#clinicaltrials continue to be the primary way to answer question in oncology but few patients enroll. Despite more data being stored in the #EHR, we can't easily combine data across systems as few are interoperable. This is a missed opportunity.
#mCODE is a newly proposed data standard that leverages and expands existing data standards to promote answering clinically meaningful oncology questions across medical records allowing us to learn from more patients
The data dictionary is now live at
mcodeinitiative.org
You can review the project, apply for the #mCODE Council, download the full data dictionary, and more
The first clinical pilot, Compass, is also live at Intermountain Healthcare @intermtncancer @MITREhealth #mCODE
This is an ambitious project with numerous collaborators @ASCO #CancerLinQ @ALLIANCE_org @MITREhealth @BidenCancer @intermtncancer @theNCI @HL7 @BrighamWomens @FDAOncology @rsm2800 @WendyRubinstein #ASCO19 #BigData #mCODE
For any new standard, adoption will be key to success. Support, engage, advocate.