One thing I have seen weaponized against those who are marginalized and have experienced harm at those in positions of ‘leadership’ is the anger expressed. So very easy for #physicians, #researchers, #therapists, #counselors to point to the anger & exclaim ‘see how unbalanced 1/
this person is?’, ‘see how ill they are?’. When people are in positions where they have been harmed, where they have watched loved ones be harmed & it continues re of their voices, of their pleas for help, when those that are ‘suppose’ to help ignore the harms & gaslight 2/
#anger, to me, is a normal response. Yet many professionals use this instead to illustrate how ‘unstable’ a person or community is. NEVER do I condone threats or physical harm to anyone yet I have seen the #gaslighting of a group of or individual that has been viscerally 3
harmed continue to be marginalized & harm when screaming for help. The scenario I always use is of an individual yelling for help in the middle of turbulent water on a life raft. Their pleas for help are met by harpoons being thrown at the life boat, no true help being given 4/
IF you are in any position of authority, IF you are involved in any position involving a group of people, YOU must be opened to feedback, you must be willing to self reflect & look at how system issues impact people. IF you cannot do this, you have no business in those 5/
positions. We are ALL humans, mistakes will be made BUT those who dismiss voices, who are unwilling to reflect & examine systematic harms need to remove themselves from their work. I KNOW there are many in these positions that do have the ability to self reflect, to examine 6
& acknowledge system harms and DO raise their #voices & for that I am thankful. The utilization of this strategy to dismiss inds or groups is common I believe. I have seen it play out on Twitter. Again, I do NOT believe in #threats or harm of anyone but this needs to stop 🛑 7/
The colleagues of those who do this must speak out about the harms it causes and the ethical issues this cause. I’ve been in field for years, I’ve made mistakes, but never will I dismiss peoples concerns, their #voices. I will continue to try to be cognizant of systematic 8/
issues that have potential to cause harm or is causing harm. I have always raised my voice regardless of the personal risks to myself. Realize, harm can originate from ‘help’ 9/
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I just want to let out my frustrations w the #healthcare system & how assembly healthcare does NOT work. I think back about programs my kids went to. One being a renowned #painprogram. My focus was to assist in developing tools they could utilize in life to deal w #chronicpain 1
& their #illnesses. I wanted a #balance, I wanted a plan that was based on their individual needs. Their #pediatrician at 1st stated she had concerns w #program & not an #option for them. The #clinic called #pediatrician back saying they’d modify it for my kids. There really 2
were not a lot of options. The program promised individual care so off we went.
Nope started #titrating all #painmeds to align w time of #program vs Ind need. Then denied my daughter right to go to walk in #clinic when she was having issues saying this is what youth did 3
Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
her of ‘stashing’ #Insulin in room. All visitors searched. No items in room unless searched - camera in room 24/7 YET she is accused of injecting #Insulin. My daughter again attempted to educate on post #TPAIT. After additional days, the #Diabetic#Counselor came back & 2
#apologized acknowledging how hard it was to control her #diabetes. It’s hard control when she is at #Baseline but if she is sick nightmare. That #apology meant the world 🌎 to my daughter. She continued to work w this #counselor throughout stay & after. YET #PatientRelations 3
#Pain is nuanced
The difficulty with articles such as below example, is nuances not recognized.
For example, I could identify as someone with #chronicPain I have a few conditions that are accompanied by #pain.
My #pain is NOT unrelenting, it’s there ‘hovering’ in the 1
background. I do #yoga 🧘♂️ & #meditation & for ME, for the #pain I experience, it provides benefit.
However, take my kids; NASH, kidney disease, gastroperisis, T3, scar tissue neuropathy etc. #mindfullness#meditation is not going even touch it. Not in anyway
2 example of 2
#pain experiences.
It’s understandable that many in nation that are not in #medical profession struggle w the #nuances
What I struggle w & what I believe #harms those w #ChronicPain is the generalization of #pain by #medicalprofessionals & lack of individualizing care based 3
attract, yet no actions follow.
How often have you been asked your desired outcome of #Healthcare?
How often are you asked about barriers to healthcare or recommendations?
How often are plans focused only on med issue?
How often do you feel your #voice is truly #valued in 2
your own #careplanning?
How often do you feel there is collaboration between all doctors OR do you feel at times doc have competing or conflicting recommendations?