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Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
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Jun 23 • 6 tweets • 8 min read
This is the kind of paternalistic, unscientific nonsense that #MECFS #Lyme #Fibromyalgia #HSD #POTS #MCAS #Pandas #Pans #EDS #VaccineInjured #FQtoxicity patients have endured for decades. Now it’s the turn of #LongCovid
I’m going to make an offer to our colleague. Hopefully @DrKGregorovic can convey this message as I am blocked. Happy to have a Zoom coffee with both of you. We can examine
-the paper @awgaffney has tweeted & discuss the flaws
-the evidence for biomedical causation in #MECFS & LC
-the evidence for the ‘false sickness beliefs’
-the quality of the studies advocating exercise & talking therapies
-studies looking at the outcome of exercise in #MECFS & #LongCovid populations
-cardiovascular & other outcomes in #LongCovid

I think that is fair? Let me know
If you prefer, one/some of the following can speak to you instead. (Some but not all have postviral disease) @BinitaKane @fearnley_k @shaun_qureshi @ClareRayner6 @Doctor_IMF @bendymarsh @IanJBD @crannaghcrud @Sunny_Rae1 @doctorsaz @avriljw @DrCillaRosen @Geraint6Jones @LinnJarte
Apologies for misspelling your handle @DrKGregorevic. Executive function & short term memory issues due to #LongCovid. (I now score below the population average on formal cognitive testing)
Or instead our colleague who has blocked me could read this (warning: there is some actual medicine & proper science in here. Hopefully she will cope)

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More from @doctorasadkhan

Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
Jun 24
@drclairetaylor @DrRichardPile @DrGoblin3 @dr_irfan_malik With pleasure. Dear Drs- don't even attempt to diagnose FND without an extensive workup. Personally I would never diagnose it because 'tests are normal' does not automatically mean 'functional'. We may not have done the right tests, and we can't test for everything organic.
@drclairetaylor @DrRichardPile @DrGoblin3 @dr_irfan_malik Here are some cases where an incorrect diagnosis of FND was made- resulting in distress for all, and in some cases physical deterioration. Ultimately they achieved a correct diagnosis- too late for some
@drclairetaylor @DrRichardPile @DrGoblin3 @dr_irfan_malik POTS, Hashimoto's thyroiditis, MECFS, Long Covid, benzodiazepine withdrawal, relapsing polychondritis, small fibre neuropathy, aortic root dilatation, Lyme disease, stroke, serotonin syndrome, EDS, craniocervical instability, myasthenia gravis, Parkinson's disease,
Read 4 tweets
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
May 23
UK patient travels to Germany, starts treatment for #LongCovid. Attends local LC clinic- they note pt is improving on the treatment but refuse to prescribe it because ‘we don’t agree’. No reason given. Arrogance, hubris & medical orthodoxy at its best #TreatLongCovid #TeamClots
#MedTwitter #MedEd #TeamGP @AppgCoronavirus
@uclh this is you. Not good enough.
Sharing with the express permission of the patient.
It’s 2022 and we are 2.6 years into this nightmare.
Read 4 tweets
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
May 17
🧵 on repeat infections, negative lateral flow & #PCR tests, and the use of #COVID19 antibody tests. An n=1 experience #OmicronVariant #LongCovid #MedTwitter #TeamGP #psychtwitter #LongCovidKids #COVIDisAirborne #CovidIsNotOver 1/n
I had acute #COViD19 in Nov 2020, PCR +ve. Developed #LongCovid a month after. Had one dose #Pfizer Feb ‘21 which gave me new symptoms. Out of interest I had my anti-spike antibodies done May ‘21- they were above the upper limit the assay could measure 2/n
With the passage of time my antibodies dwindled. I had them rechecked in Dec 2021- both nucleocapsid & spike antibodies were below the protective limit. Therefore I had no protective antibodies. 3/n
Read 18 tweets
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
May 17
#chronicillness Twitter to doctor advocates
-you’re only speaking out because you’re sick yourself
-now you know what it’s like (implication- all of us neglected & psychologised patients before. NOT true- some of us just did our best within a system stacked against us)
1/n
-you need to mention ‘x’ disease as well. (We’re learning as fast as we can. Remember we are sick too. Some of us are bed-bound lying in darkened rooms. You know how much energy it takes to speak up)
2/n
-don’t dabble in areas you know nothing about. (In my case #Palestine. Being a chronic illness advocate doesn’t make me a one-trick pony. I’ve visited the West Bank & witnessed firsthand the horrors of #IsraeliApartheid. So I will speak up- I’m not here for anyone’s comfort
3/n
Read 5 tweets
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
May 16
🧵 If the use of airborne #PPE & improving air quality in healthcare settings are to be ‘optional’ & ‘a matter of personal choice’, then we should give strong consideration to applying the same rule to the following #MedTwitter #MedEd #TeamGP 1/n
1. Handwashing before, between & after patients (& audits of it)
2. Plastic gloves & aprons
3. ‘Bare below the elbows’
4. Jewellery
5. Hair above the collar
6. Mandatory training
2/n
If you are recoiling in horror because
1. ‘Airborne transmission of COVID is controversial’
2. ‘The above are established evidence-based practices’
3. ‘COVID is mild, we can’t avoid it, we have to learn to live with it, we’re all vaccinated now anyway’,
then;
3/n
Read 7 tweets
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
May 16
Pleased to share ⁦@FarazFallahi⁩’s #MECFS video this time with English captions featuring some of my favourite German & Austrian names #LongCovid #MyalgicEncephalomyelitis #pwME #MedTwitter #MedEd #TeamGP #psychtwitter. A sobering watch.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe neuroimmunological disease that mainly occurs after infections (including COVID-19).

Please watch, like and share the video - help us to finally get attention!
Unfortunately, there are no therapies, hardly any research funds and no significant care structure. Due to COVID19 the number of sick people is increasing drastically.

Those affected demand:
Read 6 tweets

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