Thread by @EinsteinsAttic

Without fanfare, the reasons for which will soon become obvious, @NHSEngland finally published its #DataStore "#DisseminationRegister":

england.nhs.uk/publication/da…

18 months after we first pointed out it had to, and over a year since we began requesting it!

Let's take a look...

For starters, it's staggering how little information the register actually contains. Just 18 lines, on 18 data flows or extracts over the past 18 months!

This for what has repeatedly been claimed as a "vital #COVID19 resource"?!

Here's a snapshot of ALL of them 👇

Of those 18 data flows, nine of them are to do with the #vaccination programme - and only started from February of this year. A tenth seems to be mis-dated, unless we had a vaccine no-one ever heard of in April 2020? 🤔

Several of the other named purposes we already knew...

...so why the secrecy? Why take so long to publish something that could have been pulled together (and indeed looks like it has been) in little more than an afternoon?

The cut'n'pastes are obvious, especially for #JBC - which say exactly the same nothings we're used to.

Twice:

What's most interesting is what @NHSEngland HASN'T included, of course - which I'll come to - but first a couple of 'niggles':

1) In the #NCCID row, @NHSX is NOT a "statutory organisation" and should not be listed as such. (It's a "joint working agreement" between DHSC & NHSE.)

2) While the delivery of "Home Fire Safety Checks" is no doubt a good thing, it's NOT a valid #COVID19 purpose and therefore a breach of the #COPI Regs. Saying "and also to support..." doesn't get you off the hook for smoke alarms or for 'EU Exit' or 'business-as-usual' planning.

Notable absences include @PalantirTech and @faculty_ai, despite repeated mention of both companies in the #DataStore #DPIA and #contracts.

Do @NHSEngland think the public are stupid, are they being obtuse, or are they STILL too scared to say what they are actually doing?

Would the line items in @NHSEngland's register line up fully with the list of projects within #Palantir #Foundry 👇and if not, why not?

whatdotheyknow.com/request/projec…

Not to mention the ‘Self-Service’ Data Integration and Analytics Capability, and @10DowningStreet's use of the...

..."Strategic Decision-Makers’ Dashboard", of which @Dominic2306 has been singing the praises in recent months?

Does @NHSEngland expect anyone to take as #credible, much less #trustworthy, a "data dissemination register" that DOESN'T EVEN MENTION #Number10 or #PMO? 🤦‍♂️🤦‍♂️🤦‍♂️

I've seen some appallingly bad spreadsheets in my time, and criticised many shocking failures of #transparency. But in publishing this, so #late and in such #demonstrably poor shape, @NHSEngland has sunk to an all time low - showing why it simply CANNOT BE #TRUSTED wih our data.

By comparison, and to explain why we've been saying any long-term #COVID19 #DiseaseRegistry MUST be held at @NHSDigital (like the #CancerRegistry, the governance of which @PHE_uk screwed up) #NHSDigital's COVID-19-specific release register for the same period lists nearly...

...NINETY flows of data. Many to @DHSCgovuk, @PHE_uk & @NHSEngland, of course - but also, e.g. @cabinetofficeuk, @mhclg & Local Authorities; Hospitals, GP Practices & CCGs; Universities all across England, not just a select few.

#NHSE/@NHSX's 18 row 'register' is a disgrace.

To get a sense of how #untransparent @NHSEngland's #DataStore register is and/or how it has simply been #hoarding data for its own uses throughout the pandemic, just take a look at THIS MONTH's (non-COVID) register from @NHSDigital:

digital.nhs.uk/services/data-… < 12MB, 2719 rows...

...and we're still working on 'em to improve the information that's in that!

So when @NHSEngland or Ministers say they need "#MoarDataaa" for all the good things, ask them this:

"Why should we #trust you with our data when you won't show what you did with what you already got?"