Group Post
"Spent all of Wed in hospital , to be told my child was fine - I've just had to pull her up the stairs to bed. She's too heavy to lift - couldn't even crawl up
I'm angry angry angry & feel so let down by the NHS & our Gov
Our children are like ghosts!!
#LongCovidKids
Group Post
"we got the results of S's extensive bloodwork. White blood cell count ⬇️and Iron &Vitamin D very low. Started him on Iron & Vitamin D,repeat bloods in 3 mths. It's not surprising he felt exhausted. They don't yet know why all this happened"
#LongCovidKids
Group Post
"I’m sorry that we are all here, but grateful to have a community. My 15 YO is at the beginning of her #LongCovid journey. The biggest problem is nausea … she has lost 3kg this wk. Any other advice?"
#LongCovidKids
Group Post
"We are past our 2 year mark, this group has been so instrumental in me not feeling so lost & drained. It’s testament to the 🧡 & determination of parents across the world. I am 🙏🏼 for LCK & for each & every 1 of you. Together we will figure this out"
#LongCovidKids
Group Post
"Here we still are as well, 23 months in to this long and frustrating journey, still pushing for the health checks and support that our D needs.
Sending love to you all and I’m sorry to say that I now recognise names"
#LongCovidKids
Group Post
"My D & I are still unable to accept this debilitating life. I’m angry & upset, she was super athletic & healthy, with a full happy life and hopes & dreams for the future. Now my D ,& us by default have no life - we just exist, the future is uncertain"
#LongCovidKids
Group Post
"our 2yr mark in 14 days.
Don’t ever be scared to ‘press your reset button folks’ . It allows a breath & gives energy to move forward even if the world feels it’s going backward🧡 to all and 🙏🏼 you for your hard work 💕initially this group was my only place to visit"
Group Post.
"We’re also approaching 2 years and pacing is definitely working for M. Our aim is full time school from September and whilst there are/will be many bumps in the road, it’s good to have a plan and we’re heading in the right direction!"
#LongCovidKids #education
Group Post
"So my 9yo has had a headache since 28/12. Her neurologist appt is April 18, but we just got a cancellation appt for tomorrow!!
I’m writing down everything we’ve tried. I’m not expecting her to help much but I’m hoping!"
#LongCovidKids
Group post.
"2 yr anniversary approaches it's going to be a tough day. I find it hard to accept our new normal & keep fighting for help for my girls. It is heartbreaking to watch as they live their half lives through pain &chronic fatigue.Sending 🧡 to anyone that needs it today"

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More from @LongCovidKids

Feb 10
#FactCheck 1 of 3

#LongCovidKids is not a campaign group.

We are a charity that represents and supports children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.

🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🇨🇦🇬🇷🇮🇹🇦🇹
#FactCheck 2 of 3

Children's real risk of admission due to Covid increased during #Omicron

Jan 2022 3,797 child Covid admissions
Assume 53% primarily Covid = 2,012

Jan 2021 [Alpha] 1,243
80% primarily Covid = 994

Omicron TWICE as likely to hospitalise children due to Covid. Image
#FactCheck 3 of 3

Jan 2022
961,896 0-19 year olds tested positive for Covid

According to Molteni, @sunilbhop et al, prolonged illness of 56+ days can occur in 1.8% of positive cases amongst 5-17yos

= est. 17,314 0-19yo more #LongCovidKids

Source thelancet.com/journals/lanch…
Read 5 tweets
Jan 5
2/8 To assist with @GOVUK rollout of CO2 monitors to schools @CoSchoolsTools have created 4 videos, and other materials, that aim to explain how #CO2monitors can help #teachers manage their classroom #ventilation for comfortable healthier learning.
coschools.org.uk
3/8
@MichaelRosenYes please could you help us get these videos to schools?

#CommunityAction #LongCovidKids #BackToSchool
#Education #MaskUp #Kids #SpotCovid

Read 8 tweets
Dec 29, 2021
The Government have warned us that we will see large numbers over the coming weeks.

Parents have a situation to deal with. Knowledge is power.

Please know what to look for in your child. Trust your instincts. Seek help if you are concerned.

Symptom poster on following tweet
For all those who care for children, this is how covid can present in a child.

From the lived experience experts 🧡
Identifying #COVID19 plays a key role in reducing transmission.

This thread shows images of some symptoms reported by families with #Covid positive children.
Any symptoms requires a test.

Ask the @UKHSA to update their symptom list.

#LongCovidKids

threadreaderapp.com/thread/1475926…
Read 4 tweets
Dec 28, 2021
NOT CHILBLAINS
8 yo Girl.
Off food for 2 days.
Bizarre itchy rash
Called 111 told Chilblains
Mum unconvinced
Got PCR
POSITIVE for #COVID

Please show #teachers #education #schools

#SpotCovid

Think #COVID19 #Omicron #LongCovidKids Image
Symptoms of #LongCovid can be found in the gallery.

#LongCovid

longcovidkids.org/long-covid-kid…
#SpotCovid

Sores at the sides of the mouth.
This child tested positive for #COVID19

Please RT to help others #SpotCovid

#education #schools #teachers
#Omicron #OmicronVarient #LongCovidKids Image
Read 27 tweets
Nov 21, 2021
🔥7 child deaths due to Covid in 1 week
🔥1 in 22 deaths of 5-9 year olds due to Covid
🔥Covid is top 5 cause of death 10-19 year olds
🔥30% increase in number of children suffering Long Covid in 1 month

📌This weeks Child Covid Specific Stats blog

longcovidkids.org/post/child-spe…
Read 4 tweets
Nov 14, 2021
Group Post

“9year old had #covid in September and had continued to have dizzy spells and back pain. this week his lung has completely collapsed and needs major surgery...has anyone had this happen?”

#LongCovidKids
Group Post
it is so sad to read how many children are suffering right now.

After mild COVID my S has

Extreme tiredness (able to stay awake for 4 hrs at a time)
Conjunctivitis x 2 (antibiotics)
Tonsillitis x 3 (antibiotics)
2 bouts of Gastritis (with acid reflux) & sickness.
Group post.

My 9 yo tested + mid sept. She didbt have typical #covid symptoms....had tummy pains, nausea, headaches, extreme fatigue. Was fine to return to school after 10days but still bit tired. Week later had bad cold virus along with bad tummy pains and nausea. Dr thought
Read 19 tweets

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