#Pain comes in all shapes & sizes. Let’s explore how we process pain. Watch & Listen to what Anderson Cooper tells Stephen Colbert about #grief and #suffering: “You can’t have happiness without having loss and suffering.”
2/ My lucid & kind patient (pic w written perm) uses scalding water as a coping mechanism for abdominal pain from pancreatitis. He wants to share his rationale.
3/ Before I share what he told me, I first want to make my mindset as his #physician clear: My first job is to believe in him. Then to understand him. Then to devise a plan to help him.
4/ This is a young man with 10 years of idiopathic pancreatitis, which means inflammation of the pancreas from an unknown cause. He didn’t cause it, and there’s no cure. It causes real and immense pain in his belly. He says, “Doc, I know it doesn’t make any sense, but…”
5/ “When you dive down into the type of pain I get, you don’t know when you’ll be able to resurface. It could be a day, a week, or even a month. So we got a special water heater that allows me to stay in the shower at times for over 24 hours.” The water temp is 120 degrees!
6/ Why? “It allows me to avoid coming to the hospital for pain medications and admission. They just call me a drug seeker there anyway. When I’m under the water, it’s the only thing that immediately reduces my #suffering. I know it doesn’t make any sense.”
7/ I reassured him, “Well, it doesn’t make sense to anyone but you! But to you it does. So we need to focus on that and determine a way to help you avoid 5% to 10% body surface area 1st & 2nd degree burns that put you at such high risk for infections & other medical problems.”
8/ “Doctor, I’ve seen #psychiatry. I know this is a coping mechanism like cutting and one used by people with OCD, but I don’t meet those diagnostic criteria. Can you help me? I do want to stay safe.”
9/ He came in w profound electrolyte abnormalities that we are fixing. Now we embark on this journey w him. The important thing is to establish a covenant in which he knows there is no judgment & 100% impetus to help him. That’s where we started…
10/ “The sorrow which has no vent in tears may make other organs weep.” Henry Maudsley
Dr. Maudsley was a famous British psychiatrist who influenced #CharlesDarwin. They met & #Darwin studied Maudsley’s lecture on “Body & Mind,” correctly citing Alcoholism as an inherited dz.
11/ Maudsley’s quote above is 🔑.
Our pain must “come out” somewhere! It must be processed. Mental or physical, it doesn’t matter. Like pus in an abscess, it must be drained. One of my goals as a physician is to help my patients find that outlet & path for drainage & #healing.
12/ 🎥 “Drainage” (processing) of pain and suffering is a pathway to peace. In this moving 20 min interview that I recommend you watch, Cooper and Colbert unpack grief.
13/fin
I do not believe suffering is a good in itself, but I do believe my pts’ paths through it must be respected and are a deep part of my journey with them at the bedside. Diving into their chaos teaches me and I hope helps them in the process. It is immensely humbling.
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2/ The #vaccine, heralded as a panacea to the pandemic, risks further weakening adherence to other safety measures like social distancing & masks 😷. When people respond to safety measures with a compensatory ⬆️ in risky behavior, it’s called the “Peltzman Effect.”
3/ Example: medications allowing HIV preexposure prophylaxis (PrEP) dramatically lessened risk for HIV transmission AND were associated with decreased use of condoms, higher numbers of sexual partners, & more STDs. 😤
#COVID19 ICU pts & #LongCOVID survivors tell me they wanted to get #Vaccinated but had immense pressure from family/friends NOT to…All but 1 said, “I should have protected myself & stayed safe.”
What’s our best approach? Read👇
2/ A significant portion of Skilled Nursing Facility (SNF) Staff remain #unvaccinated. Early data: bit.ly/3gOdSLi. Reasons include mistrust of govt & big pharma, potential side effects, and racism. Staff’s close contact w pts makes it essential to study their reasoning.
3/ N=193 staff from 63 Skilled Nursing Facilities (SNFs) were studied. The best way to overcome misinformation on #Vaccination from social media is to model specific scenarios & prepare positive approaches, NOT guilt or shaming. Let’s look at specifics…
This study of N=385 ICU pts tested a Tyrosine-Kinase Inhibitor vs. Plac for 9 days. It’s important because it did NOT decrease ventilator or oxygen needs BUT reduced death at 28 days. What does this mean?
2/ This study is technically “negative” because it didn’t hit the primary endpoint scientists “guessed” ahead of time as best choice to see if the drug works in #COVID: time to stopping ventilation & O2. Importantly, we sometimes GUESS WRONG! Next let’s look at other endpoints!
3/ This drug stops lung & blood vessel membranes from going haywire. It did not have safety problems & decreased DEATHS by ~50%, TIME on VENT by 5 days, length of ICU stay a WEEK, #delirium by 5%. These are huge improvements that I would want if I had #COVID. ( Fig 2, Tab 2/3)
1/ 🎥🧵 How do we test someone for #delirium in #COVID19 or any ICU? When someone won’t engage it can be a huge red-flag for “quiet” delirium, which predicts 3X ⬆️ #DEATH by 6 mo & acquired #dementia. Watch this movie of me testing pt #1 for delirium.
2/ What does this mean? He starts out OK but then can’t follow my command to squeeze only on the letter A. Instead, he squeezes when I say the word “squeeze” & doesn’t relax his grip or vary it on different letters. This is inattention & a cardinal feature of #Delirium.
3/ 🎥 Contrast Pt 1 with this Pt 2 video of me doing the same test. This person had delirium on earlier days & is now improving. He gets 8/10 correct responses, which means he’s attentive and not delirious any more. This day he walked & talked for the 1st time!
1/🧵 🎥
This week I met an extraordinary #COVID19 survivor who lost both hands, both feet & the tip of her tongue. @ccquad was featured on BBC as WINNER of the Queen’s MBE (Member of British Empire) award. Listen to her #Wisdom & teaching point on #Vaccination.
2/ @ccquad reached out to my #COVID patient, Autumn, who is now also losing her hands + feet & keeps asking me to share her story so all can learn. She went completely deaf as part of her viral sepsis & blood clotting. Her hearing is back & she’s getting koala prosthetics…🎥
3/ Watching these 2 powerful women meet and share their drive & passion is a major gift to me. They define #resilience. Rebooting life & finding the best way forward regardless of obstacles. Here is what Autumn told @ccquad… “I live freely. I live one day at a time…”
1/🧵 I’d like to think as a medical community that we have changed & no longer discharge people w/out appropriate follow-up, but just last week I met a #COVID19 survivor who was discharged from the ICU simply to follow up w his primary care physician.
2/ He couldn’t return to his job, was fired & had no income for his family. That resulted in him not having enough money for medications, gas, or bills. He missed his doctor’s appointment, his electricity was turned off, so he is unable to apply online for disability. 😤
3/ The cycle continues. I usually see these pts when they get septic again & end up back in my ICU on life support.