ICYMI this thread on Natalie Harp from last night.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
https://twitter.com/jeremycsnyder/status/1298000142910369792
Harp said she has essential thrombocytosis, which is not life-threatening. She also said she was prescribed an #FDA-approved immunotherapy off-label - a common practice & not #RightToTry.
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
Harp likes to describe her condition - essential thrombocytosis - as "bone cancer."
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
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