Thread by @MightyCasey

You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights

First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights

F'rinstance, this: wired.com/story/how-a-me… #MeToo #TimesUp #HDPalooza #cyberwoke

And then there's this, wherein @BraveBosom with @fredtrotter's super-hacktivist superpowers unmasked #epatient data privacy betrayal by FB in Closed Groups: cnbc.com/2018/07/11/fac… #cyberwoke #HDPalooza #dataprivacy #humanrights

There's been intrigue, deep conversations in secure comms channels, we might even need DECODER RINGS! In all of it, the risk to #healthdata privacy on Facebook has been clear: patreon.com/posts/facebook… #cyberwoke #HDPalooza #humanrights #datarights

Rather than just scream about problems, tho, our intrepid team of geeks with soul (again HT @BraveBosom + @fredtrotter) OFFERED A PATH TO A SOLUTION: missingconsent.org #cyberwoke #HDPalooza #humanrights #dataprivacy #epatient

SH*T'S GETTING REAL! theverge.com/2019/2/18/1822… #HDPalooza #cyberwoke #epatient

OMG GUYS, A CONGRESSIONAL COMMITTEE WOKE UP! energycommerce.house.gov/sites/democrat… #cyberwoke #HDPalooza #epatient #datarights #humanrights

Story is still breaking/unfolding. Definitely plan to be at #HDPalooza for our #cyberwoke panel discussion "Nothing about Us without Us: Toward Collective Self-Governance of Patient Support Groups' Data on Social Media" academyhealth.confex.com/academyhealth/… #epatient #datarights

And also at #HDPalooza, there will be a #cyberwoke unconference session to start tackling SOLUTIONS for #epatients and others who want to build community, data governance, data privacy WITHOUT being "the product, not the customer" in the #dataeconomy

SEE YOU AT HEALTH DATAPALOOZA!! academyhealth.org/events/site/20… #HDPalooza #cyberwoke #epatient #datarights #dataeconomy #opennotes #gmdd #s4pm #rightcare

cc @ePatientDave @VentureValkyrie @wilbanks @DrSimpsonHSR @ReginaHolliday @stales @RasuShrestha @KelseyMellard @MandiBPro @nickisnpdx @JodiDaniel @emilykg1 @Doug_Lind_Say #cyberwoke #HDPalooza #epatient