One thing I have seen weaponized against those who are marginalized and have experienced harm at those in positions of ‘leadership’ is the anger expressed. So very easy for #physicians, #researchers, #therapists, #counselors to point to the anger & exclaim ‘see how unbalanced 1/
this person is?’, ‘see how ill they are?’. When people are in positions where they have been harmed, where they have watched loved ones be harmed & it continues re of their voices, of their pleas for help, when those that are ‘suppose’ to help ignore the harms & gaslight 2/
#anger, to me, is a normal response. Yet many professionals use this instead to illustrate how ‘unstable’ a person or community is. NEVER do I condone threats or physical harm to anyone yet I have seen the #gaslighting of a group of or individual that has been viscerally 3
harmed continue to be marginalized & harm when screaming for help. The scenario I always use is of an individual yelling for help in the middle of turbulent water on a life raft. Their pleas for help are met by harpoons being thrown at the life boat, no true help being given 4/
IF you are in any position of authority, IF you are involved in any position involving a group of people, YOU must be opened to feedback, you must be willing to self reflect & look at how system issues impact people. IF you cannot do this, you have no business in those 5/
positions. We are ALL humans, mistakes will be made BUT those who dismiss voices, who are unwilling to reflect & examine systematic harms need to remove themselves from their work. I KNOW there are many in these positions that do have the ability to self reflect, to examine 6
& acknowledge system harms and DO raise their #voices & for that I am thankful. The utilization of this strategy to dismiss inds or groups is common I believe. I have seen it play out on Twitter. Again, I do NOT believe in #threats or harm of anyone but this needs to stop 🛑 7/
The colleagues of those who do this must speak out about the harms it causes and the ethical issues this cause. I’ve been in field for years, I’ve made mistakes, but never will I dismiss peoples concerns, their #voices. I will continue to try to be cognizant of systematic 8/
issues that have potential to cause harm or is causing harm. I have always raised my voice regardless of the personal risks to myself. Realize, harm can originate from ‘help’ 9/

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More from @purplemamabear

Feb 4
#Physicians in #NorthDakota who speak 🗣 out on need for necessary precautions have been ostracized and dismissed. #NorthDakota lost 3 state health directors in 1st months of the #pandemic. Public health officials have had hands tied. Those who continue to speak out have 1/ Image
received threats from public and discouraged by state officials. Our state has 54% vaccination rate and #masks are optional with very few wearing. The only time our state imposed a #MaskingMandate is when our #hospitals were beyond capacity & Governor & other officials wanted 2/ Image
#nurses to work when #COVID positive if no or mild symptoms. The #ND #Nursing association stepped in & pushed back thus leading Governor to take steps one ☝🏼 of which was #MaskMandate. That lasted relatively shortly & now in #NorthDakota very little precautions taken. 3/
Read 5 tweets
Oct 24, 2021
Dear @OptumRx & @SanfordHealth you are NOT his #physician. You know nothing of his #health hx. Two years ago #Sanford #Bismarck #pain clinic pulled all #patients off #opioid #pain medications. This was not #patientcentered care, but care deemed appropriate BY administrators 1
Now @OptumRx & @SanfordHealth #insurance sending out letters re #opioid #pain #medications. My son had to move from a #Sanford clinic to another clinic due to #abandonment. Yep, abandonment. Plain & simple what you did was harmful & not based on #patients needs. You need 2
to look at research, that shows the harms of what u r doing. @SanfordHealth administration in Bismarck informed me 2 years ago when all #patients pulled off #opioids that it was the ‘national standard’ of care established by @CDCInjury @CDCDirector. The guidelines are NOT 3/
Read 9 tweets
Oct 22, 2021
Um absolutely adore this thread! I must read for #NEISvoid #CPP #RareDisease. My kids experienced much of what is mentioned in thread. 1st they have a rare disease, 2nd had a rare medical procedure to try to address symptoms, it caused complications. My kids now have T3 1/
the ‘care’ they receive has often been #traumatic as they don’t fit nicely into a box 📦. It’s because of their experiences (& my husbands) that I advocate. As young adults they still have to interact w the #healthcare industry but they are distrustful ( & rightly so). So many 2/
Physicians do not understand #medicaltrauma & their roles in it. I know it’s hard to be a #physician today, I know it’s hard to be in #healthcare but to dismiss, shame & blame a #patient is harmful not only psychologically but physically. 3/
Read 4 tweets
Oct 22, 2021
I know that there are #patient advocates that take issue with @BethDarnall work but I find it critical. I know many individuals in my community that have wanted to decrease their opioids or get off all together for various reasons. Listening to their stories are frightening. 1/
What I don’t condone, is #physicians & #antiopioid proponents utilizing work done such as @BethDarnall or other psychologist that work in the area of #pain to be dismissive of those with #acute or #chronicpain. Sadly, this occurs all too often and has caused a distrust by 2/
those with #acute or #chronic pain. I believe that we need a wide variety of options. I believe that care should be individualized. That this is often not occurring is NOT the fault of those working to provide options. Those in the field that dismiss patients by saying #pain 3/
Read 5 tweets
Oct 21, 2021
Warning ⚠️ ⚠️ I AM snarky. I get that we have an individual responsibility for our health. I get that but articles & comments as below definitely get my snark up. My kids have T3 #diabetes which is unbelievably difficult to control & truly cannot be controlled with #diet. 1/ ImageImage
furthermore inds present differently with T1 & T2. My nephew’s bs actually skyrocketed when playing basketball - a sport he loved and was good at. #Diabetes is hard to manage & costly. Furthermore there has been research highlighting harms of a restrictive diet particularly on 2/
children/youth. Articles such as this & statements such as this seems very flippant and NOT #patientcentric at ALL. We also have a greedy #pharmaceutical industry that needs to be held in check & they are NOT. There is no reason why the cost of #insulin has #skyrocketed. 3/
Read 5 tweets
Sep 13, 2021
#PathologizingPain
#ChronicPain is the most prevalent health issue for Americans, yet, there is a lack of acknowledgment of the impact of pain on individuals QoL as well as access to quality options available. The last several years we have seen a proliferation of 1/
psychological strategies be touted as solutions for both #chronicpain & #acutepain. This has been fostered by the #CDC guidelines as well as various independent groups. As an individual who works in the area of mental health I am alarmed at the amount of #gaslighting that 2/
to those with #chronicpain & the belief by many physicians & professionals that psychological strategies will alleviate #chronicpain as a stand-alone strategy. I DO believe that psychological strategies CAN be of benefit addressing pain, but, how #pain is being #pathologized 3/
Read 11 tweets

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