#chronicillness Twitter to doctor advocates
-you’re only speaking out because you’re sick yourself
-now you know what it’s like (implication- all of us neglected & psychologised patients before. NOT true- some of us just did our best within a system stacked against us)
1/n
-you’re only speaking out because you’re sick yourself
-now you know what it’s like (implication- all of us neglected & psychologised patients before. NOT true- some of us just did our best within a system stacked against us)
1/n
-you need to mention ‘x’ disease as well. (We’re learning as fast as we can. Remember we are sick too. Some of us are bed-bound lying in darkened rooms. You know how much energy it takes to speak up)
2/n
2/n
-don’t dabble in areas you know nothing about. (In my case #Palestine. Being a chronic illness advocate doesn’t make me a one-trick pony. I’ve visited the West Bank & witnessed firsthand the horrors of #IsraeliApartheid. So I will speak up- I’m not here for anyone’s comfort
3/n
3/n
I’m not fishing for compliments here but just asking you to be kind & patient. We’re learning as fast as we can. We’re on your team now. If we weren’t before, apologies 😔. Everyone deserves a second chance 🙏🏾
#LongCovid #MECFS #Fibromyalgia #POTS #MCAS #HSD #EDS #vaccineinjuries #CCI #FQtoxicity #Dysautonomia #Lyme
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