Long Covid Kids - #LongCovidKids Profile picture
Dec 28, 2021 27 tweets 43 min read Read on X
NOT CHILBLAINS
8 yo Girl.
Off food for 2 days.
Bizarre itchy rash
Called 111 told Chilblains
Mum unconvinced
Got PCR
POSITIVE for #COVID

Please show #teachers #education #schools

#SpotCovid

Think #COVID19 #Omicron #LongCovidKids Image
Symptoms of #LongCovid can be found in the gallery.

#LongCovid

longcovidkids.org/long-covid-kid…
#SpotCovid

Sores at the sides of the mouth.
This child tested positive for #COVID19

Please RT to help others #SpotCovid

#education #schools #teachers
#Omicron #OmicronVarient #LongCovidKids Image
#SpotCovid
Bumpy rash.

This child-tested positive for #COVID19
Please RT to help others #SpotCovid

#education #schools #teachers
#Omicron #OmicronVarient #LongCovidKids Image
#SpotCovid
"1st sign for S was dizziness headache, v high temp but tested negative was ill for a week before testing positive. GP thought scarlet fever.
Daughter woke in night v high temp sore throat and coughing - tested positive for #COVID19
#LongCovidKids #Omicron Image
#SpotCovid

This child tested positive for #COVID19
See the rest of the thread to see the difficulty in identifying #COVID19 in #kids
We need to reduce the risk of transmission in schools with robust mitigation measures. #MaskUp
#teacher
#LongCovidKids Image
#SpotCovid

Chills & sweating to the point that he had to take a shower half an hour after falling asleep
Chronic stomach pain, joint pain, headaches.
Red eyes.

#Omicron #OmicronVarient #OmikronVariante #LongCovidKids Image
#SpotCovid

Swollen feet.
This child tested positive for #COVID19

RT to raise awareness of the symptoms to look out for.
#LongCovidKids
longcovidkids.org/what-is-long-c… Image
#SpotCovid

His first signs were temperature rash, sore throat vomiting and diarrhoea.
This child tested positive for #Covid

#LongCovidKids #Omicron #COVID19 #earlyyears #PrimarySchool #school #education Image
#SpotCovid
This red bracelet rash is
"one of many rashes" one Dad's son has.
This child-tested positive for #COVID19
#LongCovidKids #Omicron #COVID19 #earlyyears #PrimarySchool #school #education Image
#SpotCovid
"Covid tongue started right away along with blisters and an extremely swollen and sore throat that lasted weeks"

Would you know who to #SpotCovid ?

@SafeEdForAll_UK @Sandyboots2020 @HoppySaul

#LongCovidKids #Omicron #COVID19 #earlyyears #school #education . Image
#SpotCovid

"His 1st symptom were a cough, runny nose, sneezing (a lot) headaches and fatigue and body ached and felt queasy"

#LongCovidKids #Omicron #COVID19 #PrimarySchool #education Image
#SpotCovid

This child has low oxygen levels and needed medical attention.
Never be afraid of seeking medical attention as many times as you need to.
#LongCovidKids #Omicron #oxygen #COVID19 Image
#SpotCovid

The rash covered the entire body and was constantly moving.
Please RT to raise awareness of the wide range of symptoms children can experience from #COVID19

There has never been a @UKHSA child-focused public awareness campaign to help families identify symptoms Image
#SpotCovid

Would you #SpotCovid from purple /mottled skin, and a swollen ankle.

This child tested positive for #COVID19

#LongCovidKids #Omicron #OmicronVarient #OmicronVirus Image
#SpotCovid

"This is how it started. She tested positive 6 days before without any symptoms. Then the rash started from the knees and elbows and went around the whole body. For 3 days she couldn't walk because of feet pain"

#LongCovidKids #Omicron #CovidTesting Image
#SpotCovid

Pain in fingers and hands and feet developed right after the acute infection.
#Omicron #LongCovidKids #COVID19 #LongCovid #countlongcovid #education #schools #teacher ImageImage
#SpotCovid

This child tested positive for #COVID19
We need layers of mitigation measures in schools, but there aren't any, so HOW are we going to protect children? @nadhimzahawi @sajidjavid

#Omicron #LongCovidKids #COVID19 #LongCovid #education #schools #teacher Image
#SpotCovid

"My son became symptomatic 2 days after his sister very similar sore eyes like hayfever, headache, temperature, extreme fatigue, problems with his breathing, food tasting weird, no appetite, achy. He said in the earlier day it felt similar to when he had tonsillitis". Image
#SpotCovid

"Started with sore eyes like hayfever type symptoms, headache which she couldn't shift them temperature followed by fatigue, breathing labored, funny taste/food tasting strange, no appetite, achy arms & legs, body felt heavy"

#LongCovidKids
#SpotCovid

17yr old female with #COVID19

How will young people be protected when they go back to college?
What mitigations do they have?

#LongCovidKids Image
#SpotCovid

“my g #COVID19 + w Delta November 12th all respiratory symptoms with vertigo.
Today, Dec 29th + #Omicron, presented with just a rash and headache this time round”

Can you see #COVID19 ?

#LongCovidKids ImageImage
The UK COVID-19 symptom list falls significantly short.
The @CDCgov list is more comprehensive.
Please be aware any symptom can be COVID-19 in a child.
Get a test to avoid delay in care should you need it.
#LongCovidKids @UKHSA
cdc.gov/coronavirus/20… Image

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More from @LongCovidKids

Nov 27
Closing statement from Sarah Hannett KC on Children and Young People 27/11/24.

"Long Covid is a new childhood disease whose prevalence is equivalent to childhood diabetes"

#LongCovid #LongCovidKids #CovidInquiry
One teenager told Every Story Matters that "it's a big identity crisis, my Mum and I were fit active people, I was meant to be beginning pro ballet as a career"
"at a young age difficult a you are finding out who you are, it's an identity I don't want"

#LongCovidKids #LongCovid
"In the UK throughout 2020 there was no information published by @GOVUK stating that children & young people could have any, let alone debilitating symptoms from COVID/LongCovid"
"When families sought assistance for children suffering they were routinely dismissed"
@SammieFMc
Read 9 tweets
Sep 6
🧵 Module 8 Prelim Hearing @covidinquiryuk @LongCovidKids @LCKScotland
CYP with #LongCovid suffered the double burden of the direct effect of their illness and disability as well as the indirect effects of the pandemic & it's associated measures felt by all CYP
Sarah Hannett KC
Some CYP have lost their lives to COVID-19, many continue to suffer from the life changing, disabling symptoms of #LongCovid

Patients & their families suffer the additional burden & stigma of being disbelieved and disparaged or having symptoms minimised or dismissed as anxiety
We agree with the observations made by the CRO that the Pandemic, & we would add #LongCovid, exacerbated and continues to worsen existing inequalities amongst CYP in terms of, for example social economic status, ethnicity & disability
#LongCovidKids
Read 17 tweets
Dec 13, 2023
Listen to Long Covid Groups closing submission delivered by KC Anthony Metzer. 12/12/23
My Lady, I appear with Sangeetha Ienger and Shanthi Sivakumaran
Instructed by Jane Ryan of Bhatt Murphy
@Jane_Ryan_ @BhattMurphy @covidinquiryuk
#LongCovid #LongCovidKids #CovidInquiry
You heard from our client @SammieFMc during the impact films. In her statement, she said: “it has been extremely distressing to watch my child who had been previously completely healthy, happy and dancing around being unable to move and full of self-doubt. It was like watching
my child fade away – she is no longer the child she was.”

The LCG's have sought to understand how & why there was an inexplicable delay in the @GOVUK recognition of #LongCovid, when longer-term sequelae were foreseeable/ well-established from SARS and MERS.
#LongCovidKids
Read 13 tweets
Oct 31, 2023
Three years ago while #LongCovid was being denied and ignored, despite available evidence @LongCovidKids families came together to make this made this awareness video advocating for CYP injured by #COVID.
3 years on, children are still sick.
#LongCovidRuinsLives #LongCovidKids
Listening to the witnesses at the @covidinquiryuk today has been extremely difficult, upsetting and traumatic for families.
We are distraught that the experiences of our children who both endured the pandemic and were injured by the virus, are not being heard. The inquiry
'listening' project WILL NOT hear directly from CYP with #LongCovid. Less than 20 children will be interviewed as part of a research project. Their experiences will analysed and shared alongside the experiences of a larger number of children who endured the pandemic. We feel
Read 6 tweets
Oct 10, 2023
1/3 These are the words children use to describe their #LongCovid experience.
Friday is #LongCovid day at @covidinquiryuk
@LongCovidSOS Co-founder @selkieO
will give evidence on behalf of the Long Covid Groups.

We can't do this alone, we need your support.
#StrongerTogether Image
2/3 Their words remind us why we are part of the @covidinquiryuk
Join Us.
✅0915> @ Dorland House, 121 Westbourne Terrace London, W2 6BU
✅0800> online to support as we ask the @covidinquiryuk to #listen, #learn & give children & families #Hope

#ListenLearnHope
#GiveUsHope Image
3/3 The words of the young people injured by #COVID keep us focused on why we are part of the @covidinquiryuk

#Hidden
#Lost
#Broken
#Forgotten
#Disabled
#Stuck
#Trapped
#LeftBehind
#Ignored

#LongCovidKids #LongCovid #LongCovidAwareness Image
Read 4 tweets
Jul 29, 2023
“These figures are extremely concerning. Children rarely get ill, so a disease affecting 2% of young children to a level that it’s causing restriction of day-to-day activity is a huge public health problem.”
@dgurdasani1

#LongCovidKids https://t.co/xFg2We5iwa
Image
“In the absence of vaccination, prior infection remains the only means by which children can, ironically, become immune, and evidence shows that ensuing protection is highly variable and often insufficient….

#LongCovidKids


#LongCovidKids https://t.co/4jUPn3lTAvinews.co.uk/news/science/t…
Image
…This, combined with low vaccine rates & a lack of mitigations, condemns kids to multiple reinfections that may lead to both #LongCovd & other forms of morbidity, as well as a proportion experiencing severe acute disease on breakthrough, w some sadly succumbing.” @SGriffin_Lab
Read 5 tweets

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