I received a call tonight from a mother whose adult daughter was brought via ambulance to the ER. She was in the middle of #pancreas flare. She is 19 & is living with bf. He is the one that made the call. She was in the bath at time 1/
and due to pain and nausea could not get out. Paramedics took her from tub. She had no clothes on (totally understand this was emergency). During transport to ER ketamine and fentanyl were administered. Once at ER she was NOT taken back to bay, instead she was 2/
placed in the lobby on chair. She was left alone in lobby. Her bf was there but no one was monitoring vitals or reactions of medication. The young woman was disoriented. Her boyfriend unsure what to do. While they are ‘adults’ they are young 18/19. The young women 3/
threw up. The only action taken by staff was to place a towel over the throw up 🤢. Finally the bf called this young women’s parents. The father made his way to ER. I also want to note that this young women did NOT have clothes on. She had a blanket given by paramedics 4/
Her father, very upset, tried to discharge. At this time she was still not in back but had been ‘checked in’ by a nurse. The nurse refused to discharge her or have doctor discharge so father left with daughter AMA. Mother followed up with hospital/ER today filing a 5/
complaint. She received a call back but was told they could not proceed until her daughter gave permission. Understandable she is of age. The mother did comment how it was interesting that they wanted to follow protocol when related to HIPAA but not in regards to actual tx 6/
Yes snide remark but I totally understand. When she called me her concern was trust. She indicated that she felt hospitals were more interested in covering their butts than truly addressing issues. Sadly this has been my experience also. I find little value in 7/
#patientrepresentatives. The mother indicated to me she just wanted the matter addressed and that this would never occur again. She did not want to sue but sadly there seems to be a cloak of secrecy that patients often experiences with events such as this. The ‘complaint’ is 8/
made and addressed but often we as #patients and #caregivers don’t know how it was resolved or the safeguards in place so a situation such as this does not occur again. I get mistakes are made, in this case I think it’s a ‘bit more’ than a mistake. It’s critical 9/
that families have that follow up. That they know that there has been steps taken, what those steps are so such a scenario will not occur but usually that is not the case. This is where trust erodes. How can we do this better? There has to be a way. This mother just 10/
wants this never to happen again. She wants to be assured that steps are taken (she also does not want insurance to be billed which is fair). This was pretty blatant error but there are mistakes that are just that. How can #patients, #caregivers & hospitals and clinics 11/
work together to improve patient safety ? 12/
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I just want to let out my frustrations w the #healthcare system & how assembly healthcare does NOT work. I think back about programs my kids went to. One being a renowned #painprogram. My focus was to assist in developing tools they could utilize in life to deal w #chronicpain 1
& their #illnesses. I wanted a #balance, I wanted a plan that was based on their individual needs. Their #pediatrician at 1st stated she had concerns w #program & not an #option for them. The #clinic called #pediatrician back saying they’d modify it for my kids. There really 2
were not a lot of options. The program promised individual care so off we went.
Nope started #titrating all #painmeds to align w time of #program vs Ind need. Then denied my daughter right to go to walk in #clinic when she was having issues saying this is what youth did 3
Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
her of ‘stashing’ #Insulin in room. All visitors searched. No items in room unless searched - camera in room 24/7 YET she is accused of injecting #Insulin. My daughter again attempted to educate on post #TPAIT. After additional days, the #Diabetic#Counselor came back & 2
#apologized acknowledging how hard it was to control her #diabetes. It’s hard control when she is at #Baseline but if she is sick nightmare. That #apology meant the world 🌎 to my daughter. She continued to work w this #counselor throughout stay & after. YET #PatientRelations 3
#Pain is nuanced
The difficulty with articles such as below example, is nuances not recognized.
For example, I could identify as someone with #chronicPain I have a few conditions that are accompanied by #pain.
My #pain is NOT unrelenting, it’s there ‘hovering’ in the 1
background. I do #yoga 🧘♂️ & #meditation & for ME, for the #pain I experience, it provides benefit.
However, take my kids; NASH, kidney disease, gastroperisis, T3, scar tissue neuropathy etc. #mindfullness#meditation is not going even touch it. Not in anyway
2 example of 2
#pain experiences.
It’s understandable that many in nation that are not in #medical profession struggle w the #nuances
What I struggle w & what I believe #harms those w #ChronicPain is the generalization of #pain by #medicalprofessionals & lack of individualizing care based 3
attract, yet no actions follow.
How often have you been asked your desired outcome of #Healthcare?
How often are you asked about barriers to healthcare or recommendations?
How often are plans focused only on med issue?
How often do you feel your #voice is truly #valued in 2
your own #careplanning?
How often do you feel there is collaboration between all doctors OR do you feel at times doc have competing or conflicting recommendations?