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Oct 25 • 4 tweets • 4 min read
HT @LisaMWatki for prompting this [Thread] 👇 on the #OurFutureHealth letter/leaflet some of you may be receiving, which appears to omit a few important details...
Those of you with long memories may remember @MattHancock's "5 Million Genomes" announcement back in 2018:

gov.uk/government/new…

So now you know who (one of) the "other partners" is... This will help support Matt Hancock’s wider ambition to se
...and of course it will come as no surprise that the prime mover of @ukfuturehealth (on the radio just last week) is none other than the author of the Government's #LifeSciences #IndustrialStrategy*:

…te.company-information.service.gov.uk/company/122124… [left pic]

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*gov.uk/government/pub… [right pic]
N.B. If you've not got time for the full [Thread], then these few tweets on the 'fine print' of what people are being asked to sign up to might be worth reading:

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Phil Booth Profile picture
Oct 25
@LisaMWatki That @ukfuturehealth somewhat 'buries the lede' on its intention to construct a giant £212 million 👇 #DNA / #genomic database in its patient literature is somewhat concerning...

find-tender.service.gov.uk/Notice/019818-… II.1.4) Short description The scope of the procurement is r
@LisaMWatki @ukfuturehealth ...not to mention the £62.5 million+ they'll be spending taking people's #bloods, etc.:

find-tender.service.gov.uk/Notice/005068-… A service provider(s) will be responsible for elements of iniv. Responsible for legal and compliance issues related to p
@LisaMWatki @ukfuturehealth Of course, #OurFutureHealth had to get its money from somewhere.

I'll give you one guess as to where...

ourfuturehealth.org.uk/partners/#htoc… Our Future Health has announced £150 million funding from l
Read 10 tweets
Phil Booth Profile picture
Oct 24
Those of you who know my work on #privacy, #identity, and #HumanRights in #data these past 18 years - mostly through @NO2ID & @medConfidential, and in other areas besides - won't be surprised at my involvement in @WEDF_foundation.

This [Thread] is an invitation to join us...
...and help define what I believe is one of the most crucial discussions of our time; on the #personal, #civil, #political and #planetary consequences of the #world(s) we are building - and the #values we want to underpin them. Image
I spoke at last year's @WEDF_forum about '#Engineering for #Ethics', just a couple of months before the #GPDPR #GPdataGrab was announced in May.

My talk was an attempt to reflect on and draw lessons from my years of campaigning and work around #data...

Engineering for Ethics Big...
Read 10 tweets
Phil Booth Profile picture
Oct 23
"Johnson says he will not run in Tory leadership race"

bbc.co.uk/news/live/uk-p… Johnson says he will not ru...
#Timing

web.archive.org/web/2022102320… Get ready for Boris 2.0, th...
#Statement (part 1)

"You can’t govern effectively unless you have a united party in Parliament" 🤔 Here is the text of Boris J...
Read 7 tweets
Phil Booth Profile picture
Aug 18
Prompted by @LynnFOI, a [Thread] on the #NHSTrusts that cut #commercial deals to #copy their patients' data* to (formerly) Lord Drayson's now-delisted "AI" company, @SensyneHealth

First up, it's...

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*More info on the nature of the data they sold here:

Lord Drayson and his wife have a 22.8 per cent stake in the
1) @OUHospitals (Oxford University Hospitals) took £5 million in @SensyneHealth shares for its patients' data in July 2017:

sensynehealth.com/newsroom/drays…

It LOST £9.2 million on the value of those shares, HAS copied patients' data, and HAS NOT terminated its contract with #Sensyne...
2) @nhsswft (South Warwickshire Foundation Trust) received £5 million in @SensyneHealth shares, in a deal cut in 2018:

sensynehealth.com/newsroom/sensy…

The Trust HAS NOT said how much value it lost; it HAS copied #identifiable* patient data; and it HAS NOT terminated its contract...

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Read 18 tweets
Phil Booth Profile picture
Aug 17
Bad enough that @SensyneHealth has cost NHS Trusts nearly £15 million - Lord Drayson's claim to be 'giving something back to the NHS' lies in tatters - but what people should *really* be asking about is the MILLIONS of #patients' data the company claims to be processing...
...because, as our letter to the Trusts in April pointed out, at least some of their patients' data that they handed over is #linkable #pseudonymised data - i.e. it is #identifiable, thus #PersonalData in UK law:

medconfidential.org/wp-content/upl… Pseudonymised Data On the matter of the data itself, whethe
So while @SensyneHealth's #shareholders might want to check the company's claims about the #amount of NHS patients' data it actually has, those Trusts that HAVE passed #identifiable data to #Sensyne should terminate their agreements asap - and demand certified #deletion, too...
Read 7 tweets
Phil Booth Profile picture
Aug 17
Hmm. #DisasterSpam or essential #PublicService? Time will tell.

Can't help but wonder, though, if this announcement hasn't buried the lede... Changes to the Civil Contingencies Secretariat - the Cabinet
..."collecting and analysing live data" on a #permanent basis, in a '#CivilContingencies' context, sounds like something the public should be told more about!

Not unrelatedly, and while there's been a lot of focus on @PalantirTech's #NHS contracts, have you tried searching...
...#ContractsFinder for the work Government has awarded to #Palantir recently?

@CabinetOffice (GDS) published one measly £750k contract 👇 from 2015...

contractsfinder.service.gov.uk/Search/Results
Read 7 tweets

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