author @MichaelRosenYes

#LongCovidKids #LongCovid #MichaelRosen #Charity #Support #Children ImageImageImageImage
With the support of experts, scientists, paediatricians, doctors, nurses, researchers, advocates, occupational therapists, physiotherapists teachers & educational psychologists our team of volunteers created a guidebook to raise awareness & educate.

#LongCovidKids #LongCovid ImageImageImageImage
Read 26 tweets
Long Covid Kids - longcovidkids@mas.to Profile picture
Jul 6, 2022
Minimising the experience of children living with #LongCovid has an ongoing impact on those suffering.

"This is Daniel. He is 16 - LC for 16 months.
Due to ongoing stomach pains, he is scared of eating & now has an eating disorder too, skin & bone"

#LongCovidKids #ChildHealth
"This is Poppi. She is 7 - #PIMS March 21 after #Covid19, she was so poorly in @AlderHey for 2 weeks. Poorly ever since.
Reinfected in Feb 2022 at school - now worse than ever. Drs haven't a clue what's wrong with her I, want my little girl back"
#LongCovidKids
Meet Emily Saville
"battling Long Covid since September 2021. Fit and well with no underlying health issues before. Now uses a wheelchair when going out of the house due to chronic fatigue and is relearning to walk again"
#LongCovidKids @lou_sav
Read 8 tweets
Long Covid Kids - longcovidkids@mas.to Profile picture
Jun 1, 2022
💈On the day the @ons report 26,000 CYP have symptoms for at least a year (⬆️ 3000 from last mth)
we received an email from @10DowningStreet in response to our visit on April 1st
It confirms the concerns of the children⬇️

"We feel ignored"

@FYI_SkyTV

April 1st - 12 #children living with #LongCovid traveled
to #london to deliver their own letters documenting their #pain, loss of #sight, #mobility, organ damage, diagnosis of #PANS #MECFS #FND #POTS #MCAS and the detrimental impact it has had on their lives.

#LongCovidKids
100+ page guide providing evidence-based information on #LongCovid in CYP from industry experts, research, and statistics from @GOVUK @ONS.
Did anyone read it?
We were assured @BorisJohnson would receive it.

#LongCovidKids
Read 13 tweets
Long Covid Kids - longcovidkids@mas.to Profile picture
May 5, 2022
1) Are you taking parental leave or having a break from work to care for your children with #longcovid?

A parent asks -

“I am wondering how parents are managing their work life whilst their little ones are so poorly. So far I have juggled things and taken annual leave but
2) it’s difficult to see how this is sustainable with no end in sight.

@longcovidwork @DHSCgovuk @CitizensAdvice
are you able to help ?

#LongCovidKids
Parent

"If my husband wasn't still working at home, I'd have to give up work. Daughter 17 but needs reminded to eat, drink etc"

#LongCovidKids @longcovidwork
Read 17 tweets
Long Covid Kids - longcovidkids@mas.to Profile picture
May 4, 2022
Have you seen the #LongCovidKids Padlets?
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating
resources & info to help us improve recognition, support & recovery
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
• Young people bit.ly/3IEJOh0

@RCPCHtweets @childcomwales @ChildrensComm @ChildrensCommNZ @SeneddChildren @AppgCoronavirus @fhcappg @NEUnion @NVTweeting @NHSuk @UKHSA @PublicHealthW @childcomwales
#LongCovidKids #ShineALightOnLongCovid
Read 7 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

Send Email!

:(