[Thread]
PD White has just co-authored a #MECFS paper which has a dubious, wishy-washy recovery definition: not a complete remission of symptoms & a return to premorbid functioning" but where basically people who are not recovered are seen as recovered
journals.sagepub.com/doi/10.1177/10…
1/n
PD White has just co-authored a #MECFS paper which has a dubious, wishy-washy recovery definition: not a complete remission of symptoms & a return to premorbid functioning" but where basically people who are not recovered are seen as recovered
journals.sagepub.com/doi/10.1177/10…
1/n
2/n
From a former patient of White's
'To me if I'm recovered, I'm able to come off benefits, work full time, do my house work & have a life. But when I said this he asked me: 'Do you want to go back to the life that gave you ME?' That's a cop out"
See more
s4me.info/threads/sick-o…
From a former patient of White's
'To me if I'm recovered, I'm able to come off benefits, work full time, do my house work & have a life. But when I said this he asked me: 'Do you want to go back to the life that gave you ME?' That's a cop out"
See more
s4me.info/threads/sick-o…
3/n
These bizarre & infuriating comments in 2006 on the draft NICE guidelines show again Peter White's odd views about #MECFS in general & recovery in particular
"A Selection of points the Barts CF Service made during the NICE Guidelines for #CFS/ME:"
meagenda.wordpress.com/2007/09/06/a-s…
These bizarre & infuriating comments in 2006 on the draft NICE guidelines show again Peter White's odd views about #MECFS in general & recovery in particular
"A Selection of points the Barts CF Service made during the NICE Guidelines for #CFS/ME:"
meagenda.wordpress.com/2007/09/06/a-s…
4/n
Could his statements about recovery & similar could be influenced by the presumably lucrative work he has done as a CMO for a reinsurance company? Records show he turned down a claim saying what the patient required was (more) CBT +/or GET
s4me.info/threads/how-pa…
#MyalgicE
Could his statements about recovery & similar could be influenced by the presumably lucrative work he has done as a CMO for a reinsurance company? Records show he turned down a claim saying what the patient required was (more) CBT +/or GET
s4me.info/threads/how-pa…
#MyalgicE
5/n
Many will recall bizarre way White & co redefined recovery in £5M #PACETrial (see image for one example). We showed using their original criteria, #CFS recovery rates were very low with CBT & GET & not statistically significantly different to controls tandfonline.com/doi/full/10.10…
Many will recall bizarre way White & co redefined recovery in £5M #PACETrial (see image for one example). We showed using their original criteria, #CFS recovery rates were very low with CBT & GET & not statistically significantly different to controls tandfonline.com/doi/full/10.10…
6/n
White isn't saying patients should adapt to their illness & accept their lower functioning; he w/o evidence believes there's no reason why people can't recover eg see PACE Trial GET manuals where there is no reason why people can't get back to normal me-pedia.org/images/8/89/PA…
White isn't saying patients should adapt to their illness & accept their lower functioning; he w/o evidence believes there's no reason why people can't recover eg see PACE Trial GET manuals where there is no reason why people can't get back to normal me-pedia.org/images/8/89/PA…
7/n
One could say White plays on people's "ableist" views that adapting to disability & using mobility aids is bad and should be discouraged. See for example this video at 27 minutes, where he criticises an image of a woman with ME using a mobility scooter
One could say White plays on people's "ableist" views that adapting to disability & using mobility aids is bad and should be discouraged. See for example this video at 27 minutes, where he criticises an image of a woman with ME using a mobility scooter
8/n
Peter White co-authored a paper on "full recovery" from #CFS with Hans Knoop, a prominent Dutch proponent of CBT for CFS who claimed in his PhD "recovery of CFS was possible, even if the physical activity level of the patient remained low"
repository.ubn.ru.nl/bitstream/hand…
#MyalgicE
Peter White co-authored a paper on "full recovery" from #CFS with Hans Knoop, a prominent Dutch proponent of CBT for CFS who claimed in his PhD "recovery of CFS was possible, even if the physical activity level of the patient remained low"
repository.ubn.ru.nl/bitstream/hand…
#MyalgicE
9/n
If alternative therapists used such loose definitions of recovery for patients who use their therapies, many people would rightly be challenging maybe even mocking them. But it seems many people don't apply the same rigour to psychs and recovery claims regarding #MECFS.
#CFS
If alternative therapists used such loose definitions of recovery for patients who use their therapies, many people would rightly be challenging maybe even mocking them. But it seems many people don't apply the same rigour to psychs and recovery claims regarding #MECFS.
#CFS
unroll @threadreaderapp
10/n
Given the risk of relapse in #MECFS, which often can happen partly or wholly due to mental +/or physical exertion (at a level which might not be problematic to other people), considering yourself recovered can be a risky mindset to have
#ChronicFatigueSyndrome #CFS #MyalgicE
Given the risk of relapse in #MECFS, which often can happen partly or wholly due to mental +/or physical exertion (at a level which might not be problematic to other people), considering yourself recovered can be a risky mindset to have
#ChronicFatigueSyndrome #CFS #MyalgicE
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