What I have learned since being unwell myself has destroyed any faith I had in my profession’s leaders. I used to think that deep down most senior clinicians acted because they had the best interests of the patient, their colleagues & society at heart. That illusion is gone. 1/n
Be it the treatment of those with #MECFS #LongCovid #Fibromyalgia #POTS #MCAS #EDS #HSD #PansPandas #Lyme #FQtoxicity #vaccineinjuries & other so-called invisible illnesses; 2/n
the refusal of senior medics to stand up & protect colleagues, the public & schoolchildren from airborne spread of #SARSCoV2 as they are too afraid to displease those in the ivory towers of infection control, @UKHSA & @NHSE management & @UKgovcomms; 3/n
the abrogation of decency, moral spine, principles & ‘first do no harm’ is spectacular. I am completely disillusioned. There are a few brave voices who continue to speak up & do the right thing but for the others, the need to maintain the imbalance of power 4/n
and ensure that their egos remain satisfied & their positions intact is of prime importance. Everything else is secondary. People may die & become disabled as a result; they will not budge. We are collateral damage; our loss is worth it. #MedTwitter #MedEd #TeamGP #psychtwitter
(Request- please spare me the ‘now you know’ & ‘serve you right’ comments. I have always tried to battle the status quo. I never fit in anywhere; have never held a senior management position in 23 yrs of practice).

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More from @doctorasadkhan

May 7
It has been an honour to walk alongside my friend & colleague of 21 years @BinitaKane & her daughter Jasmin on their courageous & inspiring journey. #LongCovid in adults children is real & serious. There are treatments available- sadly only for a fortunate few #TeamClots 1/n
(Everything I say is with the express permission of @BinitaKane). Jasmin is not the only child with #LongCovid who has been shown to have microclots & hyperactivated platelets. They are a consistent finding in kids & adults who have travelled for treatment to Germany & SA 2/n
Globally 100m are affected by this vile illness. In the U.K. alone this figure is estimated to be 1.8m, with 2/3rds reporting an adverse impact on their daily activities. 1% of primary & 2.7% of secondary school children fulfilled the criteria for #LongCovidKids 3/n
Read 17 tweets
Apr 20
A number of you have asked me how I did with #Paxlovid which I took for recent re-infection. Prior to re-infection, I was doing well on triple anticoags along with platelet/endothelial stabilisers (sertraline, rupatadine, rosuvastatin & a course of colchicine). 1/n
I was noticing an improvement in mobility, orthostatic symptoms & recovery time after #PESE. My re-infection was a clinical diagnosis based on symptoms & microscopy which showed multiple new microclots; I was negative on PCR & LFT, as many seem to be with the new strains 2/n
My physician prescribed a course of Paxlovid. Unfortunately I suffered severe orthostatic symptoms, fatigue, nausea & metallic taste. I managed to complete the course, & within 24 hrs side-effects disappeared & I was back to the previous baseline 3/n
Read 8 tweets
Apr 11
I’ve just been made aware of a #POTS management clinic run out of @uclh autonomic service. Brace yourself. I’ve had feedback from an attendee and it isn’t good. @UKPoTS you may be aware of this @YorkCardiology @dysclinic it’s awful 1/n
Run by 2 specialist nurses. Some jewels:
“We learn to think in particular ways
These ways may not always be helpful when you have ongoing health issues. Unhelpful thinking can increase symptoms. 2/n
These thoughts are automatic, you may not even be aware of them, until we train ourselves to think differently”
Hypervigilance, particularly of body sensations is a common thinking pattern in PoTS”
The website neurosymptoms.org was recommended for dissociative symptoms 3/n
Read 11 tweets
Mar 14
@PutrinoLab @C19LH_Advocacy @fi_lowenstein @microbeminded2 @VirusesImmunity @MEActNet @patientled @MarkedByCovid @itsbodypolitic @TheCrankyQueer @ErinSandersNP @WesElyMD @DataDrivenMD @EbonyJHilton_MD @resiapretorius @DrAnnaNZ So far what we know for sure is that in all patients with a physician-made diagnosis of #LongCovid, there is microthrombosis & platelet hyperactivation if looked for. Lending further support to the argument that endothelitis is at the centre of this illness
@PutrinoLab @C19LH_Advocacy @fi_lowenstein @microbeminded2 @VirusesImmunity @MEActNet @patientled @MarkedByCovid @itsbodypolitic @TheCrankyQueer @ErinSandersNP @WesElyMD @DataDrivenMD @EbonyJHilton_MD @resiapretorius @DrAnnaNZ Now for many people (particularly those who get treated early) triple anticoagulation will be enough. It may not be for everyone- e.g. in my case clopidogrel resistance & ongoing endothelitis has necessitated additional drugs which do seem to be helping.
@PutrinoLab @C19LH_Advocacy @fi_lowenstein @microbeminded2 @VirusesImmunity @MEActNet @patientled @MarkedByCovid @itsbodypolitic @TheCrankyQueer @ErinSandersNP @WesElyMD @DataDrivenMD @EbonyJHilton_MD @resiapretorius @DrAnnaNZ Re viral persistence- yes we must keep an open mind but the reality is that tissue persistence of viruses (eg EBV) is a beast to treat. We don’t have great drugs, they are toxic & have horrendous interactions. And we don’t have practical methods of detecting tissue persistence.
Read 7 tweets
Mar 9
A few mths before getting #LongCovid in Nov 20 I was a frontline NHS respiratory consultant; 6am gym goer; couldn’t sit still, always travelling the world with my wife & 2 gorgeous children. Sep 21- bedbound, gastroparesis, complete sound & light intolerance, bladder incontinence ImageImage
post-viral urticaria that made me suicidal, pericarditis, angina, cognitive impairment, crippling #POTS resistant to all medication, renal impairment, impaired glucose tolerance, intolerant of most foods. Was waiting for life to end. Got v little help from @NHSEngland 2/n
Have spent over £35,000 on supplements, private specialists & experimental treatment in Germany. I am better but still housebound, 50% bedbound, with work or family life a distant dream. Yet I am one of the lucky ones- had the resources to give myself a fighting chance 3/n
Read 9 tweets
Mar 8
This harmful advice is doing the rounds. The obsession to get back to activity is dangerous. In #Covid19 rest & pacing are key for recovery & to avoid #LongCovid. There is zero scientific basis for the recommendations here
@gezmedinger @LongCovidKids @long_covid @LongCovidSOS I don’t know who the bodies are at the bottom but could #Twitterati please tweet/email them about how wrong this is and demand to know what science this is based on?
@eis2win @SINIcouk @sportwales @sportscotland every patient is different. Some recover quickly, others can take months. Your advice is medically harmful & can result in deterioration & disability.
Read 4 tweets

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