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Susannah Fox
@SusannahFox
, 7 tweets, 4 min read Read on Twitter
Kudos to @wbur, @healthblawg, and @ESchattner for explaining in plain language why Facebook is a lifeline - and a hazard - for patients & caregivers wbur.fm/2Ntz5ef
People's eyes often glaze over when we geeks talk about health privacy, but this is important: A Facebook loophole allowed marketers to discover the names of people in private groups cnb.cx/2L8IPZp
Context:
- 68% of U.S. adults use Facebook pewrsr.ch/2jbcwOh
- 51% of U.S. teens use Facebook pewrsr.ch/2kCW352
Facebook is the default platform for many people and they turn to it when they need input of all kinds. #PeerHealthAdvice is a powerful draw, whether dealing with rare or common issues.
Peer-to-Peer Support and Online Communities - a @jmirpub collection of articles on #PeerHealthAdvice jmir.org/themes/76
The science behind #PeerHealthAdvice - @Peers4Progress peersforprogress.org/learn-about-pe…
Why it matters that Facebook is a lifeline - and a hazard - for patients: a LOT of people are looking online for #PeerHealthAdvice susannahfox.com/2018/08/06/pee…
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More from @SusannahFox see all

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Susannah Fox
@SusannahFox
A conference organizer emailed to ask for advice about topics, speakers, and panelists for an event focused on patient-controlled data sharing. Here are some of the ideas I shared (thread)...
The @quantifiedself movement is full of people with ideas about capturing and controlling their own data, then using it to solve problems quantifiedself.com
The @Data4BlackLives community is a creative, critical group of engaged scientists, technologists, activists, and organizers around the use & misuse of data d4bl.org/conference.html
Read 7 tweets
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Susannah Fox
@SusannahFox
Nine out of ten U.S. teens & young adults with moderate to severe depressive symptoms say they have gone online for information on mental health issues (compared to 48% of those without depressive symptoms) bit.ly/2DEqW4G Young people lounge on couches and chairs while looking at their phones and talking with each other.
75% of teens & young adults with moderate to severe depressive symptoms say they have watched, listened to, or read people sharing about their health experiences online (compared to 54% of those with no depressive symptoms) - @Hopelab @WellBeingTrust study
Half of teens & young adults with moderate to severe depressive symptoms have tried to find people online with similar health concerns (compared to 27% of those who report no depressive symptoms) - @Hopelab @WellBeingTrust #PeerHealthAdvice
Read 4 tweets
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Susannah Fox
@SusannahFox
Checking out @RealTalkAppNC "a community for teens packed with real stories about cringey moments" - example of #PeerHealthAdvice apple.co/2Ca8wIn
More teens use Instagram than Twitter so it's smart that @RealTalkAppNC has a robust presence there: instagram.com/realtalkapp/ #PeerHealthAdvice
Teens are often looking for a "just in time someone like me" to advise them on health and relationship issues susannahfox.com/2014/07/08/jus…
Read 4 tweets

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Paula Chertok🗽
@PaulaChertok
50 million Facebook profiles harvested for Cambridge Analytica. Psych prof/developer Aleksandr Kogan accessed 270k FB users' data w his app, then collected their friends' data…& sold it all to Trump's data firm which used it to target ads in 2016 election theguardian.com/news/2018/mar/…
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Jon Hislop, MD, PhD
@HislopMD
1/n
 Dear naturopaths,

You seem to have no idea how much trouble you cause for patients, MDs, & society in general. This trouble is getting worse, & it has to STOP. Since you seem to have no insight into these issues, here are some of the (many) problems you create for us all...
2/n
 Naturopaths, STOP making patients think they NEED lab tests from MDs! If we disagree, it can compromise our relationship with our patients by making them think they’re being denied something you just told them they HAD to have! You are SETTING US UP for a conflict with them!
3/n
 It takes a LOT of time for MDs to explain why MANY (nearly all) of the tests naturopaths are often demanding SHOULD'NT be done! This re-education, takes AWAY time spent effectively on that #patients actual health issues. This isn't helping their care! This COMPROMISES it!!
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