What do you love most in life? #LifesShort, so for #ChildrensHospiceWeek we asked children and young people with life-limiting conditions (and their amazing parents) about their very favourite things. This is what they told us... /1
Many love giggles and getting up to mischief
“My son Thomas is non-verbal but is always very happy. He’s known by everyone for his big smile! He giggles in bed in the dark!” /2
“My son Thomas is non-verbal but is always very happy. He’s known by everyone for his big smile! He giggles in bed in the dark!” /2
“Johnathon loves playing pranks – he's a very cheeky character" /3
Lots love listening to music, like Ava
“Music has the ability to get through when nothing else can. When she’s well it excites her...When she’s unwell, it calms and soothes her and takes her away to a safe place where the pain melts away.” /4
“Music has the ability to get through when nothing else can. When she’s well it excites her...When she’s unwell, it calms and soothes her and takes her away to a safe place where the pain melts away.” /4
Just simple things...
“Isabel loves having baths – she’s secretly a mermaid!” /5
“Isabel loves having baths – she’s secretly a mermaid!” /5
Animals are REALLY important
“The first time the carers took Carmela riding I walked round with them, listening to her laughing and squealing with joy and I just cried and cried, tears of happiness. You can’t put a price on that." /6
“The first time the carers took Carmela riding I walked round with them, listening to her laughing and squealing with joy and I just cried and cried, tears of happiness. You can’t put a price on that." /6
Many love just being with their friends, like Holly
“I love going to camp and being part of my girl Guides group. My friends in Guides have taken the time to learn how to communicate with me so I can be just like them. I love being one of the girls.” /7
“I love going to camp and being part of my girl Guides group. My friends in Guides have taken the time to learn how to communicate with me so I can be just like them. I love being one of the girls.” /7
EVERYONE loves spending time with family - like Lucy and Logan
“My mum and I take time just to be together.”
“He just loves being in the middle of his bonkers family” /8
“My mum and I take time just to be together.”
“He just loves being in the middle of his bonkers family” /8
And some children, well they just love to hop! /9
So what’s it all about? It’s giggling in the dark, being one of the girls & hanging out with your bonkers family! RT this thread to show your support for the vital services creating #LifesShort moments for the 49000 seriously ill children across the UK #ChildrensHospiceWeek /Ends
