I am sympathetic to #medical professionals as well as to #MentalHealth providers, however, IF you have uttered ☝🏼 of following statements or engaged in ☝🏼 of following behaviors you may want to reassess your #profession:
- ‘I am sorry you are to complex, complicated, we 1
can’t help you’
-‘You don’t want help bc you did not do x, y, or z’
-If you are unable to truly #Listen
-If you are unwilling to continually assess if you are negatively impacting situation
-If you use manipulation
-If you feel person & or family should not have #voice in 2
planning - it should be central.
-If you are unable to discuss difficult topics/concern w person & or family.
-If you make assumptions
-If you are unwilling to collaborate with others that support/provide care to person/family
-If you say ☝🏼 thing to person & or family & 3
another to #TeamMembers when person/family not present.
-If you #joke about a person & or family (sorry I don’t buy the argument ‘Need to laugh because we have stressful job’). Nope. Never violate a persons #dignity
We all make mistakes. Yet, if you do any of the above 👆🏻 4
Care for those in #pain often infuriates me because they get very little, none and often labeled. There may be pockets where actual quality care occurs but more often than not I hear stories of #trauma. #HereditaryPancreatitis is a very painful disease. I have watched all my 1
family members struggle with this. It’s gut wrenching. It’s hard for adults but watching a child in such pain is indescribable 💔. I regularly talk to parents or am contacted by parents who are struggling to access pain care for their child with pancreatitis. Just heard from 2
a parent whose child with #hereditarypancreatitis - who is a toddler - NOT joking - was labeled a #drugseeker. Those were the words the mom stated the physician used. A #drugseeker at three. We need access & better quality of care. This only layers trauma on child & family. 3
I just want to let out my frustrations w the #healthcare system & how assembly healthcare does NOT work. I think back about programs my kids went to. One being a renowned #painprogram. My focus was to assist in developing tools they could utilize in life to deal w #chronicpain 1
& their #illnesses. I wanted a #balance, I wanted a plan that was based on their individual needs. Their #pediatrician at 1st stated she had concerns w #program & not an #option for them. The #clinic called #pediatrician back saying they’d modify it for my kids. There really 2
were not a lot of options. The program promised individual care so off we went.
Nope started #titrating all #painmeds to align w time of #program vs Ind need. Then denied my daughter right to go to walk in #clinic when she was having issues saying this is what youth did 3
Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
her of ‘stashing’ #Insulin in room. All visitors searched. No items in room unless searched - camera in room 24/7 YET she is accused of injecting #Insulin. My daughter again attempted to educate on post #TPAIT. After additional days, the #Diabetic#Counselor came back & 2
#apologized acknowledging how hard it was to control her #diabetes. It’s hard control when she is at #Baseline but if she is sick nightmare. That #apology meant the world 🌎 to my daughter. She continued to work w this #counselor throughout stay & after. YET #PatientRelations 3
#Pain is nuanced
The difficulty with articles such as below example, is nuances not recognized.
For example, I could identify as someone with #chronicPain I have a few conditions that are accompanied by #pain.
My #pain is NOT unrelenting, it’s there ‘hovering’ in the 1
background. I do #yoga 🧘♂️ & #meditation & for ME, for the #pain I experience, it provides benefit.
However, take my kids; NASH, kidney disease, gastroperisis, T3, scar tissue neuropathy etc. #mindfullness#meditation is not going even touch it. Not in anyway
2 example of 2
#pain experiences.
It’s understandable that many in nation that are not in #medical profession struggle w the #nuances
What I struggle w & what I believe #harms those w #ChronicPain is the generalization of #pain by #medicalprofessionals & lack of individualizing care based 3