I'd like to explain why #PainPatients & the #disability community is having a VERY difficult time w/this suite of articles about #ChronicPain.
I did find a more balanced view in some of the articles, & that's a good start for journos covering #ChronicPain. Sadly, it isn't enough.
I did find a more balanced view in some of the articles, & that's a good start for journos covering #ChronicPain. Sadly, it isn't enough.
https://twitter.com/erikvance/status/1458438346552737798
For the past 7 years, #PainPatients have endured the draconian shift in #healthcare & attitudes toward pain & disability.
Countless patients lost their meds.
Many patients lost their doctors.
Some patients lost their jobs, their spouses, even their children.
Some of us died.🥺
Countless patients lost their meds.
Many patients lost their doctors.
Some patients lost their jobs, their spouses, even their children.
Some of us died.🥺
In 2016, the #CDC unleashed their #Guidelines for prescribing #opioids for #ChronicPain.
The guidelines were adopted as a mandate in Rxing & the #StandardOfCare across the board.
Overnight, #PainPatients became a glaring liability for all doctors, & the consequences are harsh.
The guidelines were adopted as a mandate in Rxing & the #StandardOfCare across the board.
Overnight, #PainPatients became a glaring liability for all doctors, & the consequences are harsh.
We saw our doctors raided by an overzealous DOJ & DEA, & watched in horror as every penny they made was seized & they were locked away.
Good faith prescribing disappeared thanks to the medical opinions of the #DEA. They have terrorized #PainPatients & their doctors.
Even worse
Good faith prescribing disappeared thanks to the medical opinions of the #DEA. They have terrorized #PainPatients & their doctors.
Even worse
#PainAdvocacy all but disappeared in recent years, declared tainted by #BigPharma.
Our voices were effectively silenced.
We didn't matter & we knew it. Our lives fell apart & most of us are bedridden if we have managed to survive this long. Add in the #LitigationNarrative, &
Our voices were effectively silenced.
We didn't matter & we knew it. Our lives fell apart & most of us are bedridden if we have managed to survive this long. Add in the #LitigationNarrative, &
that pretty well sealed the fate of patients like me. We became despised by most Americans for perpetuating the #OverdoseCrisis.
We're DONE being acceptable collateral damage. It's our turn to speak. When journos turn pain treatment into a #ZeroSumGame where the GOOD patients
We're DONE being acceptable collateral damage. It's our turn to speak. When journos turn pain treatment into a #ZeroSumGame where the GOOD patients
never touch meds, (especially #opioids or #benzos) we become understandably angry. The reality of the situation is LOST.
It was the RARE journalist that spoke up for us through the post-guideline, #PROP fueled stigma years. Mainstream media remained largely silent as we died
It was the RARE journalist that spoke up for us through the post-guideline, #PROP fueled stigma years. Mainstream media remained largely silent as we died
& sank further into despair, agony & disability.
When articles come out touting the INCOMPLETE & simplistic theories of the likes of #DrJohnSarno as a CURE, it's something of an INSULT to those of us still standing. How the hell do you think #PainPatients survived this so far?🧐
When articles come out touting the INCOMPLETE & simplistic theories of the likes of #DrJohnSarno as a CURE, it's something of an INSULT to those of us still standing. How the hell do you think #PainPatients survived this so far?🧐
THAT'S RIGHT, we became #ZenMasters of calm despite pain & mounting stresses in our lives.
Until you're willing to tell the ENTIRE STORY of patients living with disability & pain, don't expect us to cheer when you come out w/articles that never include average #PainPatients. 🤷♀️
Until you're willing to tell the ENTIRE STORY of patients living with disability & pain, don't expect us to cheer when you come out w/articles that never include average #PainPatients. 🤷♀️
I'm tired of watching people I love die to satisfy the various #AntiPatient agendas afoot of late. I'm just DONE.
Excluding @alanasaltz's was a huge miss on the @nytimes part. Why did you kill the REAL story?
We've begged to be heard. It's time people finally LISTEN. Thank you.
Excluding @alanasaltz's was a huge miss on the @nytimes part. Why did you kill the REAL story?
We've begged to be heard. It's time people finally LISTEN. Thank you.
*IMPORTANT DISCLAIMER*
Despite what #PROP & the likes of #AndrewKolodny would have you believe, I haven't received ONE DIME for any of the advocacy I've done over the years.
This is truly a labor of love for me & countless other #advocates.
We do this because we understand.
Despite what #PROP & the likes of #AndrewKolodny would have you believe, I haven't received ONE DIME for any of the advocacy I've done over the years.
This is truly a labor of love for me & countless other #advocates.
We do this because we understand.
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