Thread by @kurteichenwald

1. It is time for the #epilepsy community to get mad, to organize, the fight back. We remain the second-most stigmatized people with a disease. (Mental illness is first.) Even with control, we have three times the average unemployment rate. We are driven from schools, we lose...

2...our friends, we are called cruel nicknames. We are afraid to reveal our disease because we know it can easily result in termination or expulsion - "for our own good." The head of HR-Disability for a major corporation told me largest numbers of calls from managers.....

3...about people with disabilities is that they have discovered someone they hired has epilepsy, and asking if they can be fired or at least moved to where customers won't see them. And then...and then there is Hollywood, that thinks we're funny or worth ignoring, as if....

4....requiring every viewer to eat candy would be OK despite the impact on diabetics. I have revealed my #epilepsy. And I am furious. So, it is time to start listing the #EnemiesofEpilepsy - those companies or intstitutions that risk our lives for a joke, or discriminate....

5...I will call for everyone with #epilepsy, everyone with a friend or family member with epilepsy, write these organizations, demand they stop. And dont use or view their products....

6...the current #EnemiesofEpilepsy:

a. @Netflix: Imagine if there was a film on Netflix that made fun of someone with HIV, who called him horrible names. And then made it all a joke. And then misrepresented everything about the condition. #Netflix did that with epilepsy....

@netflix ...on a horrible @Netflix movie that will go unmentioned, the film incorrectly depicted a character having a seizure. In the story, it was caught recorded on phone and sent out on social media. The hashtag "SeizaBoyDance" trended, along with the video. This character was....

@netflix ....for the rest of the film called "Seiza Boy." In Colorado, I met a kid whose classmates had seen the movie. He was now "Seiza Boy." He told me the story as he sobbed. His parents are thinking of moving him to a new school, but they fear that, if he has a seizure there....

@netflix ....others will have seen the movie and he will become "seiza boy" again.

This kind of name calling and ridicule is what leads many kids to go to summer camps only with kids who have epilepsy. Which is great and sad - since they all end up knowing a fellow camper who dies from..

@netflix ....seizures BECAUSE EPILEPSY KILLS.

The next entry on #EnemiesOfEpilepsy:

b. Ian Edelman: The writer and director of the @Netflix movie that delivered so much pain and ridicule to members of the epilepsy community. And, as best as I can tell, has done nothing but muttered....

@netflix ...a few justifications....

c. @MCUSpiderMan: One of the worst fictions that causes major injuries to people with epilepsy is the lie about tongue-swallowing. It is a falsehood that is only applied to people with major seizures or major head injuries. The #epilepsy community...

@netflix @MCUSpiderMan ....has spent a decade trying to educate the public into understanding that tongue swallowing is not real. Reason: People pry open our mouths; one person I knew had his bottom teeth shattered by bottle opener. People place spoons in mouths and, since the jaw clamps down during...

@netflix @MCUSpiderMan ....a seizure, teeth shatter. I know a woman who choked on her own teeth during a seizure because they were shattered by people trying to stop her from "swallowing her tongue."

We have been making progress educating tongue swallowing is false, limiting the injuries we face....

@netflix @MCUSpiderMan ...then along comes #SpiderManFarFromHome trailer, where @TomHolland1996 and @SamuelLJackson joke that an unconscious kid might swallow his tongue. A MYTH that we have fought to keep people from breaking their teeth by uninformed well-wishers. How many....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson ....people will have to go through life with shattered teeth, upper or lower plates, so there could be an ignorance joke between @TomHolland1996 and @SamuelLJackson. Efforts have been made by the epilepsy community to @MarvelStudios and @SonyPictures begging them not to....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures ....subject us to potentially shattered teeth for a dumb joke that perpetuates a myth. It is easy to dub a line from a film, amnd this one is only a trailer. Change it before the film. But they ignored he epilepsy communit.....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures ....and this is why both @MarvelStudios and @Sonypictures are on today's list of #EnemiesOfEpilepsy. Although this should change: #EnemiesOfPeopleWithEpilepsy.

e. Of course, I cannot end today's list - there will be more to come -.....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures ....without citing the reigning king of discrimination against those with #epilepsy, the school that should be picketed and abandoned by every people in the world with epilepsy, @NotreDame. As everyone who follows this feed knows, Notre Dame drove out a kid with epilepsy....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures @NotreDame ....by refusing the tiniest of tiny accommodation without which, the kid's doctor said, he could die. They literally said "risk death or go somewhere else." He went to a competing school that provided the accommodation only on hearing about his condition, without request....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures @NotreDame ...Notre Dame has been given months to meet with experts willing to go to the school and explain their error - or explain how they broke the law - and all the family has ever asked for is an apology.

Instead, @NotreDame has gone silent, using slander and libel and lying to....

@netflix @MCUSpiderMan @TomHolland1996 @SamuelLJackson @MarvelStudios @SonyPictures @NotreDame ....students about what happened.

So, for that, @NotreDame is the winner and longtime champion of #EnemiesOfPeopleWithEpilepsy

A recount of the enemies:
1. @netflix
2. Ian edelman
3. @MarvelStudios
4. @SonyPictures
5. @NotreDame

More to come.

End for now.