One thing I have seen weaponized against those who are marginalized and have experienced harm at those in positions of ‘leadership’ is the anger expressed. So very easy for #physicians, #researchers, #therapists, #counselors to point to the anger & exclaim ‘see how unbalanced 1/
this person is?’, ‘see how ill they are?’. When people are in positions where they have been harmed, where they have watched loved ones be harmed & it continues re of their voices, of their pleas for help, when those that are ‘suppose’ to help ignore the harms & gaslight 2/
#anger, to me, is a normal response. Yet many professionals use this instead to illustrate how ‘unstable’ a person or community is. NEVER do I condone threats or physical harm to anyone yet I have seen the #gaslighting of a group of or individual that has been viscerally 3
harmed continue to be marginalized & harm when screaming for help. The scenario I always use is of an individual yelling for help in the middle of turbulent water on a life raft. Their pleas for help are met by harpoons being thrown at the life boat, no true help being given 4/
IF you are in any position of authority, IF you are involved in any position involving a group of people, YOU must be opened to feedback, you must be willing to self reflect & look at how system issues impact people. IF you cannot do this, you have no business in those 5/
positions. We are ALL humans, mistakes will be made BUT those who dismiss voices, who are unwilling to reflect & examine systematic harms need to remove themselves from their work. I KNOW there are many in these positions that do have the ability to self reflect, to examine 6
& acknowledge system harms and DO raise their #voices & for that I am thankful. The utilization of this strategy to dismiss inds or groups is common I believe. I have seen it play out on Twitter. Again, I do NOT believe in #threats or harm of anyone but this needs to stop 🛑 7/
The colleagues of those who do this must speak out about the harms it causes and the ethical issues this cause. I’ve been in field for years, I’ve made mistakes, but never will I dismiss peoples concerns, their #voices. I will continue to try to be cognizant of systematic 8/
issues that have potential to cause harm or is causing harm. I have always raised my voice regardless of the personal risks to myself. Realize, harm can originate from ‘help’ 9/
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Walking through the healthcare system the last 26 years with my family I’ve experienced a lot of gaslighting. I’ve watched my family experience a lot of gaslighting.
It infuriates me.
My friend’s life is at risk right now due to gaslighting.
She is terrified of physicians 1
She didn’t care insurance for years. About 4 years ago I finally encouraged her to get insurance and do regular check ups, mammograms and paps.
She has always struggled with her menstrual cycle. Extremely heavy bleeding and clots.
It impacts her life. She can go through a 2
pad an hour. If she sits down and stands up, clots. She also struggles with fatigue. I’ve expressed my concern multiple times and asked if she has spoken to her physician about this.
She indicated she had & in fact had a friend go with because her NP kept telling her it was 3
Care for those in #pain often infuriates me because they get very little, none and often labeled. There may be pockets where actual quality care occurs but more often than not I hear stories of #trauma. #HereditaryPancreatitis is a very painful disease. I have watched all my 1
family members struggle with this. It’s gut wrenching. It’s hard for adults but watching a child in such pain is indescribable 💔. I regularly talk to parents or am contacted by parents who are struggling to access pain care for their child with pancreatitis. Just heard from 2
a parent whose child with #hereditarypancreatitis - who is a toddler - NOT joking - was labeled a #drugseeker. Those were the words the mom stated the physician used. A #drugseeker at three. We need access & better quality of care. This only layers trauma on child & family. 3
I just want to let out my frustrations w the #healthcare system & how assembly healthcare does NOT work. I think back about programs my kids went to. One being a renowned #painprogram. My focus was to assist in developing tools they could utilize in life to deal w #chronicpain 1
& their #illnesses. I wanted a #balance, I wanted a plan that was based on their individual needs. Their #pediatrician at 1st stated she had concerns w #program & not an #option for them. The #clinic called #pediatrician back saying they’d modify it for my kids. There really 2
were not a lot of options. The program promised individual care so off we went.
Nope started #titrating all #painmeds to align w time of #program vs Ind need. Then denied my daughter right to go to walk in #clinic when she was having issues saying this is what youth did 3
Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
her of ‘stashing’ #Insulin in room. All visitors searched. No items in room unless searched - camera in room 24/7 YET she is accused of injecting #Insulin. My daughter again attempted to educate on post #TPAIT. After additional days, the #Diabetic#Counselor came back & 2
#apologized acknowledging how hard it was to control her #diabetes. It’s hard control when she is at #Baseline but if she is sick nightmare. That #apology meant the world 🌎 to my daughter. She continued to work w this #counselor throughout stay & after. YET #PatientRelations 3