The journey in between led to this thread. It is difficult to write and I expect for some it will be hard to read, but here goes
Rain fell gently on my head. Blood rushed swiftly from my head to my hands, jeans and the street. I've bled a lot before so I didn't panic. Instead, I kept thinking, "I can't do this."
They called 911.
They brought out a first aid kit.
And one even put on the gloves and started trying to clear the long y-shaped cut on the back of my head as we waited for the ambulance.
The EMTs took my phone away, strapped me into a stretcher and drove to the hospital where I went to the acute ward because the bleeding would not stop.
It took me a day to answer that question honestly. Here it is:
I am shaken as yesterday was a visceral reminder of my own mortality. I live with daily reminders of this thanks to ALS, but my progression has been slower. So I can compartmentalize death, overlay it with the urgency of our fight to live.
From the day we are born to the day we die, we seek out community.
All, however, make us part of something greater than ourselves.
They allow us to transcend our mortality. They allow us to leave our mark on others. They inspire us, drive us, and pick us up when we fall.
From the moment I fell through me sitting here typing this thread, the concentric ring of communities that I am privileged to be a part of picked me up, dusted me off, dried my tears, and gave me a visceral reminder that we never walk alone.
I didn't in the hopes that the reminder that though life is not a straight line we never walk alone could help someone today. Could inspire someone new to join our fight.
On our own, we are fragile. Together, we are strong and capable of amazing things. Thank you for reminding me of that. ❤️
We started this journey alone and in tears.
The tears are still with us, but the sense of isolation has been replaced.
Thank you for this gift, for your courage, for leaning in to end ALS, AZ, PD and beyond. #StayAmazing