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Peter Morley: I'm okay, my partner is okay, & my friends & family are okay. I can't say the same for other people.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: I have well over 10 pre-existing conditions, I've survived cancer twice, & I have Lupus. My partner is my sole caregiver, esp. now that we're sheltering in place.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: My partner is a switch supervisor with the MTA & is considered an essential worker; the first MTA worker, a conductor, recently died from COVID-19.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: #Plaquinil, #Hydroxychloroquine help keep me from getting flares from my lupus; I had a flare so bad I almost ended up in the hospital. If lupus & other immunocompromised people can't get their meds, even more people will end up in the hosp.
Peter Morley: As a patient, I can tell you I've had my access to Plaquinil limited.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: I'm speaking to everyone in Congress I can to make sure they're aware of this situation. I'm also talking with a lupus foundation that is trying to help.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: They're trying to ramp up production of these medicines but that takes time; also, we may rely on other countries for components of the medicines. If this truly turns out to be a cure, no other country will want to give up the meds or its components
Peter Morley: It took me about 4 mos to acclimate to this medicine; it's not an easy medicine to tolerate. I had terribly nausea & severe headaches in addition to weakness--and weakness is already a symptom of lupus.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: These medicines can cause retinal separation, so I need to get extensive eye exams twice a year to make sure I don't have it. This is a really difficult medicine & shouldn't be given out so easily.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: I had to work my way up to a full dose b/c I couldn't tolerate a full dose. This is not the miracle drug people may think it is.
Rick: We have a snake oil President; not surprising he's trying to sell us snake oil now.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: These are major, major drugs we have to take for lupus. Only one drug in the last 50 years has been designed for lupus! One.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: I'm doing everything in my power, the Lupus Foundation of America has plans of action we can take, but we need YOU to help call Congress, too.
@morethanmySLE #Plaquinil #Hydroxychloroquine
Peter Morley: I can proudly say I had nothing to do with Trump being elected. That's the only good thing I can say.
@morethanmySLE #Plaquinil #Hydroxychloroquine
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