Discover and read the best of Twitter Threads about #OrganDonation

Most recents (4)

Its #OrganDonationWeek this week and we're promoting through virtual platforms a run/ride/hike/swim/whatever in the shape of an organ - here's mine. I also decided the pass the time on the bike with a VLOG, talking about deemed consent in England 👇[Thread]
What this is all about #OrganDonationWeek
#organdonation is much more rare than people think #OrganDonationWeek
Read 14 tweets
Today is #WorldKidneyDay, so here is a thread about living on #dialysis & #OrganDonation. My name is Belinda Otas. I’m #African. I’m #Nigerian. I'm #Benin. I’m #British & I’m #Black. Beyond the nationalities or passports with my name, I also believe in our shared humanity.
I was 16, when I was diagnosed with End Stage Renal Failure (ESRF.) I had no idea what was happening to me because at the time, it made no sense. However, I remember the pain of that period like noonday. I lived on dialysis until i was 22. #dialysis #OrganDonation #renalhealth
It took over my teenage years. I don’t remember having much of a life as a teenager because dialysis was 3x a week & every session was 4hrs. Add the time it takes to recover from being exhausted by the process, my day was pretty much over. #dialysis #OrganDonation #renalhealth
Read 70 tweets
"#OrganDonation is an altruistic act that should be celebrated..." (p6)

So why not do that, and devote more resources to making donation easier - an approach that has delivered measurable results - instead of a regressive move to #OrganHarvesting?…
Describing a *significantly narrowing* shortfall (cf. graph, also p6) in available organs is not a justification for a change to #OrganHarvesting; nor are emotive appeals. This reads like #PolicyBasedEvidenceMaking.
"We want... to change the culture around organ donation in this country in the longer term." (p7)

Stopping it being a gift, freely given, and instead the State 'deeming' you to have given permission will certainly change that! Presumption ain't 'donation' and will erode trust.
Read 20 tweets
Intensive Care provides organ support while a reversible process is treated. There is no benefit of intensive care in the context of an irreversible pathology.

For Intensive Care to work, you need both a reversible disease and a patient with the reserve to respond to treatment.
Intensive Care is a burdomsome treatment. It is rare for patients to come out of it unscathed (either physically or psychologically). It is not “sleeping on a breathing machine” - at a cellular level, patients are running consecutive marathons.
Without Intensive Care, some people will die. When it’s clear that either the disease process is irreversible, or the patient doesn’t have the capacity to survive, then that’s when withdrawal of life prolonging therapies is considered.
Read 8 tweets

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