@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/
@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/
@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/
@ibdgirl76 in some cases. When a person is in vulnerable position, they seek help, they are already terrified. When #patients met w dismissal of concerns, imposed treatment regime, dx that dismisses concerns, apathy, poor care, stigma, bias based care, cruelty etc. w no 4/
@ibdgirl76 ability to have their #voice heard & issues addressed it’s a highly combustible situation. AGAIN I am not condoning threats, violence, name calling of #medicalpersonnel. They deserve to feel safe BUT #patients & #caregivers do also. There is a HUGE safety issue imho 5/
@ibdgirl76 for both medical personnel & patients. This issue is both systematic as well as at Ind level. It needs to be addressed, unfortunately I only see it being addressed to some degree on one side. 6/
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