Thread by @MightyCasey

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd So much truth - IMO this flip to consumerism WITHOUT full participation of both clinical experts and patient community leaders in creating health literacy resources for humans is root cause of much "I did my own research" nonsense now driving medical misinformation online.

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd What I mean by that is "the academy" (in this instance the @AmerMedicalAssn who I give fish-eye to on the regular over their K St lobbying in service of status quo in US healthcare spend, but I digress) has missed eleventy-million-and-five opportunities to ... /2

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn Team up with patient community leaders savvy in comms, community organizing, and *science* to build health literacy resources that can be deployed all over ever'where to help humans be prepared to made decisions about their/their families' health. /3

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn Along with all the other glaring gaps - chasms, really - that the pandemic has made fully visible is our truly woeful track record on K-12 science education. Part of our (US's) defunding over past 40+ yrs of public education, but again ... I digress. /4

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn So @AmerMedicalAssn has beaucoup bucks, as do its subsidiary crews, specialists and clinical care delivery systems. Maybe they could figure out funding that includes budget $$ to hire patient community leaders to frame/build public health campaigns to drive science-savvy? /5

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn It's not like this is new idea for me. Wrote this for @S4PM blog five years ago, still stand by every word. /6
participatorymedicine.org/2016/everythin…

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn @S4PM So what say you @AmerMedicalAssn, other big-budget orgs in clinical zone? Howzabout you fund some of this? Reach out into underserved communities, too, since this is HUGE opportunity to build trust along with health literacy. Who's in on #PatientsIncluded for #HealthLiteracy? /7

@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn @S4PM Clock
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#healthliteracy #science #s4pm #patientsincluded #BeLikeLight #gmdd #scicomm #healthpolicy #healthcare #epatient #publichealth
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