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ShoeboxofMemories @ShoeboxofM
, 12 tweets, 2 min read Read on Twitter
I had considered a blog but I'm going to go for a thread instead on the tension of awareness raising and offence following on from @TheLegacyOfLeo better post on the subject.thelegacyofleo.com/2017/11/25/pro…
Time and time again we come round to the same tension. Often we can’t talk about our experiences for fear of offending / upsetting someone whether that person has suffered loss or is pregnant or not.
We have to moderate the message and any offering that is intended to help people when they feel that they want it should they need it.
If anything is true about baby loss is that there are few absolutes. A strong conviction can flip on a dime in the face of the rawness of loss.
I understand that not everyone is ready to talk about baby loss and that’s fine.
We're not deliberately trying to upset people for fun. We are trying to prevent it from happening to others and improve support for people where that hasn't been possible.
It may be those that have experienced this loss aren’t ready to talk about it now and seeing coverage is too much.
That’s fine, don’t read the coverage, turn away from the posters, delete the email. If and when they are ready to talk we want to be there for them and those that do.
I am not doing this because I want to. I’m doing it because I have to.
When there is information emerging that can save lives by changing behviour and treatment it must not be hidden away.
There is too much riding on this. Not just the lives of babies but the lives of those left behind for the babies that didn't get to live.
First comes the rage, then the sorrow. I was sick but now I am well. There is work to be done.
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