1/7 Intense lobbying of @ONC_HealthIT information blocking API rules is not about patients. It’s about money. #Surprise Patient records are very valuable for analytics, machine learning, AI, insurance methods, narrow networks, quality measures, value-based payments...
@ONC_HealthIT 2/7 The lobbies are desperate to keep (@EHRAssociation
) or get (@carinalliance
) access to the records in transit. If patients and doctors can bypass either of them when using the API then surveillance capitalists will need explicit consent to access patient data.
) or get (@carinalliance
) access to the records in transit. If patients and doctors can bypass either of them when using the API then surveillance capitalists will need explicit consent to access patient data.
@ONC_HealthIT @EHRAssociation @carinalliance 3/7 Consider what would happen if the 21C Cures mandated API worked like US Mail, or Fax, or secure email. (1) Patients, not data brokers, would decide who has access to the API. (2) Patients, not data brokers, would judge the privacy practices. Real competition not paternalism.
@ONC_HealthIT @EHRAssociation @carinalliance 4/7 @carinalliance
is promoting a “code of conduct” to convince @ONC_HealthIT
and patients that they are dealing with the safety and monetization issues.... Who would enforce the code of conduct? What privacy laws would apply?
is promoting a “code of conduct” to convince @ONC_HealthIT
and patients that they are dealing with the safety and monetization issues.... Who would enforce the code of conduct? What privacy laws would apply?
@ONC_HealthIT @EHRAssociation @carinalliance 5/7 Even if enforcement was practical, new consent-based clinical practice innovation would be subject to the consumer app platforms as gatekeepers. Our privacy laws that control @Facebook and @Google are a mess by any measure. nytimes.com/2020/01/24/opi…
@ONC_HealthIT @EHRAssociation @carinalliance @Facebook @Google 6/7 Truly patient-directed APIs would enable real practice innovation and might actually bend the cost curve that is now wasting $1 Trillion / year. Patient-directed access to the API should not add poorly regulated and immensely rich platform lobbies to the mix.
@ONC_HealthIT @EHRAssociation @carinalliance @Facebook @Google 7/7 @ONC_HealthIT, PLEASE, we patients don’t have a lobby. You are our hope. 21C Cures gives you the power to enable real practice innovation rather than cave to surveillance capitalists. Looking forward to the healthit.gov/news/events/20… #realpatientcontrol @patientptivacy
