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Excellent piece by @riptari on the devil's in the #privacy-by-design detail of #Bluetooth #ContactTracing. This 'head-to-head' is between DP-PTT & PEPP-PT

Makes you wish some in the #health arena hadn't been so badly abusing the term '#anonymised'...

techcrunch.com/2020/04/06/eu-…
And a heads-up on some of the possible features (or rather, bugs) of @NHSX's #Contact tracing app.

Makes you wish some in the #policing arena hadn't been so ridiculously overstepping their powers...

wired.co.uk/article/nhs-co…
HINT: for (public) #health interventions to be #successful is dependent on factors other than just whether they #work. The two examples above illustrate (as we have been saying for quite some time now!) that one absolute fundamental is #trust.
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#privacy #Bluetooth #ContactTracing #health #anonymised #Contact #policing #successful #work #trust

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Phil Booth
@EinsteinsAttic
So, let's take a look at the latest #ContactTracing effort to emerge: pepp-pt.org - not an app, but 'components' to build apps & systems.

(There's so many tracers popping up now, it's getting like the rash of #COVID19 #SymptomSurveys that broke out last week...)

1/n
Nice to hear that @PeppPt "embrace a fully #privacy-preserving approach". So what exactly is it? (The devil, of course, is always in the detail...)

Ah! Here we are, "a brief description of our #privacy enforcing flow":
pepp-pt.org/content

/2
First, #AnonymousIdentifiers. Good. (And precisely what we recommended: medconfidential.org/wp-content/upl…)

This really is a no-brainer; anyone proposing to use persistent #deviceIDs at this point is plainly a clueless numpty. Or actively seeking to #surveille.

/3
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Phil Booth
@EinsteinsAttic
Oh, please. READ THE ACTUAL CONTRACTS! e.g. the deals @Google's signing with #NHS Trusts in the UK assign it exclusive #IPR. The power imbalance is bad enough as it is; turning people's lives into property ('ownership' vs rights) will only make things worse...
...and the few details of the @GoogleHealth/@Ascensionorg deal that are now public show the clear intent to do commercial R&D on tens of millions of patients' identifiable data *without consent* - see item 3: cloud.google.com/blog/topics/in…

What exactly would 'ownership' get people...
..that stronger (e.g. #GDPR-like) properly-enforced #DataProtection rights wouldn't? Exactly how much do you think @Google would pay you for your entire medical history, or your genome? Do you think you'd get to negotiate? And once they paid, wouldn't they also 'own' you(r data)?
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Phil Booth
@EinsteinsAttic
"#OrganDonation is an altruistic act that should be celebrated..." (p6)

So why not do that, and devote more resources to making donation easier - an approach that has delivered measurable results - instead of a regressive move to #OrganHarvesting?
gov.uk/government/con…
Describing a *significantly narrowing* shortfall (cf. graph, also p6) in available organs is not a justification for a change to #OrganHarvesting; nor are emotive appeals. This reads like #PolicyBasedEvidenceMaking.
"We want... to change the culture around organ donation in this country in the longer term." (p7)

Stopping it being a gift, freely given, and instead the State 'deeming' you to have given permission will certainly change that! Presumption ain't 'donation' and will erode trust.
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