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"Spent all of Wed in hospital , to be told my child was fine - I've just had to pull her up the stairs to bed. She's too heavy to lift - couldn't even crawl up
I'm angry angry angry & feel so let down by the NHS & our Gov
Our children are like ghosts!! #LongCovidKids
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"we got the results of S's extensive bloodwork. White blood cell count ⬇️and Iron &Vitamin D very low. Started him on Iron & Vitamin D,repeat bloods in 3 mths. It's not surprising he felt exhausted. They don't yet know why all this happened" #LongCovidKids
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"I’m sorry that we are all here, but grateful to have a community. My 15 YO is at the beginning of her #LongCovid journey. The biggest problem is nausea … she has lost 3kg this wk. Any other advice?" #LongCovidKids
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"We are past our 2 year mark, this group has been so instrumental in me not feeling so lost & drained. It’s testament to the 🧡 & determination of parents across the world. I am 🙏🏼 for LCK & for each & every 1 of you. Together we will figure this out" #LongCovidKids
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"Here we still are as well, 23 months in to this long and frustrating journey, still pushing for the health checks and support that our D needs.
Sending love to you all and I’m sorry to say that I now recognise names" #LongCovidKids
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"My D & I are still unable to accept this debilitating life. I’m angry & upset, she was super athletic & healthy, with a full happy life and hopes & dreams for the future. Now my D ,& us by default have no life - we just exist, the future is uncertain" #LongCovidKids
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"our 2yr mark in 14 days.
Don’t ever be scared to ‘press your reset button folks’ . It allows a breath & gives energy to move forward even if the world feels it’s going backward🧡 to all and 🙏🏼 you for your hard work 💕initially this group was my only place to visit"
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"We’re also approaching 2 years and pacing is definitely working for M. Our aim is full time school from September and whilst there are/will be many bumps in the road, it’s good to have a plan and we’re heading in the right direction!" #LongCovidKids#education
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"So my 9yo has had a headache since 28/12. Her neurologist appt is April 18, but we just got a cancellation appt for tomorrow!!
I’m writing down everything we’ve tried. I’m not expecting her to help much but I’m hoping!" #LongCovidKids
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"2 yr anniversary approaches it's going to be a tough day. I find it hard to accept our new normal & keep fighting for help for my girls. It is heartbreaking to watch as they live their half lives through pain &chronic fatigue.Sending 🧡 to anyone that needs it today"
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We are a charity that represents and supports children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.
🔥7 child deaths due to Covid in 1 week
🔥1 in 22 deaths of 5-9 year olds due to Covid
🔥Covid is top 5 cause of death 10-19 year olds
🔥30% increase in number of children suffering Long Covid in 1 month
“9year old had #covid in September and had continued to have dizzy spells and back pain. this week his lung has completely collapsed and needs major surgery...has anyone had this happen?”
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it is so sad to read how many children are suffering right now.
After mild COVID my S has
Extreme tiredness (able to stay awake for 4 hrs at a time)
Conjunctivitis x 2 (antibiotics)
Tonsillitis x 3 (antibiotics)
2 bouts of Gastritis (with acid reflux) & sickness.
Group post.
My 9 yo tested + mid sept. She didbt have typical #covid symptoms....had tummy pains, nausea, headaches, extreme fatigue. Was fine to return to school after 10days but still bit tired. Week later had bad cold virus along with bad tummy pains and nausea. Dr thought