Jacob is 11 years old & has been unwell since March 21. 2 weeks after #covid19 infection he lost mobility in his legs & required mobility aids alongside physiotherapy twice a wk ever since.

Jacob wants more support for families living with #LongCovidKids

#ShineALightOnLongCovid
Emily is 9yrs old, she contracted Covid in Sep21. She was admitted to hospital for 13dys in Nov due to severity of her #LongCovidKids symptoms.She now uses a walker as has severe pain in her back & legs.

Emily would like more funding for LC services

#ShineALightOnLongCovid
Anna is 9yrs old & has had #LongCovidKids for 2yrs.
She uses a wheelchair as has severe pain in her legs when she tries to walk. She feels people are pretending Covid is gone.

Anna is asking the PM and Scottish government to help children like her.

#ShineALightOnLongCovid
Jasmine is 11 yrs old & has had #LongCovidKids since Jan21.
She misses dance, gymnastics & karate.Jasmine uses a wheelchair as she can't walk long distance.
Jasmine is asking for schools to be made safer for children so that Covid transmission is reduced
#ShineALightOnLongCovid
Liliana is 17yrs old. she's been living with #LongCovid since Sep 2020. Liliana's concerned about the way that children & parents are being treated by some doctors who don't understand LC/don't believe it effects children.
She asks that the PM listen!

#ShineALightOnLongCovid
Kitty,16yrs old, had Covid in March 2020. She improved after a few wks but after another month developed #LongCovid. For 5 mths she required help to eat & drink & to use the bathroom. LC has taken a huge toll on her mental health. She is calling on the PM to make tests free again
Eva (Aged 14) has #LongCovidKids following asymptomatic infection. She's concerned that some doctors don't understand & are telling children that they are just anxious or depressed. Eva is calling for more research to find the cause of LC and treatments.
#ShineALightOnLongCovid
@threadreaderapp unroll please

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Long Covid Kids HQ #LongCovidKids

Long Covid Kids HQ #LongCovidKids Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @LongCovidKids

Apr 1
These children have endured chronic and disabling symptoms.

Today they handed in their letters for @BorisJohnson to share their experience, hopes & ongoing infection risk fears.

#ShiningALightOnLongCovid #LongCovid #LongCovidKids
CEO Sammie McFarland handed in the new charities NEW support guide available as a free digital resource for families, kids, schools, healthcare professionals parents and caregivers.

#ShineALightOnLongCovid #LongCovid #LongCovidKids Image
Founder and CEO of LCK Sammie Mcfarland "Today is an incredible testimony to all the family's children and volunteers from our organisation who have worked tirelessly throughout the pandemic to raise awareness for children living with Long Covid who have been ignored. ImageImageImage
Read 6 tweets
Mar 13
Please join us in welcoming our NEW #LCKchampion Dr Anna Brooks

BCA PhD Immunologist and Senior Lecturer at the Faculty of Science, University of Auckland, New Zealand

Give her some #LCKfamily 💕@DrAnnaNZ

#LongCovidKids #NewZealand #NZ @jacindaardern
longcovidkids.org/champions/dr-a…
#LCKchampion @surf4children

Dr Danilo Buonsenso
Paediatrician Dept of Woman and Child Health and Public Health Rome

#LongCovidKids #LongCovid

longcovidkids.org/champions/dr-d…
Read 16 tweets
Feb 18
Group Post
"Spent all of Wed in hospital , to be told my child was fine - I've just had to pull her up the stairs to bed. She's too heavy to lift - couldn't even crawl up
I'm angry angry angry & feel so let down by the NHS & our Gov
Our children are like ghosts!!
#LongCovidKids
Group Post
"we got the results of S's extensive bloodwork. White blood cell count ⬇️and Iron &Vitamin D very low. Started him on Iron & Vitamin D,repeat bloods in 3 mths. It's not surprising he felt exhausted. They don't yet know why all this happened"
#LongCovidKids
Group Post
"I’m sorry that we are all here, but grateful to have a community. My 15 YO is at the beginning of her #LongCovid journey. The biggest problem is nausea … she has lost 3kg this wk. Any other advice?"
#LongCovidKids
Read 10 tweets
Feb 10
#FactCheck 1 of 3

#LongCovidKids is not a campaign group.

We are a charity that represents and supports children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.

🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🇨🇦🇬🇷🇮🇹🇦🇹
#FactCheck 2 of 3

Children's real risk of admission due to Covid increased during #Omicron

Jan 2022 3,797 child Covid admissions
Assume 53% primarily Covid = 2,012

Jan 2021 [Alpha] 1,243
80% primarily Covid = 994

Omicron TWICE as likely to hospitalise children due to Covid. Image
#FactCheck 3 of 3

Jan 2022
961,896 0-19 year olds tested positive for Covid

According to Molteni, @sunilbhop et al, prolonged illness of 56+ days can occur in 1.8% of positive cases amongst 5-17yos

= est. 17,314 0-19yo more #LongCovidKids

Source thelancet.com/journals/lanch…
Read 5 tweets
Jan 5
2/8 To assist with @GOVUK rollout of CO2 monitors to schools @CoSchoolsTools have created 4 videos, and other materials, that aim to explain how #CO2monitors can help #teachers manage their classroom #ventilation for comfortable healthier learning.
coschools.org.uk
3/8
@MichaelRosenYes please could you help us get these videos to schools?

#CommunityAction #LongCovidKids #BackToSchool
#Education #MaskUp #Kids #SpotCovid

Read 8 tweets
Dec 29, 2021
The Government have warned us that we will see large numbers over the coming weeks.

Parents have a situation to deal with. Knowledge is power.

Please know what to look for in your child. Trust your instincts. Seek help if you are concerned.

Symptom poster on following tweet
For all those who care for children, this is how covid can present in a child.

From the lived experience experts 🧡
Identifying #COVID19 plays a key role in reducing transmission.

This thread shows images of some symptoms reported by families with #Covid positive children.
Any symptoms requires a test.

Ask the @UKHSA to update their symptom list.

#LongCovidKids

threadreaderapp.com/thread/1475926…
Read 4 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(