#MedicalBiases #CompromisedCare #DenialofRights
This ⬇️
many may not believe this. They may find it unbelievable. I don’t. I have watched my daughter deal with the exact same abuses bc she is prescribed #opioids, bc she also has complex #medical conditions & PTSD. 1
I never know when she has a medical crisis and needs the hospital IF she will need to interact w a personnel or professional whose #biases interfere with care. These incidences can be shaming, demeaning or they can put her life at risk. My daughter has had hypoglycemic crises 2/
at @SanfordHealth where the nurses refused to check her #bloodsugars because ‘it is anxiety’ or ‘she just ate’. Even when I intervened over phone & pleaded, nurses refused to point I had to reach out to #housesupervisor. While I’ve reached out multiple times to @SanfordHealth 3/
asking for a collaborative comprehension trauma informed care plan to be put in place @SanfordHealth has continually refused. Her rights are violated time and time again bc of their #biases, the assumptions made in chart & their refusal to provide #patientsrights. She has been 4
told by #hospitalists she is lying about #pain, she has been accused of taking drugs and injecting insulin to create a cris. She has been placed on a #behavioral plan that is ALWAYS flagged BUT there is nothing flagging her Type 3 & how it impacts her, or malabsorption issues 5
Her care is impacted by these biases and they refuse to have a trauma informed plan in place that clearly outlines her complications from AITTP. This happens constantly to people and people are shamed into silence, thus poor care ensues and rights are violated. It’s not ok. 6
Physicians, medical personnel have the right to be safe, but so do #patients - they ALSO have rights. AND even IF someone has #SUD, their are entitled to competent care. @SanfordHealth continues to place my daughter in harms way. They refuse to examine how their biases 7
are contributing to negligent care. For years all we have asked is to sit down and develop a plan. We have been denied. This has been allowed. After the some of the last interactions w hospital we (my daughter & I ) have decided that actions steps are necessary to address thus 8
I have filed several federal complaints against @SanfordHealth because her rights are violated and her chronic illness (disability) is not taken serious & rights violated on bias I have reached out to #JACHO #OCR and @WhiteHouseOPE46 & will continue until I know her rights are 9
being addressed and a plan of care is in place that addresses her needs. It’s sad that this happens. @billkinkle & my daughter are not the only ones that deal w this. It’s happens to SO many. #MedicalPersonnel absolutely should be safe & respected BUT #patients also deserve 10
that right.

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More from @purplemamabear

May 20
After years of my daughter receiving care at our local #hospital that is often based on #bias & is often subpar I have begun to reach out to different state agencies. The experiences that my daughter has had to experience over the last several years has been surreal 1/
I’ve attempted many times to engage with #patientservices w various staff in attempts to implement a plan which is based on her needs, recognizes the #medicaltrauma she has experienced & how it impacts her. I’ve attempted to explain how her diabetes works (to the extent I even 2
understand. Type 3 is brittle, it can shoot up or down for numerous reasons. I’ve tried to explain her complications based on her #AITTP but instead assumptions have been made and that what care has been based on. In reviewing her chart it’s truly horrifying their utter lack 3
Read 21 tweets
Apr 30
Thread 🧵: Reflections of a Parent/Caregiver After Six Years Implementation of CDC Guidelines (warning long but I am very interested in feedback)

Since babies, my kids, have intimately known #pain. At one time their #pain was intermittent & #acute. Sadly, they now struggle 1/
#chronicpain & are young adults. Our kids 1st 13/16 years of life, our family had a #safetynet, their #pediatrician. He was highly intelligent, compassionate, he challenged the system & in the most authentic sense #partnered with families. #Pain was not a major concern when 2/
the kids were under his care. The nature of their disease often brought us to the ER & hospitalizations. The hospitalizations resulted due to inability to manage #pain, dehydration, & other issues caused by a flare in their #disease. My husband & I attempted to minimize the 3/
Read 45 tweets
Feb 10
@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/
@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/
@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/
Read 6 tweets
Feb 10
#Criminalization #SocialServices #WeNeedToDoBetter #Trauma
As someone that has worked in the system this infuriates me. I don’t understand how we think criminalization and involvement of #socialservices in this situation will do anything BUT further #traumatize this family. 1/
On FB I read ‘pearl clutching’ comments that this had occurred two times already. We are in a surreal time, most of us trying to get by. I wonder 💭 how many of those making judgmental comments have struggled to access necessary resources and been placed in a situation where 2/
either option ☝🏼 has is concerning. This sister may struggle with immense guilt, same as with the mother, the family may be separated, she may now lose job, more and more #trauma. Wouldn’t it be amazing if instead assistance is provided 2 mom to access necessary resources so 3/
Read 6 tweets
Feb 6
One thing I have seen weaponized against those who are marginalized and have experienced harm at those in positions of ‘leadership’ is the anger expressed. So very easy for #physicians, #researchers, #therapists, #counselors to point to the anger & exclaim ‘see how unbalanced 1/
this person is?’, ‘see how ill they are?’. When people are in positions where they have been harmed, where they have watched loved ones be harmed & it continues re of their voices, of their pleas for help, when those that are ‘suppose’ to help ignore the harms & gaslight 2/
#anger, to me, is a normal response. Yet many professionals use this instead to illustrate how ‘unstable’ a person or community is. NEVER do I condone threats or physical harm to anyone yet I have seen the #gaslighting of a group of or individual that has been viscerally 3
Read 9 tweets
Feb 4
#Physicians in #NorthDakota who speak 🗣 out on need for necessary precautions have been ostracized and dismissed. #NorthDakota lost 3 state health directors in 1st months of the #pandemic. Public health officials have had hands tied. Those who continue to speak out have 1/ Image
received threats from public and discouraged by state officials. Our state has 54% vaccination rate and #masks are optional with very few wearing. The only time our state imposed a #MaskingMandate is when our #hospitals were beyond capacity & Governor & other officials wanted 2/ Image
#nurses to work when #COVID positive if no or mild symptoms. The #ND #Nursing association stepped in & pushed back thus leading Governor to take steps one ☝🏼 of which was #MaskMandate. That lasted relatively shortly & now in #NorthDakota very little precautions taken. 3/
Read 5 tweets

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