It’s time to break the silence. (thread)
technologyreview.com/s/612458/exclu…
1 year and 1 week ago, I learned that twin girls called Lulu and Nana had been born—humanity’s first gene-edited babies.
At that time, @MMarchioneAP asked me and a few other experts to assess a manuscript written by JK about the twins. I read it, and I was horrified.
I won’t recount the circumstances under which @MMarchioneAP received the manuscript—it’s her story to tell, and she told it well at the #CRISPRStory session at #SciWri19 @ScienceWriting
@antonioregalado shared his story at the same session, too.
casw.org/newsroom-2019/…
After @antonioregalado broke the news about the pregnancies, @AP quickly published an article by @MMarchioneAP reporting JK’s claim of the birth of gene-edited babies.
After JK, I was the first person quoted, unequivocally condemning JK’s actions.
apnews.com/4997bb7aa36c45…
(Disclosure: this figure is not from the manuscript provided to me by @MMarchioneAP, which I agreed to keep confidential, but from another version of the manuscript provided by a different source who consented to my sharing information about it.)
The CRISPR Generation: The Story of the World’s First Gene-Edited Babies
eBook at bit.ly/TheCRISPRGener… (available now)
Print version at store.bookbaby.com/book/the-crisp…, Amazon, and other sites
#TheCRISPRGeneration
Chapter 11: how JK violated every single principle of ethical medical research
For a full discussion of ethical issues, I highly recommend the October 2019 issue of @CRISPRJournal on The Ethics of Human Genome Editing.
liebertpub.com/toc/crispr/2/5
That’s it for today. Tomorrow, I’ll start doing a deep dive and analyze some of the key figures from JK’s manuscript.
Again, if you don’t want to wait, you can go to bit.ly/TheCRISPRGener… and get the eBook version of #TheCRISPRGeneration immediately.