Lelena Profile picture
#AccidentalAdvocate 4 people in Pain-End #SuicideDue2Pain! Zebra-Ehlers Danlos. Human. Artist. Caregiver. Opinionated. Hopeful. Please stop #SavingUs2Death!
Jean Profile picture 1 added to My Authors
18 Mar
Dr. Kertesz addresses the doctors who believe no one should be started on #opioids in this tweet. I'd like to chime in as well.

I believe it should be a carefully thought out decision between doctor & patient. I'm a patient that benefits from #LongTermOpioidTherapy. A few notes:
I finally got a diagnosis that isn't half-assed. I have #EhlersDanlosSyndrome, among other things. It's extremely painful. It started to set in during college. I should have know that wearing a backpack shouldn't have been excruciating. It was. I didn't go on an #opioid regimen
for years, however.

I finally tried #opioids long-term around the age of 28. I was working as a freelance photographer. Hauling equipment around became so painful, I hit a WALL around the age of 30. I had to slow down, whether I liked it or not. I got married, & after that, my
Read 10 tweets
30 Jan
I have a grievance regarding my mom's care during her bout w/#sepsis. #dementia

At the end of October 2019, my husband & I awoke to find mom's breathing labored, & her mumbling to let her sleep. We let her rest. A fever spiked within the hour, & suddenly she became deathly ill.
She was twitching, sweating profusely, in full rigors, & unable to sit up/speak well. She looked TERRIFIED. I thought she had a stroke. Turns out, it was a high fever from an infected gallbladder. She landed in the #ICU. ALL her vitals were jumping around. It was horrible.
She landed in the ER & eventually the ICU. Turns out she had #sepsis from the infected gall bladder. The ICU's 1st step? Changing her meds around INSTANTLY. Specifically they rescinded ALL #opioids abruptly. After over a decade on them, she was thrown into acute withdrawal in ICU
Read 16 tweets
8 Nov 19
Hey fam? Those of you willing to submit your painful photo & a good day photo, PLEASE DO SO. We know it's a big big ask. You can DM them to @PithyPins (BEST OPTION) or you can send them to me if you can't DM her...or post them in the thread. THANK YOU everyone!πŸ’œπŸ’œ YOU'RE GREAT!
If you have pics to share, I would simply ping/tag @PithyPins & ask her to follow you so you can send them directly to her via DM. Our faces WILL make a difference folks. We promise you!πŸ₯°πŸ₯°πŸ˜»πŸ˜»

You can believe that. πŸ™πŸ™πŸ’—πŸ’—

Hope everyone is having a low pain Friday. πŸ’šπŸ’šπŸ’š
Read 2 tweets
3 Oct 19
My name is Dawn Anderson, & today I should be celebrating my 54th brithday.

I was a grandmother, mother, aunt, & dear friend.

I was also a #ChronicPain patient.

I used #opioid medication to maintain a decent #QualityOfLife.

I was forcibly tapered from my pain meds in 2016.
I found other patients who were suffering because of the #WarOnDrugs, & I cried out for help.

I shared my story with journalists.

I wrote my PCP a letter.

I attended a #DPPRally with my daughter @AmandaLatronica. I'm so proud of her. She's a #warrior!

painnewsnetwork.org/stories/2019/3…
In March 2019, my kidneys failed me, & I ended up at the hospital.

I was strapped to a hospital bed & injected with thorazine because I was confused.

The pain was horrific & STILL-no one listened. #PainStigma

I decided to let go on March 11, 2019.

I refused dialysis, & died.
Read 6 tweets
20 Sep 19
It's time to do another one of my dumb threads, so here goes:

I'm SO GLAD life is so simplistic for you. Guess where I was this morning? At the #PainClinic with my elderly mother who suffers from #dementia. She had an early AM appointment, which is unusual for her. Mom is
more confused earlier in the day. She often has trouble getting to sleep because of pain & the dementia. We had to plan carefully, bathing her, & laying out clothing yesterday. Despite this, mom changed back into her nightgown 3 times, then finally put the gown on OVER her
street clothes. ANYWAY, we arrive ON TIME & the shenanigans begin. The kind receptionist greets us warmly, & I explain that mom is especially confused this AM. The mean receptionist (on a massive power trip) attempts to prevent me from accompanying mom to the appointment. She
Read 15 tweets
21 Jan 19
Hi! To make a thread...

Simply send a tweet to start the process.

Then, find your tweet in your profile and REPLY TO YOUR OWN TWEET to add the second tweet.
This is me replying to my own tweet. Now I have a thread going.

This way, my tweets are now linked. This proves really helpful for me because I have a tendency to blather on, and sometimes I have a LOT TO SAY.

To continue my thread, I will reply to THIS tweet next!
And it will give you the option at the bottom to add another tweet..which will automatically continue my thread.
Twitter will also now declare this a thread at the top.

I find this extremely helpful!
Read 5 tweets
3 Nov 18
Read 5 tweets
2 Nov 18
My name is Lelena.

I am a #ChronicPain patient.

I am required to pee in a cup monthly to show #compliance to my #LowDose #opioid regimen.

I am painted as despicable, helpless, & #unclean by the powers that be.

I am a modern-day #Leper.

#EndStigma #PainLeper
Newsflash, America:

I'm not JUST a #ChronicPain patient.

I am not helpless.

I am not #unclean.

I am not #despicable.

I don't just use #pills to overcome my #SeverePain.

I refuse all #stigma, misconceptions, assumptions, and #labels.

I am an #Overcomer.
I will be criticized for calling myself a #ChronicPain patient.

People will say: she wallows in illness. She enjoys it! She IDENTIFIES with her pain.

Wrong. It is part of my reality. I must face it & battle it daily.

And I do. Despite all the negativity I face from others.
Read 5 tweets
9 Sep 18
@Shasta77777 Hi Shasta! 🐹🐹🐹
@Shasta77777 I thought I would send you animals. 🐹🐹🐹🐢🐢🐢
@Shasta77777 A teeny tiny thread of animals.

Lol 🐸🐸🐸🐺🐺🐺

🐷🐷🐷🐰🐰🐰

πŸ£πŸ£πŸ£πŸ’πŸ’πŸ’
Read 4 tweets
9 Sep 18
@StanfordPain @BethDarnall @nature The following is an VERY important thread by @Shasta77777 who is pointing out valid fears and concerns about taking #biopsychosocial medicine too far and using it as a blunt weapon to remove analgesia from patients with #chronic #degenerative disease. PLEASE...hear us. Thread by Shasta Rayne
Read 6 tweets