Welcome back, George.
Now, about that "race-to-the-bottom" slashing of #data #protections...
Now, about that "race-to-the-bottom" slashing of #data #protections...
https://twitter.com/GeorgeFreemanMP/status/1438875020718133252
...which, despite fine words about "maintaining high standards", is plainly the intent of @DCMS's proposed #DataProtection 'reforms':
assets.publishing.service.gov.uk/government/upl…
...which include the intent to (re)define "#ScientificResearch" 🤔🤔🤔
assets.publishing.service.gov.uk/government/upl…
...which include the intent to (re)define "#ScientificResearch" 🤔🤔🤔
Of course, we understand #TIGRR's "enthusiasm for #digital", its eye on the value of "highly #profitable consumer data", and frustration with the pesky #protections and #safeguards of #UKGDPR...
assets.publishing.service.gov.uk/government/upl…
assets.publishing.service.gov.uk/government/upl…
...though it's not like the UK cannot ALREADY run world-leading #ClinicalTrials WITHOUT 'tearing up the rules', cf. #RECOVERY and just this week the announcement of the NHS-Galleri™ #screening trial:
https://twitter.com/EinsteinsAttic/status/1438100415988514821
So maybe rather than #CommonLaw moves (which #TIGRR appeared to favour) to set aside the Duty of #Confidentiality, which - having only just screwed up another #GPdata grab - @NHSX buried in its 'Data saves lives' strategy...
gov.uk/government/pub…
gov.uk/government/pub…
...we can work on delivering what the Government has promised, i.e. fixing broken #consent processes, #TRE-only for #safe #Planning & #Research uses of NHS patients' data - and addressing the woefully-lacking* #transparency that's required for #trust?
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*cf. @NHSEngland & @NHSX
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*cf. @NHSEngland & @NHSX
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