Thread by @TomKindlon

Misleading about mainstream CBT for #MECFS: the manuals show it's about reversing symptoms & impairments, & claim people should be able to recover with CBT. The results from trials are not particularly exciting esp. with regard to objective +/or long-term outcome measures

#CFS

https://twitter.com/MEAssociation/status/1325785601485004800

I'm not convinced by this claim either "Unsurprisingly, people experiencing many symptoms like this feel anxiety, which in turn can drive more physical symptoms.”

But otherwise could have been a lot worse.

#PostViralFatigueSyndrome #PostViralSyndrome #PVFS #MEcfs #CFS #MyalgicE

"ME/CFS has been continually written off–even by some in medicine–as a “made-up” or “psychological” issue because biological triggers for the issues have yet to be found. This can see patients maligned rather than supported" Cohort studies have shown it often follows infections

"There are claims that inflammation of the heart, lungs and brain that occur with #longCovid are unique, but Coakley says it is impossible to know that because research into ME/#CFS and #PVFS has been so underfunded."

I agree

#ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE