SOLUTIONS TO hEDS & HSD
December 13, 2019; see my thread below:
December 13, 2019; see my thread below:
The genetics of hEDS & HSD cannot be altered at this time. Perhaps future gene editing & therapies like phage/viral gene insertions will be possible, but science fiction at this point. For now, penetrance is what it is. But all is not lost:
IMO, the arch enemy of tissue variations like those of hEDS & HSD, is gravity. On the moon, people with these tissue variations would be super-humans. Is this a clue to solutions to pain & suffering? Perhaps.
What would I do if I had these tissue challenges? First off, I would try to use the model of the massive & strong shark, which has no bones to break.
The joints & skeleton of the shark consists of cartilage activated by muscles. Initially, I would don a wetsuit & spend a good part of my therapeutic day in a deep warm water pool.
Movements within this environment would stiffen my muscles compared to rest-from-pain (weak muscles) that seduces me when land-bound. Increased soft tissue tone would help to better support my upright body tower on land.
While in the water environment, I would pursue specific exercises of resistance of muscle groups that provide for stability of upright posture of the body tower.
The upright body tower is supported, in major part, by all leg muscles, Transversus abdominis, Rectus abdominis, Superior & Inferior trapezium, Scalenus anticus, & Sternoclidomastoids.
The exercises in water to develop these muscles are easily organized into an exercise program. They are NOT the same exercises for these muscles as on land.
In a water environment, even muscles of shoulder, hip & fingers can be given attention without causing subluxations. It is not only muscles that are being attended here; also ligaments, tendons & myofascia.
At night, I would seek rest & respite sleeping in as great a gravity-free environment as I could muster. This would be a flotation tank.
The flotation tank would be a special one where my skin were separated from the magnesium dense water by a space-age sheet that were ultimately flexible, elastic, & dry. A short daytime dip into the water might also be therapeutic.
If the pelvic platform were loose (common) due to loss of full tethering strength of sacroiliac joint (SIJ) ligaments (attendant with chronic low back pain) which is measurable (see my writings), then an SIJ belt might be worn (see below).
SIJ dysfunction is common in Fibromyalgia. See my publications at the 10th Interdisciplinary World Congress on Low Back & Pelvis Pain; late October 2019 in Belgium. These publications are on-line.
Absent a stable pelvic girdle platform, the body is potentially stationed to develop Fibromyalgia. My papers announced the multifactorial causes of Fibromyalgia.
Unfortunately, the best SIJ belt has not yet been invented, & that will wait upon my own investment in money, time, & ideas & inventions that only exist in my mind & drawings at this point.
Natural non-toxic stem cell Prolotherapy to the SIJ is, in my estimation, a potential therapeutic boon to chronic low back pain of Fibromyalgia, which is highly associated with hEDS & HSD.
Efforts would be well spent to reduce body mass. The easiest way to do this is a serious ketogenic diet. Fat shaming is not an issue here; happy survival is. Body mass must be lean to minimize gravity assault upon upright body tower.
Nutrition has other variables that could benefit. The raw substances that are used to generate soft tissues (muscles tendons, ligaments, & cartilage) are desired.
Regular use of bone soup & essential minerals & vitamins involved in soft tissue growth should be maximized by Orthomolecular means. Consumption of palatable tasty ground up shark might be a condiment on my dinner table.
Attention needs to be provided to means of maximizing cellular ATP, & Ribose & Niacin-inducing molecules have a place in such a nutritional program.
Oxygen empowers all the energy-producing cellular activities, & a portable inexpensive plastic hyperbaric oxygen chamber exists & might become a daily several-tens-of-minutes per day event.
A super way to promote healthy robust tissue growth would be to suffuse the body with natural growth hormone (GH) delivered systemically & gently (low dose) so that it is absorbed in ways that mimic nature.
Injections of GH are dangerous, too potent, & disproven. GH should not be expose to peptide digestion within upper intestine because there it is simply destroyed.
Ingestion of GH precursors has been, to my knowledge, never been proven. The GH molecule is highly conserved in trans-mammalian species. We have the same molecule as goat, cow, rabbit, & etc.
There is an easy way to suffuse low dose GH, but it has not been tried outside my scientific investigations & mental inventions.
There is also an inexpensive & easy way to extract functional growth hormone from nature, but unfortunately this has not yet been demonstrated.
Methods of natural GH extraction & purification do not exist outside of my own mental inventions & scientific studies. The research is easy, but prototypic methods are time consuming & expensive.
The above described therapies are the ones that impress me as most important. There are others.
A person who were to pursue the natural therapies I have described would be less pained, less prone to joint subluxations, more rested, & less depressed.
People who are developing indoor invalid sedentary lifestyles need a systems approach to reversing multiple factors & etiologies that lead to Fibromyalgia. I have detailed these factors in many of my writings.
It is my speculation that Fibromyalgia is a precursor to ME/CFS. I believe that these diagnostic labels might reside along a continuum, but I have no proof of this. Someone should study this idea.
What is needed by people with hEDS/HSD, or whatever committee-designed label people want to apply, is a “Manhattan Project” holistic program of the sort that I am describing.
The symptoms & dysfunctions associated with suffering of these tissue variations are measurable.
If the efforts I describe are efficacious, then benefits are measurable. Solutions to these problems require system approaches.
A problem is that our modern day clinicians are missing the forest for the trees. Continuing to look for viruses & molecular monkey wrenches should not be aborted, but something else needs to be tried.
Unfortunately, modern clinical sciences ignore system-wide therapies which are not dramatic & specifically biochemical. Individual methods of the kind I describe are relatively inexpensive, non-complex, & natural. Therefore, “Uninteresting”
Medical scientists have looked at some of these natural nutritional therapies and studied them individually & deemed them “unproven”. That is not a systems approach.
As a result of these above described clinical prejudices, we tend to end up with therapies that are synthetic and toxic. I do not see this changing any time soon. END
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