About to start watching the inspiring advocates of the #dedoc° symposium that was held earlier today at #EASD2022 🍿

Sad I couldn't watch it live. Couldn't wait to catch up here ▶️

#nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 1/n
I already know many happy tears will be shed listening to their inspiring advocacy work 🥲

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy #languagematters
@EASDnews @dedocORG 2/n
Dedoc° symposium, What we wish you knew and why:
'It's the 1st ever #dedoc° symposium at #EASD2022'. This is what I had in mind 10y ago - a panel of advocates at the world largest #diabetes conference.'

-Bastian Hauck, @dedocORG founder

#nothingaboutuswithoutus
@EASDnews 3/n
Dedoc° symposium -What we wish you knew and why:
'The #dedocvoices are at the ❤️ of everything #dedoc° does. Our scholarship brings about 150 #diabetesadvovates from around the world to conferences like this.'
- @tadorna

#EASD2022 #payitforward
@EASDnews @dedocORG 4/n
Dedoc° symposium -What we wish you knew and why:
'Prof. Chantal Mathieu, President of #EASD, has made this happen. Thank you @professorcm ❤️'
- @tadorna

[me, 🥹 already]

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 5/n
#dedoc° symposium -What we wish you knew and why:
'Welcome to the most important members of the team, people living with #diabetes. Now, you are where you should be & you need to speak up 📢'
- Prof. Chantal Mathieu

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 6/n
#dedoc° symposium -What we wish you knew and why:
'When Covid started the #DOC worked on how we could remain connected though so much had already been done. Peer support & peer to peer learning is life saving & life changing.'
-@RenzaS

Yes ❤️

#EASD2022
@EASDnews @dedocORG 7/n
#dedoc° symposium -What we wish you knew and why:
'Even b4 the Covid pandemic hit, #PwD had a couple of decades of building & expanding their peer support online. But not everyone is online.'
-@AndreaLimbourg

#EASD2022 #nothingaboutuswithoutus #diabetes
@EASDnews @dedocORG 8/n
#dedoc° symposium -What we wish you knew and why:
'FB groups & community support have been instrumental on how to build & use #DIYAID. Groups grew exponentially from local to international level.'
-@AndreaLimbourg

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 9/n
#dedoc° symposium -What we wish you knew and why:
'The #DOC enables us to find people like us all over the world. #diabetes is hard & can be quite isolating but we don't have to do this alone.'
-@AndreaLimbourg

YES 🙏

#EASD2022 #nothingaboutuswithoutus
@EASDnews @dedocORG 10/n
#dedoc° symposium -What we wish you knew and why:
'We are on our own 99.98% of the time.
"The person w/#diabetes who knows the most lives the longest" remains true today.'
-@JeffHitchcock59 @cwdiabetes

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 11/n
#dedoc° symposium -What we wish you knew and why:
'More adults with #T1D are at @cwdiabetes now than kids. Thay have found their tribe and a place where everyone knows the beeps.'
-@JeffHitchcock59

🥹🙏🙏

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 12/n
#dedoc° symposium -What we wish you knew and why:
'We never knew that #Covid would actually bring us together. Online peer support in 🇿🇦 brought the comforting realisation that you are not alone ❤️'
-@salih_hendricks

#EASD2022 #diabetesadvocacy #PwD
@EASDnews @dedocORG 13/n
#dedoc° symposium -What we wish you knew and why:
'Peer support gave #PwD power. We passed on the info we gathered to the community without media access using the "Smoke Signal Media". We became family ❤️'
-@salih_hendricks #diabeticamputees

#EASD2022 @EASDnews @dedocORG 14/n
Dedoc° symposium -What we wish you knew and why:
'I'm not a number. I'm a person. I have #diabetes.'
-Tom Dean @welshy_89

THIS 👆

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 15/n
Dedoc° symposium -What we wish you knew and why:
'I was embarrassed. I was scared what people would think. I just wanted to be normal.'
-Tom Dean @welshy_89 #diabeteschat

Why have we all been there? Why?

#EASD2022 #dedoc°voices #PwD
@EASDnews @dedocORG 16/n
Dedoc° symposium -What we wish you knew and why:
'#diabeteschat - every Monday at 8PM GMT on Twitter - brings people together to share lived experience, connect and not feel alone.'
-@welshy_89

Again, why have we all been there ?

#EASD2022 #dedoc°voices
@EASDnews @dedocORG 17/n
Dedoc° symposium -What we wish you knew and why:
'Find you tribe. Love them hard.'
-@tadorna quoting @RenzaS ❤️❤️❤️

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy #EASD
@EASDnews @dedocORG 18/n
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More from @1derfultype

Apr 5
1/ #COVID-19 et #diabete : une contamination #SARScov2 peut-elle être un élément déclencheur ?

Très long (vraiment très long) #thread 🧵 ⤵️
2/ La plupart des personnes qui vivent avec une maladie chronique sont conscientes d’être plus à risque en cas de contamination #COVID. Celles qui vivent avec un #diabete #DT1 #DT2 ou autre, savent aussi qu’une infection, quelle qu'elle soit, peut provoquer une certaine
3/ résistance à l’insuline qui augmente la glycémie, accroit les besoins en #insuline, et peut parfois engendrer une complication potentiellement fatale, le coma acidocétosique. C’est particulièrement vrai en cas de contamination par le #COVID19.
Read 32 tweets
Oct 4, 2020
[#thread] Déception à la lecture de la newsletter du @CeeD_Diabete qui paraphrase l’ANSM sur les #BouclesFermées DIY. Avec +5 ans d’expérience utilisateurs les développeurs du #DIY ont ouvert la voie aux boucles commerciales 🚀

▶️ ceed-diabete.org/blog/alerte-su…

#DIYAPS #DT1
Les #BouclesFermées commerciales ne sont pas encore disponibles en France, et le seront à un public restreint. Elles le sont depuis 2 ans dans d’autres pays. Les #DT1 ne peuvent plus attendre et construisent leur propre boucle avec du matériel marqué CE.

#WeAreNotWaiting
Comparaison faite lors d’#EASD2020 ⤵️
moyenne du #TempsDansLaCible #TIR : 90% #DIY vs 70% pour les boucles commerciales.

Inspirons-nous du DIY. Faisons avancer les choses ENSEMBLE. Réduisons les complications, couteuses pour la société et en années de vie #DT1 🚀

#DIYAPS
Read 6 tweets
Sep 25, 2020
#ControlIQ Tandem T:slim #closedloop's aim at improving #TIR. To activate Control IQ, are required:
▶️ current weight
▶️ total daily #Insulin
▶️ carb ratio
▶️ ISF
▶️ correction factors
▶️ meal bolus still required

#dedoc° #dedocvoices #EASD2020 @EASDnews #NothingAboutUsWithoutUs Image
36 wk-trial #ControlIQ in teens and adults in 2019:
▶️ #TIR +11% from 61 to 71%
▶️ major #BG improvement at night 2 to 8am
▶️ average #A1c 7% (#PwD witth A1c >6.5% improved too)
▶️ less #hypos
- Dr Marc Breton, University of Virginia

#dedoc° #dedocvoices #EASD2020 @EASDnews Image
#ControlIQ in real life for 6086 users, average age 42yo, for 6 months:
▶️ #TIR 74.9% for 180 days
▶️ consistent improvement in #BG control
- Dr Marc Breton, University of Virginia

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs Image
Read 5 tweets
Sep 25, 2020
The implication of the wider spread of #DIYAPS on out-of-pocket expenses for people with #T1D- Timothée Froment on the conomic burden associated with #diabetes technologies

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs Image
The amount of out-of-pocket expenses for people with #T1D depends on the limited health coverage of #diabetes technologies & supplies in most countries
- Timothée Froment

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs Image
Strong link between health coverage and out of pocket #diabetes expenses. The monthly average cost is:
▶️ $39 in Germany
▶️ $502 in the US
- Timothée Froment

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs Image
Read 5 tweets
Sep 24, 2020
Evaluation of the #OmnipodHorizon™ automated glucose control system in children with type 1 diabetes:
* Connected to #DexcomG6
* Algorithm built into the pod
* Phone controller or PDM
- Dr Gregory Forlenza

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs ImageImageImageImage
Evaluation of the #OmnipodHorizon™ in children with #type1diabetes: usual drop in #TIR during the winter holidays. Study started during a challenging time - Dr Gregory Forlenza

#dedoc° #dedocvoices #EASD2020 #EASD
@EASDnews #NothingAboutUsWithoutUs Image
Evaluation of the #OmnipodHorizon™ in children with #type1diabetes:
* reduced #BG variability
* #Hypo reduction
* 59% users chose the 110mg target (free choice)
- Dr Gregory Forlenza

#dedoc° #dedocvoices #EASD2020 #EASD
@EASDnews #NothingAboutUsWithoutUs ImageImage
Read 4 tweets
Sep 23, 2020
#Diabetes should become a political priority. Every 8 second, a #PwD dies because of #DiabetesComplications. Are we doing the best we can to prevent this? - Dr Maurizio Guidi

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs Image
We need to invest in #innovation to prevent #complications, and improve the quality of life of people #QOL with #T1D and #T2D - Dr Maurizio Guidi

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs
The voice of those, the #PwD, living with this disease must be heard - Pr Chantal Mathieu

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs
Read 4 tweets

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