, 13 tweets, 4 min read Read on Twitter
I have read through the comments on this thread and seen so many joking about this! Have seen people ask the thread owner to park well! What I say is simple, don't bring a child here to go through what I have gone through for 33 years! Am moved to tell my story a bit!
I don't like the life I have to live under rules, treat malaria every month, filter out certain meals, cant do certain sports, cant swim, the room you sleep in must not be too cold or too hot, drugs on daily basis, antibiotics every now and then to keep infections away, consume
over 6-8 litres of water daily, Pain killers every now and then, I cant even talk about the cost of bringing up such children. First quarter of 2019 alone, spent over 780k on drugs and that should be running out by June, this excludes frequent malaria treatment &healthy eating!
The day of my birth could have been the day of my death because I had a PCV(Packed cell volume)of 0.5%, body was lifeless and doctors gave up!My mum never knew how I survived after I was left to die! the ride for 33 years has been rough, very rough, cannot remember a year I did
not visit the hospital! My worst experience was back in secondary school carrying leg ulcers from JSS2-SS3 and having to write all my exams going through that trauma and pain! Lived through every bit of those years! but you know what? Have seen some of the most positive and
Smartest people Living with this condition including myself! Graduated top in my class and backed a First class from a London university, in spite of all the challenges I run this company (nugitech.com) and have built some very great products along the way!
I am married to this wonderful lady @Salbery and she loves me for everything I stand for and cares just like my mum did from 0-28 years! If you're already living with these condition, I salute you!, you're a true warrior and MVP!
If you Love someone and wish to marry them, please check the genotype, watching those children in pain could be the worst experience ever for anyone, I salute my parents because the journey wasn't easy at all, especially my mum who did not give up on my brother and I.
You have children that are sickle cell? don't ever give up on them because they are the true warriors, have a friend or a love one living with the condition? encourage them and be by them! I have come to see life differently, truth be told, we all die one day,
Could be anything at all not just Sickle Cell, have seen people say they cannot marry anyone with SS even if they are AA, so who will marry and care for them because they have feelings just like every other person. We all do have very short time here on earth,
For me, its all about what I can do to effect the changes I want to see in society, aggressively pursued courses that help drive the necessary impact on society. And prepared to leave when the call comes, the best strength for me is realising that some day I wont be here
And working hard to make every minute count. When I get up each day and don't have a single pain, I thank God for another opportunity to do something great! Spread the awareness about Sickle Cell because so many people still don't know about this! #sicklecell #Warriors
Just to add that I lost my only sister in 2001, she was sickle cell but died in the cruel hands of a doctor who was testing a new drug out! Drug turned her liver into fluid and she died! I know all the drugs I take and all I don't take! It's a survival strategy since that time!
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