Discover and read the best of Twitter Threads about #RTT

Most recents (3)

ICYMI this thread on Natalie Harp from last night.

@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
Harp said she has essential thrombocytosis, which is not life-threatening. She also said she was prescribed an #FDA-approved immunotherapy off-label - a common practice & not #RightToTry.

#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.

Why?
Harp likes to describe her condition - essential thrombocytosis - as "bone cancer."

But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.

Period.
Read 3 tweets
The fact #GOPConvention can't find a real patient to talk about #RightToTry says a lot about that 2018 law.

Why is GOP relying on someone who has repeatedly told the same false/misleading story? The condition she claims she has is not life-threatening. The drug is #FDA-approved.
Reminder: Natalie Harp has repeatedly told a false #RightToTry story.
Condition she claims she has - essential thrombocytosis - isn't life-threatening & doesn't qualify for #RTT.
She also said used #FDA-approved immunotherapy off-label, a common practice, not RTT
#GOPConvention
Why is #GOPConvention using someone who tells a false/misleading story to promote #RightToTry?

Apparently, they don't have any real #RTT patients to share their experiences.
Read 15 tweets
The story Harp has been telling & will tell tonight is false.
For #GOPConvention to be selling it as Trump "allowed her to have access to the #RightToTry legislation" & that it saved her life is false/misleading.

Harp's condition & drug she said she used don't qualify for #RTT
Aside from Harp again repeating her false #RightToTry story, how will Republicans also sell Trump's #COVID19 response tonight at #GOPConvention as a positive when 177,000 Americans are dead from the virus & over 5.7 million in the U.S. have been infected?
gisanddata.maps.arcgis.com/apps/opsdashbo…
.@AP-NORC poll: Trump faces pessimism as GOP convention opens apnews.com/a464966595a326… #GOPConvention
Read 4 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!