Thread by @purplemamabear

I want to again express my concern to my senators @SenJohnHoeven and @kevincramer about the lack of transparency by the @CDCDirector @CDCInjury in the revising of the #OpioidGuidelines. Great harm has been done to those w #chronicpain in our state. @SanfordHealth 1/

https://twitter.com/tal7291/status/1415751396796768256

cut all #patients off of #opioids at once due to what administration stated was because of ‘national standard’ (#CDC Guidelines). So many harmed. How are actions like this ok? Three weeks prior to my son being removed from #opioid #pain medications we had met with his 2/

#pain physician & had a long talk about #opioid #pain #medications being best option for him. Removing individuals w #chronicpain from #opioid pain medication was not a decision based on individual care of #patients BUT @SanfordHealth taking care of own needs. Multiple 3/

expressed concerns over the #CDC guidelines. One concern, lack of transparency, yet here we are again with NO transparency. As one ☝🏼 of the #stakeholders interviewed re the impacts of #CDC guidelines I was told if had any additional questions or concerns to call 4/

I have. No. One. Returns. Correspondence #IHavetheReciepts. There has been life lost in ND due to #opioids being stopped & individual not being able to withstand the pain. #WSI has now been able to enact legislation which caps #patients at 90MME & will titrate those 5/

on higher doses down. Research has demonstrated that this can result in great harm & even death. There are two sides of the coin, it’s critical that both aspects are acknowledged. That is not what has happened. Very disappointed in @CDCInjury @CDCDirector. I’d hoped 6/

that a more ethical and transparent process had taken place. I fear for my kids & their future. They have #chronicpain and multiple health issues. I want their care to be based on their needs and not the health entities best interest. I want less interference in 7/

the exam room. It’s no longer the #physicians determining plan of care with patient it’s the administrators, #PBMs, special interest groups, #insurance companies #CDC & other governmental entities that know nothing of individualized #patients. I ask my senators /8

@SenJohnHoeven & @kevincramer to please assist those of us in #NorthDakota that have #chronicpain or love those w #chronicpain to look at the harms being done. #SUD is horrible & there should be more services & supports but not at the detriment of those who have intractable 9/

pain. There needs to be a balance, and right now there is none only penalization & shame if you have #chronicpain. I am angered by the #CDC their lack of transparency & lack of acknowledgment of harms done. Tomorrow they will be meeting. Seeing the info sent out 10/

I am disheartened. I fear more harm will occur both nationally and in #NorthDakota. And one last note 📝 I feel pretty dang used by CDC. I submitted my name to be part of #stakeholder group. Was selected & actually in the moment felt heard but no follow up since 11/

no returned email or calls. I feel used and feel I was a #token - interviewed but not listened to. 12/