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Jennifer Brea
@jenbrea
, 3 tweets, 2 min read Read on Twitter
#DisabledTwitter please consider watching Voices from the Shadows, a UK documentary about patients being forced into Dr. Sherry-style graded exercise programs. My community has been shouting about this abuse for years, largely into the void: vimeo.com/ondemand/22513 #mecfs
There is a free code to watch the film. It’s harrowing. Proceed with care if you are a victim of medical abuse. Some of the stories are too shocking to believe but I am sure those within the community will have no trouble believing them.
And if you were outraged by NPR’s coverage of a barbaric chronic pain treatment, please consider amplifying the voices of people with #mecfs who are still fighting coerced/forced treatment and forced institutionalization. It is all the same fight.
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More from @jenbrea see all

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Jennifer Brea
@jenbrea
So many parallels to #pwme in Europe forced into graded exercise. Push people past their limits, then give a form of CBT to disabuse of them of the “false belief” that exertion is killing them. Here, put teens in pain in more pain and then forbid them from talking about pain.
Here is the original piece. This should always be a warning sign: “It mostly affects girls, though a small number of the cases are in boys” that we are about to see failure to diagnose lead to psychologization and medical abuse.
Doctor: “American medicine now routinely asks patients to rate their pain on a scale of 1 to 10, and treats it like an emergency, [this] has led to more pain in our society”
Read 16 tweets
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Jennifer Brea
@jenbrea
From the annals of things we used to know and completely forgot about. I just got tested for serum carnitine for the first time. I don’t know how this never happened before, but I was clearly deficient, am now taking levocarnitine and noticed immediate improvements.
Oh look, three studies from 1994-1995 on low serum carnitine in #mecfs: me-pedia.org/wiki/Carnitine Not enough science to start digging deeper and helping people feel better my ass @nihdirector.
Before we find “the biomarker” (how many diseases don’t have this and yet get on their merry way regardless) how about a consensus on what tests we should be running on everyone such that we can at least be symptomatically treating what is commonly and measurably wrong?
Read 5 tweets
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Jennifer Brea
@jenbrea
This study looked at 270 people with #fibro, a condition that receives even less funding than #mecfs and is still ridiculed by many MDs. 46% had spinal stenosis and 20% had Chiari malformation!! #Nightingales link.springer.com/article/10.100…
The authors conclude: “We recommend detailed neurological evaluation of patients with #fibromyalgia in order to exclude cervical myelopathy, a potentially treatable condition.” #Nightingales
There is a strong case right here that medicine is massively failing these patients by denying access to diagnosis and care *that it is already quite capable of providing.* #Nightingales
Read 11 tweets

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Tanya 수정 Tarr is at SXSW
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[Thread] Here’s an example of how misinformation can spread online, and then find its way into the traditional media… /1
On December 10th, UN member states are due to adopt the new Global Compact for Migration - a non-binding agreement which endorses the principle that governments should stop funding media that fuel racism & xenophobia. You can find the full text here: refugeesmigrants.un.org/sites/default/… /2
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John O'Brennan
@JohnOBrennan2
Theresa May’s letter to the UK.I’m sorry to say I think it is full of falsehoods about the Brexit Deal, and what kind of future UK faces. I’m going to catalogue the fakeshiods in a thread.First, “we will take back control over our borders”. UK NEVER lost control over borders. 1
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Roo Bernascone♿🌈
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While I'm waiting for someone I'm going to entertain y'all with some #tarot facts and fun oracle/fortune tidbits I've learned over the years

This thread will have pick up and die down as needed but hope you enjoy (DM for card reading info)

Okay first things first the origins of #tarot are widely disputed.

Some claim ancient Egypt others Asia while others still claim europe.

With all these different claims to it then it's no surprise that there are multiple kinds of decks.
Here's some of the most common #tarot types that I'm aware of although I'd love to know more.

- italo-portuguese or Tarocco Siciliano it's a 64 card deck and none of the cards have reversed meanings.
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Malarăsculat
@caselchris1
#Dalitwomen are most often victims/survivors of sexual abuse, including of those that are not always legally identified as crimes. And the law has failed us. Progressive communities haven’t responded adequately either. It has been a lonely battle and will continue to be so.
Stories of sexual abuse, especially those that name Dalit men, are therefore uniquely triggering for us. We stand by the survivors, like we all need to, unequivocally, because we are victims ourselves.
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Public Health Wales
@PublicHealthW
We’re running a live Outbreak Control exercise w reps from @RCTCouncil @swpolice @WelshGovernment @CV_UHB @CwmTaf @H_S_E & PHW! #WPHC17
This exercise is live and unscripted - a demonstration of the serious and immediate nature of high-risk public health scenarios. #WPHC17
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